This study tested the feasibility of collecting saliva samples from Pacific Islanders (PIs) via a community-based participatory research approach. Collection of saliva samples were conducted by trained and trusted PI community leaders at various partner sites. A total of 214 saliva samples were donated by PIs living in Southern California, more than half of whom were females between the ages of 18 and 35 years. Donors indicated that they donated because they wanted to help science and their community. A majority of donors reported a very positive experience with the donation process and were willing to donate saliva and hair samples in the future. The positive findings of this article highlight the importance of community input and participation.
ChlebowskiR. T.ChenZ.AndersonG. L.RohanT.AragakiA.LaneD.. . . PrenticeR. (2005). Ethnicity and breast cancer: Factors influencing differences in incidence and outcome. Journal of the National Cancer Institute, 97, 439-448.
2.
Corbie-SmithG.ThomasS. B.WilliamsM. V.Moody-AyersS. (1999). Attitudes and beliefs of African Americans toward participation in medical research. Journal of General Internal Medicine, 14, 537-546.
3.
DangJ. H.RodriguezE. M.LuqueJ. S.ErwinD. O.MeadeC. D.ChenM. S.Jr. (2014). Engaging diverse populations about biospecimen donation for cancer research. Journal of Community Genetics, 5, 313-327.
4.
DashC.WallingtonS. F.MuthraS.DodsonE.MandelblattJ.Adams-CampbellL. L. (2014). Disparities in knowledge and willingness to donate research biospecimens: A mixed-methods study in an underserved urban community. Journal of Community Genetics, 5, 329-336.
5.
ErwinD. O.MoysichK.KiviniemiM. T.Saad-HarfoucheF. G.DavisW.Clark-HargraveN.. . . WalkerC. (2013). Community-based partnership to identify keys to biospecimen research participation. Journal of Cancer Education, 28, 43-51.
6.
FryeV.CaltabianoM.KesslerD. A.SchafflerH.RebozaM.HillyerC. D.ShazB. H. (2014). Evaluating a program to increase blood donation among racial and ethnic minority communities in New York City. Transfusion, 54, 3061-3067.
7.
GaoW.MaG. X.TanY.FangC.WeaverJ.JinM.LaiP. (2014). Factors associated with willingness to participate in biospecimen research among Chinese Americans. Biopreservation and Biobanking, 12, 131-138.
8.
GaoW.MaG. X.TanY.FangC.WeaverJ.JinM.. . . GodwinA. K. (2014). Culturally appropriate education intervention on biospecimen research participation among Chinese Americans. Cancer Epidemiology & Prevention Biomarkers, 23, 383-391.
9.
GogginsW. B.WongG. K. (2007). Poor survival for US Pacific Islander cancer patients: Evidence from the surveillance, epidemiology, and end results database: 1991 to 2004. Journal of Clinical Oncology, 25, 5738-5741.
10.
HagiwaraN.Berry-BobovskiL.FrancisC.RamseyL.ChapmanR. A.AlbrechtT. L. (2014). Unexpected findings in the exploration of African American underrepresentation in biospecimen collection and biobanks. Journal of Cancer Education, 29, 580-587.
11.
HaringR. C.HenryW. A.HudsonM.RodriguezE. M.TaualiiM. (2018). Views on clinical trial recruitment, biospecimen collection, and cancer research: Population science from landscapes of the Haudenosaunee (People of the Longhouse). Journal of Cancer Education, 33, 44-51.
12.
HendersonS. O.HaimanC. A.WilkensL. R.KolonelL. N.WanP.PikeM. C. (2007). Established risk factors account for most of the racial differences in cardiovascular disease mortality. PLoS One, 2, e377.
13.
HochbaumG.RosenstockI.KegelsS. (1952). Health belief model. Rockville, MD: U.S. Public Health Service.
14.
HughesS. E.BarnesR. O.WatsonP. H. (2010). Biospecimen use in cancer research over two decades. Biopreservation and Biobanking, 8, 89-97.
15.
JamesR. D.YuJ.-H.HenriksonN. B.BowenD. J.FullertonS. M. (2008). Strategies and stakeholders: Minority recruitment in cancer genetics research. Public Health Genomics, 11, 241-249.
