Abstract
Background
Spirituality is a vast dimension influenced by cultural and personal differences. Little is known about the spirituality of patients suffering from a chronic disease in Italy from palliative care hospital settings.
Aim
To investigate patients’ perspectives about their spirituality during their illness.
Method
The research question was: ‘How does living with chronic disease inform/shape the spiritual dimension of patients?’. To address it, we conducted a qualitative interview study with thematic analysis.
Results
We enrolled 21 participants among patients suffering from rheumatic, haematologic, neurodegenerative and respiratory chronic diseases. Participants generally had great difficulty answering the questions researchers posed and often could not define ‘spirituality’. We found different topics grouped under four main themes: definition of spirituality, internal dialogue, expression of spirituality in everyday life and take stock. Religion is not reported as an answer to spiritual suffering, even in a country that is felt religious-driven like Italy.
Discussion
Patients are generally not cognizant of this dimension even living with a chronic disease; consequently, they cannot express spiritual needs because they can’t recognise them. Health professionals should identify this dimension and its characteristics to recognise potential spiritual suffering.
Get full access to this article
View all access options for this article.
