Commentary on Zvonareva et al.

Zvonareva O Kutishenko N Kulikov E . Risks and benefits of trial participation: a qualitative study of participants’ perspectives in Russia. Clin Trials 2015; 12: 646–653.

Kost R Lee L Yessis J . Assessing participant-centered outcomes to improve clinical research. N Engl J Med 2013; 369: 2179–2181.

Fernandez C Gao J Strahlendorf C . Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer. J Clin Oncol 2009; 27: 878–883.

King N Churchill L . Assessing and comparing potential benefits and risks of harm. In: Emanuel EJ Grady C Crouch RA . (eds) Oxford textbook of clinical research ethics. New York: Oxford University Press, 2008, pp. 514–526.

Federal policy for the protection of human subjects. Fed Regist 1991; 56: 28012–28018.

Dresser R . Subversive subjects. J Law Med Ethics 2013; 41: 829–840.

Dresser R . Research subjects’ voices: the missing element in research ethics. Anaesth Intensive Care 2015; 43: 297–299.