This article describes a longitudinal evaluation of the quality of life of service users with profound learning difficulties who were resettled from hospital accommodation to supported housing in the community. The Trident approach was used for the design of the evaluation with data gathered regarding outcomes, process and stakeholder perspectives. Using a specially designed tool, quality of life was measured in seven domains for 39 service users in the hospital as a base line and at six months, twelve months and eighteen months in supported housing. A statistically significant improvement in quality of life overall and in each of the seven domains was found. Questionnaire surveys of parents/next of kin and support staff confirmed these findings as did a number of qualitative case studies.
AgerA (1998) The BILD Life Experiences Checklist. London: British Institute of Learning Disabilities.
2.
Beadle-BrownJMansellJKozmaA (2007) Deinstitutionalization in intellectual disabilities. Current Opinion in Psychiatry20: 437–442.
3.
ChowdhuryMBensonB (2011) Deinstitutionalisation and quality of life of individuals with intellectual disability: a review of the international literature. Journal of Policy and Practice in Intellectual Disabilities8(4): 256–265.
4.
CumminsRA (1996) The domains of life satisfaction: an attempt to order the chaos. Social Indicators Research38: 303–332.
5.
CumminsRA (1997) Comprehensive Quality of Life Scale – Intellectual Disability: ComQol-15. 5th ed. Melbourne: School of Psychology, Deakin University.
6.
Department of Health (2006) Our Health Our Care Our Say, London: Department of Health.
7.
EllisRHogardE (2006) The trident: a three-pronged method for evaluating clinical, social and educational innovations. Evaluation12(3): 372–383.
8.
EllisRHogardEWattsV (2008) Quality of Life Questionnaire V.3 for Assessing Quality of Life in Individuals with Learning Disabilities. Chester, UK: SHEU, University of Chester Press.
9.
EmersonEHattonC (1994) The Impact of Relocation from Hospital to Community on the Quality of Life of People with Learning Disabilities. London, HMSO.
10.
Felce (2007) Quality of Life in Community Living Services: Issues of Objective and Subjective Measurement. Cardiff: Welsh Centre for Learning disabilities, Cardiff University.
11.
FrisonLPocockSJ (1992) Repeated measures in clinical trials: Analysis using mean summary statistics and its implications for design. Statistics in Medicine11(13): 1685–1704.
12.
GriersonA (2006) A stakeholder analysis of a quality of life for people with learning disabilities. MSc Thesis, South Bank University.
13.
GrunewaldK (1997) Effect of social and educational policies on the number of persons with mild mental retardation in Sweden. Mental Retardation35(3): 218–220.
14.
HattonC (1998) Who’s quality of life is it anyway? Some problems with the emerging quality of life consensus. Mental Retardation36(2): 104–115.
15.
Healthcare Commission (2007) Investigation into the Service for People with Learning Disabilities Provided by Sutton and Merton Primary Care Trust. London: Healthcare Commission.
16.
HogardE (2007) Using Consultative Methods to Investigate Professional-Client Interaction as an Aspect of Process Evaluation. American Journal of Evaluation28(3): 304–317.
17.
KeithKD (2001) International quality of life: current conceptual measurement and implementation issues. International Review of Research in Mental Retardation24: 49–74.
18.
KrapuTMeinkeLKramerLFriedmanRVodaJ (2006) The life satisfaction survey (LSS): development of the instrument. In: Proceedings of the 4th international coach federation coaching research conference.
19.
MansellJ (1996) In: MansellJEricssonK (eds) Deinstitutionalisation and Community Living: An International Perspective. London: Chapman and Hall.
20.
MansellJ (2006) Deinstitutionalisation and community living: Progress, problems and priorities. Journal of Intellectual & Developmental Disability 31: 65–76.
21.
NotaLSoresiSPerryJ (2006) Quality of life in adults with an intellectual disability: the evaluation of quality of life instrument. Journal of Intellectual Disability Research50(5): 371–385.
22.
Perry (2002) Subjective and objective quality of life: their interrelationship and determinants. ReFeR summary. Available at: http://www.refer.nhs.uk.
23.
PlimleyLA (2007) A review of quality of life issues and people with autism spectrum disorders. British Journal of Learning Disabilities35: 205–213.
24.
RossEOliverC (2003) Preliminary analysis of the psychometric properties of the mood interest and pleasure questionnaire (MIPQ) for adults with severe and profound learning disabilities. British Journal of Clinical Psychology42: 81–93.
25.
SchalockRL (2004) The concept of quality of life: what we know and do not know. Journal of International Disability Research48(3): 203–216.
26.
SchalockRKeithK (1993) Quality of life questionnaire. Mental Retardation40(2): 157–165.
27.
SkeaD (2008) Quality of life for adults with learning disabilities in private residential care: monitoring aspects of life experience over time. Mental Health and Learning Disabilities Research and Practice5: 252–265.
28.
StancliffeRMcVillyKRadlerGMountfordLTomaszewskiP (2010) Active support, participation and depression. Journal of Applied Research in Intellectual Disabilities23(4): 312–321.
29.
TizardJ (1960) Residential care of mentally handicapped children. British Medical Journal1: 1041–1046.
30.
VerdugoMASchalockRLKeithKDStancliffeRJ (2005) Quality of life and its measurement: important principles and guidelines. Journal of Intellectual Disability Research49:707–717.
31.
WattsVHogardEEllisR (2006) Resettlement of Individuals with Learning Disabilities into Community Care: Advantages and Risks SHEU Occasional Papers No 7. Chester, UK: University of Chester Press.
32.
WhiteA (2007). A global projection of subjective well-being: a challenge to positive psychology?Psychtalk56: 17–20.