16.
KiviniemiM. T.Saad-HarfoucheF. G.CiupakG. L.DavisW.MoysichK.HargraveN. C.. . . ErwinD. O. (2013). Pilot intervention outcomes of an educational program for biospecimen research participation. Journal of Cancer Education, 28, 52-59.
17.
KolonelL. N.AltshulerD.HendersonB. E. (2004). The multiethnic cohort study: Exploring genes, lifestyle and cancer risk. Nature Reviews Cancer, 4, 519-527.
18.
KwanP.BriandG.LeeC.LepuleJ.LlaveK.PangK.. . . PalmerP. (2015). Reservations to participate in biospecimen research among Pacific Islanders. California Journal of Health Promotion, 13, 27-33.
19.
KwanP.BriandG.LeeC.LepuleJ.LlaveK.PangK.. . . PalmerP. H. (2014). Use of a community-based participatory research approach to assess knowledge, attitudes, and beliefs on biospecimen research among Pacific Islanders. Health Promotion Practice, 15, 422-430.
20.
LoffredoC. A.LutaG.WallingtonS.MakgoengS. B.SelskyC.MandelblattJ. S., . . . Region 1 Bio-Specimen Management of Cancer Health Disparities Program. (2013). Knowledge and willingness to provide research biospecimens among foreign-born Latinos using safety-net clinics. Journal of Community Health, 38, 652-659.
21.
MaG.SealsB.TanY.LeeR.ToubbehJ. (2014). Using mixed methods to examine perceptions and willingness to participate in bio-specimen banking in diverse Asian Americans. Journal of Community Medicine & Health Education, 4, 283. doi:10.4172/2161-0711.1000283
RodriguezE.Saad-HarfoucheF. G.MillerA.MahoneyM. C.AmbrosoneC. B.MorrisonC. D.. . . ErwinD. O. (2016). Engaging diverse populations in biospecimen donation: Results from the Hoy y Mañana study. Journal of Community Genetics, 7, 271-277.
24.
SimonM. A.de la RivaE., E.BerganR.NorbeckC.McKoyJ. M.KuleszaP.. . . FleisherL. (2014). Improving diversity in cancer research trials: The story of the Cancer Disparities Research Network. Journal of Cancer Education, 29, 366-374.
25.
SubicaA. M.AgarwalN.SullivanJ. G.LinkB. G. (2017). Obesity and associated health disparities among understudied multiracial, Pacific Islander, and American Indian Adults. Obesity, 25, 2128-2136.
26.
*SutherS.KirosG.-E. (2009). Barriers to the use of genetic testing: A study of racial and ethnic disparities. Genetics in Medicine, 11, 655-662.
27.
TanN.CustodioH.LaBrecheA.FexC.Tui’one MayV.PangJ.. . . TanjasiriS. P. (2018). Biospecimen education among Pacific Islanders in Southern California. Journal of Cancer Education. Advance online publication. doi:10.1007/s13187-018-1352-6.
28.
ThompsonB.HébertJ. R. (2014). Involving disparate populations in clinical trials and biobanking protocols: Experiences from the Community Network Program Centers. Cancer Epidemiology & Prevention Biomarkers, 23, 370-373.
29.
TongE. K.FungL.-C.StewartS. L.PaternitiD. A.DangJ. H.ChenM. S. (2014). Impact of a biospecimen collection seminar on willingness to donate biospecimens among Chinese Americans: Results from a randomized, controlled community-based trial. Cancer Epidemiology & Prevention Biomarkers, 23, 392-401.
30.
TorreL. A.SauerA. M. G.ChenM. S.Kagawa-SingerM.JemalA.SiegelR. L. (2016). Cancer statistics for Asian Americans, Native Hawaiians, and Pacific Islanders, 2016: Converging incidence in males and females. CA: A Cancer Journal for Clinicians, 66, 182-202.
YanceyA. K.OrtegaA. N.KumanyikaS. K. (2006). Effective recruitment and retention of minority research participants. Annual Review of Public Health, 27, 1-28.
