Dementia caregiving in Chinese communities in high-income countries: Exploring unmet needs and experiences through a qualitative meta-synthesis

Abstract

Dementia presents significant global challenges, with care partners (family caregivers)—often family members—playing a central role in providing care and support, particularly in high-income countries. However, caregiving experiences are shaped by factors such as race, ethnicity, cultural values, and access to resources, necessitating inclusive research to better understand and address the diverse needs of care partners, particularly within ethnic minority groups like Chinese diaspora communities. We employed a meta-synthesis approach with several key steps, including defining the research question, evaluating primary studies, conducting meta-method and meta-theory analyses, and synthesizing findings. This study was framed within Arksey and O'Malley’s scoping review framework and adhered to PRISMA-ScR guidelines. Ten articles were included. Cultural perceptions of dementia in Chinese communities often view it as a natural part of aging, leading to delays in diagnosis and treatment, while caregiving decisions are influenced by filial piety, financial constraints, and cultural norms. Care partners face barriers such as stigma, lack of awareness, and limited access to culturally sensitive support, leading to emotional and physical strain, often worsened by isolation and the challenges of navigating healthcare systems. Addressing cultural stigma, improving awareness, and enhancing access to culturally appropriate support are crucial for improving dementia care for Chinese communities.