EntwistleVARenfrewMJYearleyS. Lay perspectives: advantages for health research. BMJ1998;316(7129):463-6.
2.
StewartRLiaboK. Involvement in research without compromising research quality. J Health Serv Res Policy2012;17(4):248-51.
3.
ChalmersI. What do I want from health research and researchers when I am a patient?BMJ1995;310(6990):1315.
4.
SelbyJV. The Patient-Centered Outcomes Research Institute: a 2013 agenda for “research done differently.”Popul Health Manag2013;16(2):69-70.
5.
National Institute for Health Research. INVOLVE. Available: www.invo.org.uk/ (accessed May 22, 2016).
6.
Canadian Institutes of Health Research. Strategy for patient-oriented research: patient engagement framework. 2014. Available: www.cihr-irsc.gc.ca/e/48413.html#a7 (accessed May 22, 2016).
Canadian Institutes for Health Research. CIHR jargon buster. Available: www.cihr-irsc.gc.ca/e/48952.html (accessed May 22, 2016).
9.
BrettJStaniszewskaSMockfordC. Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expect2014;17(5):637-50.
10.
ConcannonTWFusterMSaundersT. A systematic review of stakeholder engagement in comparative effectiveness and patient-centered outcomes research. J Gen Intern Med2014;29(12):1692-701.
11.
DomecqJPPrutskyGElraiyahT. Patient engagement in research: a systematic review. BMC Health Serv Res2014;14:89.
12.
ShippeeNDDomecq GarcesJPPrutsky LopezGJ. Patient and service user engagement in research: a systematic review and synthesized framework. Health Expect2015;18(5):1151-66.
PetersMDGodfreyCMKhalilH. Guidance for conducting systematic scoping reviews. Int J Evid Based Healthc2015;13(3):141-6.
15.
KrskaJMackridgeAJ. Involving the public and other stakeholders in development and evaluation of a community pharmacy alcohol screening and brief advice service. Public Health2014;128(4):309-16.
16.
AlzubaidyHMarriottJ. Patient involvement in social pharmacy research: methodological insights from a project with Arabic-speaking immigrants. Res Soc Admin Pharm2014;10(6):924-5.
HewlettSWitMDRichardsP. Patients and professionals as research partners: challenges, practicalities, and benefits. Arthritis Care Res2006;55(4):676-80.
19.
LindenmeyerAHearnshawHSturtJ. Assessment of the benefits of user involvement in health research from the Warwick Diabetes Care Research User Group: a qualitative case study. Health Expect2007;10(3):268-77.
20.
SuppleDRobertsAHudsonV. From tokenism to meaningful engagement: best practices in patient involvement in an EU project. Res Involve Engage2015;1(1):1-9.
21.
ForsytheLPEllisLEEdmundsonL. Patient and stakeholder engagement in the PCORI pilot projects: description and lessons learned. J Gen Intern Med2016;31(1):13-21.
22.
Canadian Institutes for Health Research. SPOR SUPPORT units. 2016. Available: www.cihr-irsc.gc.ca/e/45859.html (accessed Jun. 14, 2016).