The caregiving burden experienced by informal caregivers of individuals with schizophrenia (ICIWS) can affect their perceived occupational balance (OB). This study examines the differences in OB among ICIWS with different caregiving burden levels. This cross-sectional study was conducted with a sample of 149 ICIWS. The Occupational Balance Questionnaire 11–Turkish Version (OBQ11-T) was used to assess the participants’ OB. The Zarit Caregiver Burden Scale was employed to evaluate caregiving burden levels. Statistically significant differences were found in the total score of OBQ11-T, Item 3 (time for doing things wanted), Item 5 (having sufficient time for doing obligatory occupations), and Item 9 (balance between obligatory/voluntary occupations) between the severe and little caregiving burden groups (p < .05). Caregiving for individuals with schizophrenia can lead to varying levels of caregiving burden, which negatively affects OB. Occupational therapists working with ICIWS should assess OB and address OB-related challenges to alleviate caregiver burden.
Plain Language Summary
Balancing Daily Activities for Schizophrenia Caregivers
Caring for people with schizophrenia can disrupt their daily routines of caregivers. We studied 149 caregivers to see how they manage their activities. Using surveys, we found that those facing more burden had trouble balancing activities like doing what they wanted and needed. This suggests that caregiving burden affects how caregivers handle their own tasks. Occupational therapists could help caregivers by understanding their challenges and finding ways to reduce burden.
BrainC.KymesS.DiBenedettiD. B.BrevigT.VelliganD. I. (2018). Experiences, attitudes, and perceptions of caregivers of individuals with treatment-resistant schizophrenia: A qualitative study. BMC Psychiatry, 18(1), 1–13.
2.
ChenL.ZhaoY.TangJ.JinG.LiuY.ZhaoX.ChenC.LuX. (2019). The burden, support and needs of primary family caregivers of people experiencing schizophrenia in Beijing communities: A qualitative study. Journal of BMC Psychiatry, 19, 1–10. https://doi.org/10.1186/s12888-019-2052-4
3.
ChenQ.ChenM.LoC. K. M.ChanK. L.IpP. (2022). Stress in balancing work and family among working parents in Hong Kong. International Journal of Environmental Research and Public Health, 19(9), Article 5589. https://doi.org/10.3390/ijerph19095589
4.
ClariR.HeadleyJ.EggerJ.SwaiP.LawalaP.MinjaA.KaayaS. F.BaumgartnerJ. N. (2022). Perceived burden and family functioning among informal caregivers of individuals living with schizophrenia in Tanzania: A cross-sectional study. Journal of BMC Psychiatry, 22(1), 1–12. https://doi.org/10.1186/s12888-021-03560-0
5.
CohenJ. (1988). Statistical power analysis for the behavioral sciences (2nd ed., pp. 284–287). Lawrence Erlbaum.
6.
DhasB. N.CarrascoR.ReinosoG. A.BackmanC. (2023). Occupational balance among parents of typically developing children and parents of children with disabilities. American Journal of Occupational Therapy, 77(1), 7701205150. https://doi.org/10.5014/ajot.2023.050076
7.
DürM.RöschelA.Oberleitner-LeebC.HerrmannsV.Pichler-StachlE.MattnerB.PernterS.-D.WaldM.UrlesbergerB.KurzH.FrischerT.ZwiauerK.MatterI. S. (2022). Associations between parental occupational balance, subjective health, and clinical characteristics of VLBW infants. Journal of Frontiers in Pediatrics, 10, Article 816221. https://doi.org/10.3389/fped.2022.816221
8.
GünalA.PekçetinS.DemirtürkF.ŞenolH.HåkanssonC.WagmanP. (2020). Validity and reliability of the Turkish Occupational Balance Questionnaire (OBQ11-T). Scandinavian Journal of Occupational Therapy, 27(7), 493–499. https://doi.org/10.1080/11038128.2019.1673479
9.
GünalA.PekçetinS.WagmanP.HåkanssonC.KayıhanH. (2022). Occupational balance and quality of life in mothers of children with cerebral palsy. British Journal of Occupational Therapy, 85(1), 37–43. https://doi.org/10.1177/03080226219951
10.
HåkanssonC.WagmanP.HagellP. (2020). Construct validity of a revised version of the Occupational Balance Questionnaire. Scandinavian Journal of Occupational Therapy, 27(6), 441–449. https://doi.org/10.1080/11038128.2019.1660801
11.
HoenigJ.HamiltonM. W. (1966). The schizophrenic patient in the community and his effect on the household. The International Journal of Social Psychiatry, 12(3), 165–176. https://doi.org/10.1177/0020764066012003
12.
HowesM. L.EllisonD. (2022). Understanding the occupational identity of caregivers for people with mental health problems. British Journal of Occupational Therapy, 85(4), 274–282. https://doi.org/10.1177/03080226211018153
13.
KamilS. H.VelliganD. I. (2019). Caregivers of individuals with schizophrenia: Who are they and what are their challenges?Current Opinion in Psychiatry, 32(3), 157–163.
14.
KarambelasG. J.FiliaK.ByrneL. K.AllottK. A.JayasingheA.CottonS. (2022). A systematic review comparing caregiver burden and psychological functioning in caregivers of individuals with schizophrenia spectrum disorders and bipolar disorders. Journal of BMC Psychiatry, 22(1), Article 422. https://doi.org/10.1186/s12888-022-04069-w
15.
LiJ.SongY. (2019). Formal and informal care. In GuD.DupreM. (Eds.), Encyclopedia of gerontology and population aging. Cham: Springer, pp. 1671–1678. https://doi.org/10.1007/978-3-319-69892-2_847-1
16.
