There is a predictable decline in functioning among individuals with progressive dementias. In addition, independent of the disease process, there can be “excess disabilities” due to incompatible components of the social and physical environment. We review the nature and sources of these excess disabilities and examine the literature on ameliorative interventions in special care units.
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References
1.
1. Office of Technology Assessment: Losing a million minds: Confronting the tragedy of Alzheimer's disease and other dementias (OTABA-324); April 1987
2.
2. Ohta RJ, Ohta BM: Specialized units for Alzheimer's disease patients: A critical look. The Gerontologist, 1988;28:803-808
3.
3. Benson DM, Cameron D, Humbach E, Servino L, Gambert SR: Establishment and impact of a dementia unit within the nursing home. J Am Geriatr Soc, April 1987;35(4):319-323
4.
4. Cleary TA, Clamon C, Price M, Shullaw G: A reduced stimulation unit: Effects of patients with Alzheimer's disease and related disorders. The Gerontologist, 1988;28:511-514
5.
5. Greene JA, Asp J, Crane N: Specialized management of the Alzheimer's disease patient: Does it make a difference?A preliminary progress report J Tennessee Med Assoc, 1985;78:559-563
6.
6. Grossman HD, Weiner AS, Salamon MJ, Burros N: The milieu standard for care of dementia in a nursing home. J Gerontological Social Work, Winter, 1985-1986;9(2):73-89
7.
7. Mace NL: The management of problem behaviors. In Mace NL (ed.): Dementia care: Patient, family, and community. Baltimore, Johns Hopkins University Press, 1990
8.
8. Mace NL: Principles of activity therapy for people with dementia. In Sloane PD, Mathew LJ (eds.): Dementia units in long-term care. Baltimore, Johns Hopkins University Press, 1991:201-213
9.
9. Mathew LJ, Sloane PD: Common problems in developing, implementing, and maintaining a dementia unit. In Sloane PD, Mathew LJ (eds.): Dementia units in long-term care. Baltimore, Johns Hopkins University Press, 1991:156-160
10.
10. Peppard NR: Special nursing home units for residents with primary degenerative dementia: Alzheimer's disease. J Gerontological Social Work, Winter1985-1986;9(2):5-13
11.
11. Hall G, Kirschling MV, Todd S: Sheltered freedom: An Alzheimer's unit in an ICF. Geriatric Nursing, 1986;7(3):132-137
12.
12. Mathew L, Sloane P, Kilby M, Flood R: What's different about a special care unit for dementia patients? A comparative study. Am J Alz Care Rel Disorders & Research, March/April 1988:16-23
13.
13. Kahn, 1965; cited in Rapp SR, Mayo LL, Cole P, Shires CL, Williams R, Fowler CD, Steen C: Interdisciplinary behavioral geriatrics in long-term care: A controlled case study. Clinical Gerontologist, 1988;8(2):35-42
14.
14. Mace NL: Principles of activities for persons with dementia. Physical and Occupational Therapy in Geriatrics, 1987;5(3):13-27
15.
15. Wang GS: Dementia in old age. In Wells CE (ed.): Dementia (2nd ed., pp. 15-26). Philadelphia, FA Davis, 1977
16.
16. Hiatt LG: Environmental design and mentally impaired older people. In Altman HJ (ed.): Alzheimer's disease: Problems, prospects, and perspectives. New York, Plenum Press, 1987:309-320
17.
17. Brody EM, Kleban MH, Lawton MP, Silverman HA: Excess disabilities of mentally impaired aged: Impact of individualized treatment. The Gerontologist, 1971;11:124-133
18.
18. Reifler BV, Larson E: Excess disability in dementia of the Alzheimer's type. In Light E, Lebowitz BD (eds.): Alzheimer's disease treatment and family stress: Directions for research. Washington, DC, National Institute of Mental Health, 1989:363-382
19.
19. Shomaker D: Problematic behavior and the Alzheimer's patient: Retrospection as a method of understanding and counseling. The Gerontologist, 1987;27:370-375
20.
20. Volicer L, Herz LR: Pharmacologic management of Alzheimer-type dementia. Am Family Phys, 1985;32:123-128
21.
21. Feil N: Communicating with the confused elderly patient. Geriatrics, 1984;39:131-132
23. Riley KP: Psychological interventions in Alzheimer's disease. In Gilmore GC, Whitehouse PJ, Wykle ML (eds.): Memory, aging, and dementia: Theory, assessment and treatment. New York, Springer, 1989:199-211
24.
24. Teri L, Gallegher-Thompson D: Cognitivebehavioral interventions for treatment of depression in Alzheimer's patients. Am Psychologist, 1991;31:413-416
25.
25. Thompson LW, Wagner B, Zeiss A, Gallegher D: Cognitive/behavioral therapy with early stage Alzheimer's patients: An exploratory view of the utility of this approach. In Light E, Lebowitz BD (eds.): Alzheimer's disease treatment and family stress: Directions for research. Washington, DC, National Institute of Mental Health, 1989:383-397
26.
