Have You Heard of Developmental Language Disorder? An Online Survey

Abstract

Developmental language disorder (DLD) is a common neurodevelopmental disorder. It had been suggested that public awareness is low for DLD, especially in comparison with autism spectrum disorder (ASD), attention-deficit/hyperactivity disorder (ADHD), and dyslexia. This study investigated awareness of DLD, ASD, ADHD, and dyslexia, as well as specific language impairment (SLI) in Australia. An online survey about awareness and knowledge of DLD, SLI, ASD, ADHD, and dyslexia was completed by 272 people in Australia. People had low awareness of DLD (19.9%) compared with ASD (97.4%), ADHD (97.7%), and dyslexia (98.5%). The former label for the disorder, SLI, had an even lower level of awareness (9.4%). People have heard about DLD from a wide range of sources and were likely to have incorrect knowledge about DLD as well as believing ASD or ADHD to be the most prevalent disorders. Awareness and knowledge of DLD appear to be low. More targeted approaches to increasing public awareness of DLD are needed.

Keywords

attention deficit/hyperactivity disorder autism spectrum disorder developmental language disorder dyslexia public awareness survey

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References

Ahmed

Bath

P. A.

Sbaffi

Demartini

(2018). Measuring the effect of public health campaigns on Twitter: The case of World Autism Awareness Day. In Chowdhury

McLeod

Gillet

Willett

(Eds.), Lecture notes in computer science: Vol. 10766. Transforming digital worlds: iConference 2018 (pp. 10–16). Springer.

Alsehemi

M. A.

Abousaadah

M. M.

Sairafi

R. A.

Jan

M. M.

(2017). Public awareness of autism spectrum disorder. Neurosciences (Riyadh), 22(3), 213–215. https://doi.org/10.17712/nsj.2017.3.20160525

Anker

A. E.

Feeley

T. H.

McCracken

Lagoe

C. A.

(2016). Measuring the effectiveness of mass-mediated health campaigns through meta-analysis. Journal of Health Communication, 21(4), 439–456. https://doi.org/10.1080/10810730.2015.1095820

Australian Bureau of Statistics. (2018). Census of population and housing: Socio-Economic Indexes for Areas (SEIFA), Australia, 2016. https://www.abs.gov.au/ausstats/abs@.nsf/Lookup/by%20Subject/2033.0.55.001~2016~Main%20Features~SEIFA%20Measures~14

Bishop

D. V. M.

(2010). Which neurodevelopmental disorders get researched and why? PLOS ONE, 5(11), Article e15112. https://doi.org/10.1371/journal.pone.0015112

Bishop

D. V. M.

Snowling

M. J.

Thompson

P. A.

Greenhalgh

, & The CATALISE-2 Consortium. (2017). Phase 2 of CATALISE: A multinational and multidisciplinary Delphi consensus study of problems with language development: Terminology. The Journal of Child Psychology and Psychiatry, 58(10), 1068–1080. https://doi.org/10.1111/jcpp.12721

Broczkowski

P. J.

Mitchelstein

Matassi

(2018). “News comes across when I’m in a moment of leisure”: Understanding the practices of incidental news consumption on social media. New Media & Society, 20(10), 3523–3539. https://doi.org/10.1177/1461444817750396

Code

Papathanasiou

Rubio-Bruno

de la Paz Cabana

Villanueva

M. M.

Haaland-Johnsen

. . .Robert

(2016). International patterns of the public awareness of aphasia. International Journal of Language & Communication Disorders, 51(3), 276–284. https://doi.org/10.1111/1460-6984.12204

Code

Simmons Mackie

Armstrong

Stiegler

Armstrong

Bushby

. . .Webber

(2001). The public awareness of aphasia: An international survey. International Journal of Language & Communication Disorders, 36(S1), 1–6. https://doi.org/10.3109/13682820109177849

10.

Conti-Ramsden

Botting

(2008). Emotional health in adolescents with and without a history of specific language impairment (SLI). The Journal of Child Psychology and Psychiatry, 49(5), 516–525. https://doi.org/10.1111/j.1469-7610.2007.01858.x

11.

