Decades of Doing: Indigenous Women Academics Reflect on the Practices of Community-Based Health Research

Abstract

It has been several decades since the establishment of Ownership, Control, Access, and Possession (OCAP®) and the proliferation of work on Indigenous research ethics. Most of this dialogue emerged because of egregious health research practices in Indigenous communities and has since taken a foothold across all disciplines. Community-engaged research in Indigenous communities is challenging. It is important to reflect on some of the early ethical and methodological debates, which shape how we currently work with communities. This research describes the themes that emerged when two Indigenous scholars interviewed their Indigenous university-based colleagues who work in Indigenous health. These interviews uncovered four critical themes that were prominent and related specifically to understanding research ethics in Indigenous health research specifically. These themes included research in relationship, creating partnerships and negotiating across systems, self-determination applied to research, and community-engaged research.

Keywords

community health research Indigenous health research Indigenous research Indigenous research ethics OCAP®

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