Objectives: To examine how people from Bradford's Pakistani Muslim community experience living with epilepsy. Specifically, the paper addresses social interactions and negotiations with care providers and considers how different understandings of epilepsy are integrated.
Methods: Interviews were conducted with a sample of Bradford's Pakistani Muslim community ( n=20). Interviews were analysed to identify themes and significant areas of shared concern.
Results: This paper identifies popular, professional and folk sectors contributing to an individual's `health system'. Where sectors overlap, zones of hybridity are created: that is, a person might simultaneously seek help from a doctor and from a religious healer, or might offer explanations for seizures that include neurological and spiritual components.
Discussion: While there are many similarities between the experiences of these minority ethnic community members and published work on the lived experience of epilepsy in other communities, there are also important differences that service providers need to recognize and respond to. Differences include forms of cultural expression and specific language needs. Improving communication between professionals and persons with epilepsy needs to be prioritized.
Kleinman A.Patients and healers in the context of culture. Berkeley, CA: University of California Press, 1980.
2.
Eade J.The power of the experts. In: Marks L, Worboys M, eds. Migrants, minorities and health . London: Routledge, 1997: 250—71.
3.
Werbner P.The dialectics of cultural hybridity. In: Werbner P, Modood T, eds. Debating cultural hybridity. London: Zed Books, 2000: 1—26.
4.
Bradford City Primary Care Trust.Health information and health inequalities across the Bradford Metropolitan District. Bradford: Bradford City Primary Care Trust, 2004.
5.
Cummins C., Winter H., Cheng KK, Maric R., Silcocks P., Varghese C.An assessment of the Nam Pehchan computer programme for the identification of names of south Asian ethnic origin. J Public Health Med1999; 21: 401—6.
6.
Pond D., Bidwell B., Stein L.A survey of 14 general practices. Psychiatr Neurol Neurochirurg1960; 63: 217—36.
7.
Ritchie J., Spencer L.Qualitative data analysis for applied policy research. In: Bryman A, Burgess R, eds. Analysing qualitative data. London: Routledge, 1994,173-94.
8.
Scambler G.Epilepsy. London: Tavistock, 1989.
9.
Scambler G.Patient perceptions of epilepsy and of doctors who manage epilepsy. Seizure1994; 3: 287—93.
10.
Jacoby A.Felt versus enacted stigma: a concept revisited. Soc Sci Med1994; 38: 269—74.
11.
Baker GA, Jacoby A., DeBoer H., Doughty J., Myon E., Taieb C.Patients' understanding of and adjustment to epilepsy: interim findings from a European survey. Epilepsia1999; 40(Suppl. 9): S26—9.
12.
Aziz H., Akhtar SW, Hasan KZEpilepsy in Pakistan: stigma and psychosocial problems. A population-based epidemiologic study. Epilepsia1997; 38: 1069—73.
13.
Dell JLSocial dimensions of epilepsy: stigma and response. In: Whitman S, Hermann BP, eds. Psychopathology in epilepsy: social dimensions. Oxford: Oxford University Press, 1986.
14.
Elwes Rdc, Marshall D., Beattie A., Newman PKEpilepsy and unemployment: a community based survey in an area of high unemployment . J Neurol Neurosurg Psychiatry2001; 54: 200—3.
15.
Moran N., Poole K., Bell G., et al. NHS services for epilepsy from the patient's perspective: a survey of primary, secondary and tertiary care access throughout the UK. Seizure2000; 9: 559—65.
16.
Ahmad Wiu. `Race' and health in contemporary Britain. Buckingham : Open University Press, 1993.
17.
Radakrishnan K., Pandian JD, Santhoshkumar SV, et al. Prevalence, knowledge, attitude and practice of epilepsy in Kerala, South India. Epilepsia2000; 41: 1027—35.
18.
Morrison JHThe book of ayurveda. New York: Simon and Schuster, 1995.
19.
Al-Awadi E., Al-Hashel J., Al-Hajeri D.Quaranic faith healing practices in Kuwait. Kuwait: Department of Community Medicine. Health Services Centre, Kuwait University, 1999 (unpublished report).
20.
Desai P., Padma MV, Jain S.Knowledge, attitudes and practice of epilepsy: experience at a comprehensive health service project. Seizure1998; 7: 133—8.
21.
Ahmad Wiu.The maligned healer: the hakim in western medicine. New Community1992; 18: 521—36.
22.
Wright J., Pickard N., Whitfield A., Hakin N.A population-based study of the prevalence, clinical characteristics and effect of ethnicity in epilepsy. Seizure2000; 9: 309—13.
23.
Lambert H., Sevak L.Is `cultural difference' a useful concept? In: Kelleher D, Hillier S, eds. Researching cultural differences in health. London: Routledge, 1996: 124—59.
24.
Kakar S. Shamans .Mystics and doctors. London : Unwin, 1982.