Dean

Nordahl-Hansen

(2021). A review of research studying film and television representations of ASD. Review Journal of Autism and Developmental Disorders. Advance online publication. https://doi.org/10.1007/s40489-021-00273-8

12.

de Lemos

Kranios

Beauchamp-Whitworth

Chandwani

Gilbert

Holmes

Botting

. (2022). Awareness of developmental language disorder amongst workplace managers. Journal of Communication Disorders, 95, Article 106165. https://doi.org/10.1016/j.jcomdis.2021.106165

13.

Del Tufo

S. N.

Earle

F. S

. (2020). Skill profiles of college students with a history of developmental language disorder and developmental dyslexia. Journal of Learning Disabilities, 53(3), 228–240. https://doi.org/10.1177/0022219420904348

14.

Dillenburger

Jordan

J. A.

McKerr

Devine

Keenan

(2013). Awareness and knowledge of autism and autism interventions: A general population survey. Research in Autism Spectrum Disorders, 7(12), 1558–1567. https://doi.org/10.1016/j.rasd.2013.09.004

15.

Dubois

St-Pierre

M.-C.

Desmarais

Guay

(2020). Young adults with developmental language disorder: A systematic review of education, employment, and independent living outcomes. Journal of Speech, Language, and Hearing Research, 63(11), 3786–3800. https://doi.org/10.1044/2020_JSLHR-20-00127

16.

Dumesnil

Verger

(2009). Public awareness campaigns about depression and suicide: A review. Psychiatric Services, 60(9), 1203–1213. https://doi.org/10.1176/ps.2009.60.9.1203

17.

Duranović

Georgieva

Lenček

Novović

Kačka

(2018). Public awareness of dyslexia in Balkan countries. Foreign Language Teaching, 45(5), 471–484. https://www.elibrary.ru/item.asp?id=38072613

18.

Eysenbach

Wyatt

(2002). Using the internet for surveys and health research. Journal of Medical Internet Research, 4(2), Article e13. https://doi.org/10.2196/jmir.4.2.e13

19.

Gallucci

(2019). GAMLj: General analyses for linear models (Version jamovi module). https://gamlj.github.io/

20.

Hampshire

(2018). The most common childhood difficulty you’ve never heard of. https://www.qegateshead.nhs.uk/DLD#:~:text=Developmental%20Language%20Disorder%20(DLD)%20is,2%20children%20in%20every%20classroom

21.

Hobson

H. M.

Bird

(2019, March 10–11). High rates of language impairment in vulnerable populations: The case for improving cross-sector awareness of developmental language disorder [Paper presentation]. 4th International Conference on Educational Neuroscience, Abu Dhabi, United Arab Emirates.

22.

Hogue

M.-C. B.

Doran

Henry

D. A.

(2012). A prompt to the web: The media and health information seeking behaviour. PLOS ONE, 7(4), Article e34314. https://doi.org/10.1371/journal.pone.0034314

23.

Horton-Salway

(2011). Repertoires of ADHD in UK newspaper media. Health: An Interdisciplinary Journal for the Society Study of Health, Illness and Medicine, 15(5), 533–549. https://doi.org/10.1177/1363459310389626

24.

Horton-Salway

Davies

(2018). The discourse of ADHD: Perspectives on attention deficit hyperactivity disorder. Palgrave Macmillan.

25.

The jamovi Project. (2021). jamovi (Version Version 1.8). https://www.jamovi.org

26.

Jones

S. C.

Harwood

(2009). Representations of autism in Australian print media. Disability & Society, 24(1), 5–18. https://doi.org/10.1080/09687590802535345

27.

Keppel

Bilheimer

Gurley

(2007). Improving population health and reducing health care disparities. Health Affairs, 26(5), 1281–1292. https://doi.org/10.1377/hlthaff.26.5.1281

28.

Kirby

(2019). Gift from the gods? Dyslexia, popular culture and the ethics of representation. Disability & Society, 34(9–10), 1573–1594. https://doi.org/10.1080/09687599.2019.1584091

29.