26. Coons DH: A model of residential living. In Coons DH (ed.): Specialized dementia care units. Baltimore, Johns Hopkins University Press, 1991:36-54
27.
27. Calkins MP: Designing special care units: A systematic approach. Am J Alz Care Research, March/April 1987:16-22
28.
28. Zgola JM: Doing things: A guide to programming activities for persons with Alzheimer's disease and related disorders. Baltimore, Johns Hopkins University Press, 1987
29.
29. Coons DH: The therapeutic milieu: Concepts and criteria. In Coons DH (ed.): Specialized dementia care units. Baltimore, Johns Hopkins University Press, 1991:7-24
30.
30. Coons DH: Overcoming problems in modifying the environment. In Altman HJ (ed.): Alzheimer's disease: Problems, prospects, and perspectives. New York, Plenum Press, 1987:321-328
31.
31. Lawton MP: Environmental approaches to research and treatment of Alzheimer's disease. In Light E, Lebowitz BD (eds.): Alzheimer's disease treatment and family stress: Directions for research. Washington, DC, National Institute of Mental Health, 1989:340-362
32.
32. Damon J, May R: The effects of pet facilitative therapy on patients and staff in an adult day care center. Activities, adaptation, and aging, 1986;8(3-4): 117-131
33.
33. Gwyther LP: Care of Alzheimer's patients: A manual for nursing home staff. American Health Care Association and Alzheimer's Disease and Related Disorders, 1985
34.
34. Calkins MP, Arch M: Design for dementia: Planning environments for the elderly and the confised. Owings Mills, MD, National Health, 1988
35.
35. Pynoos J, Stacey CA: Specialized facilities for senile dementia patients. In Gilhooly MLM, Zarit SH, Birren JE (eds.): The dementias: Policy and management. Englewood Cliffs, NJ, Prentice-Hall, 1986:111-130
36.
36. Dawson P, Kline K, Wiancko DC, Wells D: Preventing excess disability in patients with Alzheimer's disease. Geriatric Nursing, 1986;7(6):298-301
37.
37. Rapp SR, Mayo LL, Cole P, Shires CL, Williams R, Fowler CD, Steen C: Interdisciplinary behavioral geriatrics in long-term care: A controlled case study. Clin Gerontologist, 1988;8(2):35-42
38.
38. Weisman GD, Cohen U, Ray K, Day K: Architectural planning and design for dementia care units. In Coons DH (ed.): Specialized dementia care units. Baltimore, Johns Hopkins University Press, 1991:83-106
39.
39. Stevens PS: Design for dementia: Recreating the loving family. Am J Alz Care Research, January/February 1987:16-22
40.
40. Martichuski DK, Bell PA: Including small group activities in large special care units. Paper presented at the meeting of the American Psychological Association, Toronto, Canada, August 1993
41.
41. Lindeman DA, Corby NH, Downing R, Sanborn B: Alzheimer's day care: Abasic guide. New York, Hemisphere, 1991
42.
42. Omnibus Budget Reconciliation Act: Public Law 100-203. Superintendent of Documents. Washington, DC, US Govt Printing Office, 1987
43.
43. Cook, 1984; cited in Carey B, Hansen SS: Social work groups with institutionalized Alzheimer's disease victims. J Gerontological Social Work, 1986;9(2):15-25
44.
44. Green L: Humor and lighthearted activities. In Coons DH (ed.): Specialized dementia care units. Baltimore, Johns Hopkins University Press, 1991:175-188
45.
45. Schwab M, Rader J, Doan J: Relieving the anxiety and fear in dementia. J Gerontological Nursing, 1985;11:8-15
46.
46. Carstensen LL, Erickson RJ: Enhancing the social environments of elderly nursing home residents: Are high rates of interaction enough?J Applied Behavior Analysis, 1986; 19:349-355
47.
47. Carey B, Hansen SS: Social work groups with institutionalized Alzheimer's disease victims. J Gerontological Social Work, 1986;9(2): 15-25
48.
48. Linden, 1953; cited in Carey B, Hansen SS: Social work groups with institutionalized Alzheimer's disease victims. J Gerontological Social Work, 1986;9(2):15-25
49.
49. Gerber GJ, Prince PN, Snider HG, Atchison K, Dubois L, Kilgour JA: Group activity and cognitive impairment among patients with Alzheimer's disease. Hospital and Community Psychiatry, 1991;42:843-845
50.
50. Helgeson EM, Willis SC: Handbook of group activities for impaired older adults. Activities, Adaptation, and Aging, 1986;9(2):1-107
51.
51. Coons DH: Activities and staff approaches: The impact on behaviors. In Coons DH (ed.): Specialized dementia care units. Baltimore, Johns Hopkins University Press, 1991:161-174
52.
52. Boling K, Gwyther LP: Defining the quality of care for nursing home residents with dementia. In Sloane PD, Mathew LJ (eds.): Dementia units in long-term care. Baltimore, Johns Hopkins University Press, 1991:3-22
53.
53. Lichtenberg PA: Reducing excess disabilities in geropsychiatric inpatients: A focus on behavioral problems. Clinical Gerontologist, 1990;9(3-4):65-76