Guest Editorial: Ethical Issues in Social Media Research

Annas G. J. (2017). Informed consent: Charade or choice? Journal of Law, Medicine & Ethics, 45(1), 10–11. https://doi.org/10.1177/1073110517703096

Bassett E. H. O’Riordan K. (2002). Ethics of internet research: Contesting the human subjects research model. Ethics and Information Technology, 4, 233–247.

Beninger K. Fry A. Jago N. Lepps H. Nass L. Silvester H. (2014). Research using social media: Users’ views. http://natcen.ac.uk/our-research/research/research-using-social-media-users-views/

The British Psychological Society. (2017). Ethics guidelines for internet-mediated research (2017).

British Sociological Association. (2017). Ethics guidelines and collated resources for digital research. https://www.britsoc.co.uk/media/24309/bsa_statement_of_ethical_practice_annexe.pdf

Buchanan E. A. (2017). Internet research ethics: Twenty years later. In Zimmer M. Kinder-Kurlanda K. (Eds.), Internet research ethics for the social age (pp. xxix–xxxiii). Peter Lang.

Buchanan E. A. Ess C. M. (2009). Internet research ethics and the institutional review board: Current practices and issues. Computers and Society, 39(3), 43–49.

Buchanan E. A. Hvizdak E. E. (2009). Online survey tools: Ethical and methodological concerns of human research ethics committees. Journal of Empirical Research on Human Research Ethics, 4(2), 37–48.

Carter C. J. Koene A. Perez E. Statache R. Adolphs S. O’Malley C. . . . McAuley D. (2016). Understanding academic attitudes towards the ethical challenges posed by social media research. Computers and Society, 45(3), 202–210.

Chu J. L. Snider C. E. (2013). Use of a social networking web site for recruiting Canadian youth for medical research. Journal of Adolescent Health, 52, 792–794.

Convery I. Cox D. (2012). A review of research ethics in internet-based research. Practitioner Research in Higher Education, 6(1), 50–57.

Council for International Organizations of Medical Sciences. (2016). International ethical guidelines for health-related research involving humans. https://cioms.ch/wp-content/uploads/2017/01/WEB-CIOMS-EthicalGuidelines.pdf

Ess C. (2002). Ethical decision-making and internet research: Recommendations from the AoIR ethics working committee. Association of Internet Researchers.

Ess C. (2017). Grounding internet research ethics 3.0: A view from (the) AoIR. In Zimmer M. Kinder-Kurlanda K. (Eds.), Internet research ethics for the social age (pp. ix–xv). Peter Lang.

Eynon R. Fry J. Schroeder R . (2017). The ethics of internet research. In Fielding N. Lee R. M. Blank G. (Eds.), The SAGE handbook of online research methods (pp. 23–41). Sage.

Eysenbach G. Till E. J. (2001). Ethical issues in qualitative research on internet communities. British Medical Journal, 323, 1103–1105.

Fiesler C. Proferes N. (2018). “Participant” perceptions of Twitter Research Ethics. Social Media + Society, 4(1). https://doi.org/10.1177/2056305118763366

Franzke A. S. Bechmann A. Zimmer M. Ess C ., & The Association of Internet Researchers. (2020). Internet research: Ethical guidelines 3.0. https://aoir.org/reports/ethics3.pdf

Gelinas L. Pierce R. Winkler S. Cohen I. G. Lynch H. F. Bierer B. E. (2017). Using social media as a research recruitment tool: Ethical issues and recommendations. American Journal of Bioethics, 17(3), 3–14. https://doi.org/10.1080/15265161.2016.1276644

Giraud C. Cioffo G. D. Kervyn de Lettenhove M. Ramirez Chaves C. (2019). Navigating research ethics in the absence of an ethics review board: The importance of space for sharing. Research Ethics, 15, 1–17. https://doi.org/10.1177/1747016117750081

Golder S. Ahmed S. Norman G. Booth A. (2017). Attitudes toward the ethics of research using social media: A systematic review. Journal of Medical Internet Research, 19(6), e195. https://doi.org/10.2196/jmir.7082

Henderson M. Johnson N. F. Auld G. (2013). Silences of ethical practice: Dilemmas for researchers using social media. Educational Research and Evaluation: An International Journal on Theory and Practice, 19(6), 546–560.

Hibbin R. Samuel G. Derrick G. (2018). From “a fair game” to “a form of covert research”: Research ethics committee members differing notions of consent and potential risk to participants within social media research. Journal of Empirical Research on Human Research Ethics, 13, 149–159.

Hudson J. M. Bruckman A. (2005, September 18–22). Using empirical data to reason about internet research ethics [Paper presentation]. Proceedings of the 9th European conference on computer-supported cooperative work, Paris, France.

Hunter R. F. Gough A. O’Kane N. McKeown G. Fitzpatrick A. Walker T. . . . Kee F. (2018). Ethical issues in social media research for public health. American Journal of Public Health, 108(3), 343–348. https://doi.org/10.2105/AJPH.2017.304249

Iphofen R. (2017). Conclusion: Guiding the Ethics of Online Social Media Research – Adaptation or Renovation? In Woodfield K. (Ed.), The Ethics of Online Research (Vol. 2, pp. 237–242). Emerald Publishing Limited.

Jones C. (2011). Ethical issues in online research, British educational research association on-line resource. https://www.bera.ac.uk/researchers-resources/publications/ethical-issues-in-online-research

Kara H. (2018). Research ethics in the real world. Policy Press.

