A large proportion of persons needing long term care services at home or in institutions are cognitively impaired, including a majority of severely functionally impaired elderly. The estimate arrived at for this paper is that over six million Americans are cognitively impaired enough to negatively affect their functioning including over four million with Alzheimer's disease and other dementias. Thus, it is essential that long term care legislation and programs be designed to assure appropriate services for the cognitively impaired.
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References
1.
1. Valle R: Personal Communication. Professor, School of Social Work, San Diego State University and principle, Alzheimer's Cross Cultural Research and Development 6505 Alvarado Ct. Suite 112, San Diego, CA 92120
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2. To place the Pennsylvania program experience in context, we note here the findings of the Lawton P, Brody E et al study of Alzheimer caregiver respite use in their subsidized program: 'The experimental subjects availed themselves of experimental respite services as follows: 42 percent used in-home services, only 3 percent used our day care services, and 14 percent used our nursing-home respite. Note, however, that an additional 18 percent used in-home respite, an additional 35 percent used day care, and about 1 percent used institutional respite that was not associated with our experimental program. Putting the two estimates together, we have about 60 percent using respite (some using more than one type of service). Lawton, Powell M, Brody E, Saperstein A: Respite care for Alzheimer's families: Research findings and their relevance to providers. Am J of Alz Care & Rel Disorders & Res, Nov/Dec 1989:33
3.
3. Human Organization Science Institute, Family Caregiver Support Program: Final evaluation report, Vol. 1 narrative. Harrisburg, PA, PA Dept of Aging. pp. 2S-4S, 10-S-10-S. February 1991
4.
4. Evans DA. et. al: Prevalence of Alzheimer's disease in a community population of older persons. JAMANovember 10, 1989;262(18): 2551-2556.
5.
5. U.S. Office of Technology Assessment: Losing a million minds: Confronting the tragedy of Alzheimer's disease and other dementias, 1987
6.
6. Mace N: Programs and services which specialize in the care of persons with dementing illnesses issues and options, The Am J of Alz Care & Research & Rel Disorders, May/June 1987:10-16.
7.
7. Alzheimer's Association: Directory of State Legislation and Programs, April, 1989 and Alzheimer's Association 1990 Alzheimer's Association: Directory of State Alzheimer's Programs and Legislation. March 1990. Gwyther L: Draft chapter for the U.S. Dept. of Health and Human Servs second report of the Advisory Panel on Alzheimer's disease, January 1990. The second report was published in December 1990/ January 1991
8.
8. Alzheimer's Association: 1990 Alzheimer's Association Directory of State Alzheimer Programs and Legislation, March 1990 and Alzheimer's Association: Directory of State Legislation and Programs, March 1989
9.
9. U.S. Dept of Health and Human Servs: Report of the Advisory Panel on Alzheimer's Disease, March 1989
10.
10. Lawton, Powell M, Brody E, Saperstein A: Respite care for Alzheimer's families: Research Findings and their relevance to providers. Am J of Alz Care & Rel Dis & Res, Nov/Dec 1989: 31-31.
11.
11. Mace N: (Ed.) Dementia care: Patient, family and community. The Johns Hopkins University Press, Baltimore, 1990. See especially Mace N: The management of problem behaviors; Zgola JM: Therapeutic activity; Hiatt LG: Design of the home environment for the cognitively impaired person; Coons DH: Residential care for persons with dementia; Petty DM: Respite care: a flexible response to service fragmentation
12.
12. Gwyther L: Speech at the November 1989 meeting of the Gerontological Society of America.
13.
13. Contact author at 101 Commonwealth Ave., Concord, MA 01742, or 508/369-3357