Objective: To describe the experiences of Australian parents caring for children with asthma.
Methods: A combination of random sampling, purposeful sampling and quota sampling was used to select care-givers from general practices in Melbourne's north and north-western suburbs. Data collection involved a single semi-structured in-depth interview with 21 parents caring for a child with asthma. Thematic analysis was aided by QSR NVivo.
Results: Children experienced predominantly mild-to-moderate, episodic asthma. Six themes emerged from the interviews: emotions and behaviours, coping strategies, disruption to activities, health and treatment beliefs, problems with asthma management, and relationships with doctors. Parents' experiences and health beliefs impacted on their management of asthma. These may act as barriers to optimal asthma care in some families. The overriding theme to emerge was `it gets easier'. It got easier with time because the children could communicate more effectively, and were better able to take care of themselves, and their asthma became less severe or less of a problem.
Discussion: This research has highlighted the need for health professionals to emphasize the chronic nature of asthma, but negotiate strategies with care-givers to optimize the use of asthma medications, with consideration being given to care-givers' fears, frustrations and health beliefs.
Douglass J., Aroni R., Goeman D., et al. A qualitative study of action plans for asthma. BMJ2002; 324: 1003—8.
2.
Goeman D., Aroni R., Stewart K., et al. Patients' views on the burden of asthma: a qualitative study . Med J Aust2002; 177: 295—9.
3.
Sterling Y., Peterson J.Characteristics of African American women caregivers of children with asthma . Maternal Child Health Nurse2003; 28: 32—8.
4.
Prout A., Hayes L., Lesley G.Medicines and the maintenance of ordinariness in the household management of childhood asthma. Sociol Health Ill1999 ; 21: 137—62.
5.
Mansour M., Lanphear B., DeWitt T.Barriers to asthma care in urban children: parent perspectives. Pediatrics2000; 106: 512—18.
6.
Palmer E.Family caregiver experiences with asthma in school-age children. Pediatr Nurs2001; 27: 75—81.
Horner S.Catching the asthma: family care for school-aged children with asthma. J Pediatr Nurs1998; 13: 356—65.
9.
Macdonald H.Mastering uncertainty: mothering the child with asthma. Pediatr Nurs1996; 22: 55—9.
10.
Peterson-Sweeney K., McMullen A., Yoos HL, et al. Parental perceptions of their child's asthma: management and medication use. J Pediatr Health Care2003; 17: 118—25.
11.
Young B., Fitch GE, Dixon-Woods M., et al. Parents' accounts of wheeze and related symptoms: a qualitative study. Arch Dis Child2002; 87: 131—4.
12.
Barton CA, Sulaiman ND, Clarke DM, Abramson MJCaregiver's use and attitudes toward written asthma action plans in North-West Melbourne. Primary Care Respir J2005; 14: 143—6.
13.
Sulaiman ND , Barton CA, Abramson MJ, et al. Factors associated with ownership and use of written asthma action plans in North-West Melbourne. Primary Care Respir J2004; 13: 211—17.
14.
Patton M.Qualitative evaluation and research methods, 2nd edn. Newbury Park, CA: Sage, 1990.
15.
Strauss A., Corbin J.Basics of qualitative research, 2nd edn. Newbury Park, CA: Sage, 1998.
16.
Adams RJ, Smith BJ, Ruffin REPatient preference for autonomy in decision making in asthma management. Thorax2001; 56:126—32.
