Commentary on Zvonareva et al.: Exploring the many meanings of “professional” in research participation

HealthyVOICES Project. http://healthyvoices.web.unc.edu (n.d., accessed 9 August 2019).

Abadie R. The professional guinea pig: big pharma and the risky world of human subjects. Durham, NC: Duke University Press, 2010.

Zvonareva O Pimenov I Kutishenko N , et al. Informal professionalization of healthy participants in phase I clinical trials in Russia. Clin Trials, this issue.

Abbott A. The system of professions: an essay on the division of expert labor. Chicago, IL: University of Chicago Press, 1988.

Larson MS. The rise of professionalism: a sociological analysis. Berkeley, CA: University of California Press, 1979.

Brown AD. Identities and identity work in organizations. Int J Manage Rev 2015; 17: 20–40.

Edelblute HB Fisher JA. Using “clinical trial diaries” to track patterns of participation for serial healthy volunteers in U.S. phase I studies. J Empir Res Hum Res Ethics 2015; 10(1): 65–75.

Fisher JA McManus L Cottingham MD , et al. Healthy volunteers’ perceptions of risk in US Phase I clinical trials: a mixed-methods study. PLoS Med 2018; 15(11): e1002698.

Cottingham MD Fisher JA. Risk and emotion among healthy volunteers in clinical trials. Soc Psychol Q 2016; 79(3): 222–242.

Williams Q Fisher JA. Captive to the clinic: phase I clinical trials as temporal total institutions. Sociol Inq 2018; 88(4): 724–748.

Monahan T Fisher JA. “I’m Still a Hustler”: entrepreneurial responses to precarity by participants in phase I clinical trials. Econ Soc 2015; 44(4): 545–566.

McManus L Fisher JA. To report or not to report: exploring healthy volunteers’ rationales for disclosing adverse events in phase I drug trials. AJOB Empir Bioeth 2018; 9: 82–90.

Dresser R. Subversive subjects: rule-breaking and deception in clinical trials. J Law Med Ethics 2013; 41(4): 829–840.

Resnik DB McCann DJ. Deception by research participants. N Engl J Med 2015; 373: 1192–1193.

Devine EG Waters ME Putnam M , et al. Concealment and fabrication by experienced research subjects. Clin Trials 2013; 10(6): 935–948.

Dickert NW. Concealment and fabrication: the hidden price of payment for research participation. Clin Trials 2013; 10(6): 840–841.