LiuN.ZhangJ. (2020). Experiences of caregivers of family member with schizophrenia in China: A qualitative study. Perspectives in Psychiatric Care, 56(1), 201–212.
17.
LudwigF. M.HattjarB.RussellR. L.WinstonK. (2007). How caregiving for grandchildren affects grandmothers’ meaningful occupations. Journal of Occupational Science, 14(1), 40–51.
18.
MatuskaK.BassJ.SchmittJ. S. (2013). Life balance and perceived stress: Predictors and demographic profile. OTJR: Occupation, Participation and Health, 33(3), 146–158.
19.
MicklewrightK.FarquharM. (2023). Occupational therapy interventions for adult informal carers and implications for intervention design, delivery and evaluation: A systematic review. British Journal of Occupational Therapy, 86(2), 90–100.
20.
MorganW. J. (2010). What, exactly, is occupational satisfaction?Journal of Occupational Science, 17(4), 216–223.
21.
ÖzY. C.DuranS.İncedereA. (2022). Requirements of caregivers of patients with schizophrenia: A qualitative study in Turkey. Archives of Psychiatric Nursing, 41, 81–86. https://doi.org/10.1016/j.apnu.2022.07.023
22.
OzluA.YildizM.AkerT. A. (2009). A reliability and validity study on the Zarit caregiver burden scale. Archives of Neuropsychiatry, 46, 38–42.
23.
PekçetinS.GünalA. (2021). Effect of web-based time-use intervention on occupational balance during the COVID-19 pandemic. Canadian Journal of Occupational Therapy, 88(1), 83–90.
24.
PinquartM.SörensenS. (2007). Correlates of physical health of informal caregivers: A meta-analysis. The Journals of Gerontology, Series B Psychological Sciences and Social Sciences, 62(2), 126–137. https://doi.org/10.1093/geronb/62.2.P126
25.
RahmaniF.RoshangarF.GholizadehL.AsghariE. (2022). Caregiver burden and the associated factors in the family caregivers of patients with schizophrenia. Journal of Nursing Open, 9(4), 1995–2002. https://doi.org/10.1002/nop2.1205
26.
RanM.-S.ChuiC. H.WongI. Y.-L.MaoW.-J.LinF.-R.LiuB.ChanC. (2016). Family caregivers and outcome of people with schizophrenia in rural China: 14-year follow-up study. Social Psychiatry and Psychiatric Epidemiology, 51, 513–520. https://doi.org/10.1007/s00127-015-1169-0
27.
RatC.Meunier-BeillardN.MoulardS.DenisF. (2022). Caregiver representations of therapeutic patient education programmes for people with schizophrenia: A qualitative study. Healthcare, 10(9), Article 1644. https://doi.org/10.3390/healthcare10091644
28.
RibéJ. M.SalameroM.Pérez-TestorC.MercadalJ.AguileraC.ClerisM. (2018). Quality of life in family caregivers of schizophrenia patients in Spain: Caregiver characteristics, caregiving burden, family functioning, and social and professional support. The International Journal Psychiatry in Clinical Practice, 22(1), 25–33. https://doi.org/10.1080/13651501.2017.1360500
29.
RöschelA.WagnerC.DürM. (2022). Associations between occupational balance, subjective health, and well-being of informal caregivers of older persons based on a cross-sectional study. BMC Psychiatry, 22(1), 1–9. https://doi.org/10.1186/s12877-022-03124-1
30.
SalarS.PekçetinS.GünalA.AkelB. S. (2022). Time-use, occupational balance, and temporal life satisfaction of university students in Turkey during isolation period of COVID-19. Journal of Occupational Science, 29(3), 284–294. https://doi.org/10.1080/14427591.2022.2031260
31.
SwainS. P.BehuraS. S.DashM. K. (2017). A comparative study of family burden and quality of life between caregivers of schizophrenia and dementia patients. International Journal of Community Medicine and Public Health, 4(6), 2021–2026. https://doi.org/10.18203/2394-6040.ijcmph20172169
32.
TamiziZ.Fallahi-KhoshknabM.DalvandiA.Mohammadi-ShahboulaghiF.MohammadiE.BakhshiE. (2020). Caregiving burden in family caregivers of patients with schizophrenia: A qualitative study. Journal of Education and Health Promotion, 9, 12. https://doi.org/10.4103/jehp.jehp_356_19
33.
ThakurV.NagarajanP.RajkumarR. P. (2022). Coping and burden among caregivers of patients with major mental illness. Indian Journal of Social Psychiatry, 38(1), 63–68. https://doi.org/10.4103/ijsp.ijsp_160_20
34.
TungpunkomP.NapaW.ChaniangS.SrikhachinP. (2013). Caregiving experiences of families living with persons with schizophrenia: A systematic review. JBI Database of Systematic Reviews and Implementation Reports, 11(8), 415–564. https://doi.org/10.11124/jbisrir-2013-881
35.
WagmanP.HåkanssonC.BjörklundA. (2012). Occupational balance as used in occupational therapy: A concept analysis. Scandinavian Journal of Occupational Therapy, 19(4), 322–327. https://doi.org/10.3109/11038128.2011.596219
36.
WhiteC.UnruhA. (2013). Unheard voices: Mothers of adult children with schizophrenia speak up. Canadian Journal of Community Mental Health, 32(3), 109–120.
ZaritS. H.ReeverK. E.Bach-PetersonJ. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. Journal of the Gerontologist, 20(6), 649–655. https://doi.org/10.1093/geront/20.6.649
39.
ZwarL.KönigH.-H.HajekA. (2020). Psychosocial consequences of transitioning into informal caregiving in male and female caregivers: Findings from a population-based panel study. Social Science & Medicine, 264, Article 113281. https://doi.org/10.1016/j.socscimed.2020.113281