Locatelli E. (2017). Images of breastfeeding on Instagram: Self-representation, publicness, and privacy management. Social Media + Society, 3(2). https://doi.org/10.1177/2056305117707190

Markham A. N. (2018). Afterword: Ethics as impact—Moving from error-avoidance and concept-driven models to a future-oriented approach. Social Media + Society, 4(3). https://doi.org/10.1177/2056305118784504

Markham A. N. Buchanan E. (2012). Ethical decision-making and internet research: Recommendations from the AoIR ethics working committee. https://aoir.org/reports/ethics2.pdf

Markham A. N. Tiidenberg K. Herman A. (2018). Ethics as methods: Doing ethics in the era of big data research—Introduction. Social Media + Society, 4(3). https://doi.org/10.1177/2056305118784502

Massanari A. L. (2018). Rethinking research ethics, power, and the risk of visibility in the era of the “alt-right” gaze. Social Media + Society, 4(2). https://doi.org/10.1177/2056305118768

McKee H. A. Porter J. E. (2008). The ethics of digital writing research: A rhetorical approach. College Composition and Communication, 59, 711–749.

McKee H. A. Porter J. E. (2009). The ethics of internet research: A rhetorical, case-based process. Peter Lang.

Moreno M. A. Goniu N. Moreno P. S. Diekema D. (2013). Ethics of social media research: Common concerns and practical considerations. Cyberpsychology, Behavior, and Social Networking, 16(9), 708–713. https://doi.org/10.1089/cyber.2012.0334

Nissenbaum H. (2009). Privacy in context: Technology, policy, and the integrity of social life. Stanford Law Books.

Paasche-Orlow M. K. Taylor H. A. Brancati F. L. (2003). Readability standards for informed-consent forms as compared with actual readability. New England Journal of Medicine, 348(8), 721–726. https://doi.org/10.1056/NEJMsa021212

Pagoto S. Nebeker C. (2019). How scientists can take the lead in establishing ethical practices for social media research. Journal of the American Medical Informatics Association, 26, 311–313. https://doi.org/10.1093/jamia/ocy174

Pandiya A. (2010). Readability and comprehensibility of informed consent forms for clinical trials. Perspectives in Clinical Research, 1(3), 98–100.

Renton T. Tang H. Ennis N. Cusimano M. D. Bhalerao S. Schweizer T. A. Topolovec-Vranic J. (2014). Web-based intervention programs for depression: A scoping review and evaluation. Journal of Medical Internet Research, 16(9), e209. https://doi.org/v16i9e209

Rice S. M. Goodall J. Hetrick S. E. Parker A. G. Gilbertson T. Amminger G. P. . . . Alvarez-Jimenez M. (2014). Online and social networking interventions for the treatment of depression in young people: A systematic review. Journal of Medical Internet Research, 16(9), e206. https://doi.org/v16i9e206

Samuel G. (2017). “The danger of lurking”: Different conceptualizations of “user awareness” in social media research. American Journal of Bioethics, 17(3), 25–26. https://doi.org/10.1080/15265161.2016.1274793

Samuel G. Derrick G. Van Leeuwen T. N. (2019). The ethics ecosystem: Personal ethics, network governance and regulating actors governing the use of social media research data. Minerva, 57, 317–343.

Samuel G. Dheensa S. (2018). Perspectives in achieving institutional trust in personalized medicine. American Journal of Bioethics, 18(4), 39–41. https://doi.org/10.1080/15265161.2018.1431724

Swirsky E. Hoop J. Labott S. (2014). Using social media in research: New ethics for a new meme? American Journal of Bioethics, 14(10), 60–61.

Torous J. Nebeker C. (2017). Navigating ethics in the digital age: Introducing Connected and Open Research Ethics (CORE), a tool for researchers and institutional review boards. Journal of Medical Internet Research, 19(2), e38. https://doi.org/10.2196/jmir.6793

Vitak J. Proferes N. Shilton K. Ashktorab Z. (2017). Ethics regulation in social computing research: Examining the role of institutional review boards. Journal of Empirical Research on Human Research Ethics, 12, 372–382. https://doi.org/10.1177/1556264617725200

von Benzon N . (2019). Informed consent and secondary data: Reflections on the use of mothers’ blogs in social media research. Area, 51, 182–189. https://doi.org/10.1111/area.12445

Whiting R. Pritchard K. (2017). Digital ethics. In Cassell C. Cunliffe L. Grandy G. (Eds.), The SAGE handbook of qualitative business and management research methods (Vol. 1, pp. 562–579). Sage.

Williams M. L. Burnap P. Sloan L. (2017). Towards an ethical framework for publishing Twitter data in social research: Taking into account users’ views, online context and algorithmic estimation. Sociology, 51, 1149–1168. http://orca.cf.ac.uk/99642/

Willis R. (2019). Observations online: Finding the ethical boundaries of Facebook research. Research Ethics, 15, 1–17. https://doi.org/10.1177/1747016117740176

Zimmer M. (2010). “But the data is already public”: On the ethics of research in Facebook. Ethics and Information Technology, 12, 313–325.

Zimmer M. (2018). Addressing conceptual gaps in big data research ethics: An application of contextual integrity. Social Media + Society, 4(2). https://doi.org/10.1177/2056305118768300

Zimmer M. Kinder-Kurlanda K. (2017). Internet research ethics for the social age. Peter Lang.