Kovač

(2019). Dyslexia awareness in Croatia. University of Zagreb.

30.

Law

Boyle

Harris

Harkness

Nye

(2000). Prevalence and natural history of primary speech and language delay: Findings from a systematic review of the literature. International Journal of Language & Communication Disorders, 35(2), 165–188. https://doi.org/10.1080/136828200247133

31.

Lyons

(2017, February). SPA adopts terminology for language disorder and DLD. Speak Out. https://speechpathologyaustralia.cld.bz/Speak-Out-Feb-2017/6

32.

McCann

Tunnicliffe

Anderson

(2012). Public awareness of aphasia in New Zealand. Aphasiology, 27(5), 568–580. https://doi.org/10.1080/02687038.2012.740553

33.

McGregor

K. K.

(2020). How we fail children with developmental language disorder. Language, Speech & Hearing Services in Schools, 51(4), 981–992. https://doi.org/10.1044/2020_LSHSS-20-00003

34.

McLeod

J. D.

Fettes

D. L.

Jensen

P. S.

Pescosolido

B. A.

Martin

J. K.

(2007). Public knowledge, beliefs, and treatment preferences concerning attention deficit hyperactivity disorder. Psychiatric Services, 58(5), 626–631. https://doi.org/10.1176/appi.ps.58.5.626

35.

Norbury

C. F.

(2017, September 22). Developmental language disorder: The most common childhood condition you’ve never heard of. The Guardian. https://www.theguardian.com/science/head-quarters/2017/sep/22/developmental-language-disorder-the-most-common-childhood-condition-youve-never-heard-of

36.

Norbury

C. F.

Gooch

Wray

Baird

Charman

Smionoff

. . .Pickles

(2016). The impact of nonverbal ability on prevalence and clinical presentation of language disorder: Evidence from a population study. The Journal of Child Psychology and Psychiatry, 57(11), 1248–1257. https://doi.org/10.1111/jcpp.12573

37.

Pesonen

Itkonen

Saha

Nordahl-Hansen

(2021). Framing autism in newspaper media: An example from Finland. Advances in Autism, 7(2), 167–177. https://doi.org/10.1108/AIA-01-2020-0003

38.

Prochnow

(2014). An analysis of autism through media representation. ETC: A Review of General Semantics, 71, 133–149. http://www.jstor.org/stable/24761922

39.

R Core Team. (2021). R: A language and environment for statistical computing (Version 4.0). https://cran.r-project.org

40.

Reilly

Tomblin

J. B.

Law

McKean

Mensah

F. K.

Morgan

. . .Wake

(2014). Specific language impairment: A convenient label for whom? International Journal of Language and Communication Disorders, 49(4), 416–434. https://doi.org/10.1111/1460-6984.12102

41.

Simmons Mackie

Code

Armstrong

Stiegler

Elman

R. J

. (2002). What is aphasia? Results of an international survey. Aphasiology, 16(8), 837–848. https://doi.org/10.1080/02687030244000185

42.

Thordardottir

Topbaş

, & Working Group 3 of COST Action IS1406. (2021). How aware is the public of existence, characteristics and causes of language impairment in childhood and where they have heard about it? A European survey. Journal of Communication Disorders, 89, Article 106057. https://doi.org/10.1016/j.jcomdis.2020.106057

43.

Yew

S. G. K.

O’Kearney

(2013). Emotional and behavioural outcomes later in childhood and adolescence for children with specific language impairments: Meta-analyses of controlled prospective studies. The Journal of Child Psychology and Psychiatry, 54(5), 516–524. https://doi.org/10.1111/jcpp.12009

44.

Young

A. R.

Beitchman

J. H.

Johnson

Douglas

Atkinson

Escobar

Wilson

(2002). Young adult academic outcomes in a longitudinal sample of early identified language impaired and control children. The Journal of Child Psychology and Psychiatry, 43(5), 635–645. https://doi.org/10.1111/1469-7610.00052

45.

Zhao

Zhang

(2017). Consumer health information seeking in social media: A literature review. Health Information and Libraries Journal, 34(4), 268–283. https://doi.org/10.1111/hir.12192

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