This paper explores the applicability of Swanson's mid-range theory of caring to work with persons with dementing illness. The definition of caring and the caring process inductively derived by Swanson from research with samples of women in a perinatal context have relevance for both formal and informal caregivers of persons with dementia. The nature of severe dementia necessitates modifications in applying the theory. However, the well-being of this vulnerable population may be enhanced when practice and research are based on this rich conception of caring. This theory of caring provides structure to the sometimes amorphous characterization of an ethic of care and gives meaning and direction for work with persons affected by dementia.
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References
1.
1. Swanson KM: Empirical development of a middle range theory of caring. Nursing Research. 1991; 40: 161-166.
2.
2. Swanson KM: Nursing as informed caring for the well-being of others. Image: Journal of Nursing Scholarship. 1993; 25: 352-357.
3.
3. Lawton MP: Environment and aging. 2nd Ed.Albany, New York: Center for the Study of Aging, 1985.
4.
4. Armstrong-Esther CA, Browne KD: The influence of elderly patients' mental impairment on nurse-patient interaction. Journal of Advanced Nursing. 1986; 11: 379-387.
5.
5. Athlin E, Norberg A, Asplund K: Caregiver's perceptions and interpretations of severely demented patients during feeding in a task assignment system. Scandinavian Journal of Caring Sciences. 1990; 4: 147-155.
6.
6. Sacks O: The leg. London Review of Books. 1982; 17: 3-5.
7.
7. Ekman SL, Norberg, A, Viitanen M, et al: Care of demented patients with severe communication problems. Scandinavian Journal of Caring Sciences. 1991; 5: 163-170.
8.
8. Pines A, Aronson E: Career burnout: Causes and cures. New York: Free Press, 1988.
9.
9. Whall A: Communicating with advanced-stage dementia patients: The application of Sullivanian theory. Journal of Gerontological Nursing. 1989; 15: 31-32.
10.
10. Gubrium J: Living and dying at Murray Manor. New York: St. Martin's Press, 1975.
11.
11. Gadow S: Nurse and patient: The caring relationship. In Bishop A, Skidder J Jr. (eds.), Caring, curing, coping. University of Alabama Press, 1985.
12.
12. Moody H: Ethics in an aging society. Baltimore: Johns Hopkins University Press, 1992.
13.
13. Noddings N: Caring: A feminine approach to ethics and moral education. Berkeley: University of California Press, 1984.
14.
14. Wilson HS: Family caregiving for a relative with Alzheimer's disease. Archives of Psychiatric Nursing. 1989; 1: 399-406.
15.
15. Ryden MB: Rx: Informed caring. Presentation at Conference on Utilizing Research in the Care of the Older Adult. St. Cloud, Minnesota, 1992.
16.
16. Barnes H: Unpublished presentation to the graduate seminar. University of Colorado Health Sciences Center. Denver, 1985.
17.
17. Gadow S: Clinical subjectivity. Advocacy with silent patients. Nursing Clinics of North America. 1989; 24: 535-541.
18.
18. Bartol, MA: Nonverbal communication in patients with Alzheimer's Disease. Journal of Gerontological Nursing. 5: 21-31.
20. Ryden MB, Feldt K, Brand K, et al: Reducing aggression with dementia education. Unpublished manuscript, Minneapolis, 1997.
21.
21. Astrom S, Nilsson M, Norberg A, et al: Empathy, experience of burnout and attitudes towards demented patients among nursing staff in geriatric care. Journal of Advanced Nursing. 1990; 15: 1236-1244.
22.
22. Baltes MM: The etiology and maintenance of dependency in the elderly: Three phases of operant research. Behavior Therapy. 1988; 19: 301-319.
23.
23. Henderson, V: Principles and practice of nursing. 6th Ed.New York: Macmillan, 1978.
25. Carse A, Nelson H: Rehabilitating care. Kennedy Institute of Ethics Journal. 1996; 6: 19-35.
26.
26. Houston B: Prolegomena to future caring. In MM Brabeck (Ed.), pp. 84-100. Who cares: Theory, research, and educational implications of care. New York: Praeger, 1989.
27.
27. Gilligan C: In a different voice. Cambridge: Harvard University Press, 1982.
28.
28. Akerlund BM, Norberg A: Powerlessness in terminal care of demented patients: An exploratory study. Omega. 1990; 21: 15-19.
