Couplehood as a compass: Spousal perspectives on the diminished everyday competence of partners

Abstract

Research on spousal relations and caregiving, when one of the persons in the dyad has a dementia diagnosis, has recognized that the degree of diminished everyday competence (DEC) the person with dementia is experiencing has implications for these relations and for how spousal caregiving is ultimately experienced. The present exploratory study uses an inductive approach to analyze data from 22 qualitative interviews with and observation notes on couples living with dementia to shed light on the ways in which the person without dementia views the DEC his/her partner is experiencing. The findings show that spouses can choose to disregard their partners’ DEC or to acknowledge it in either an egocentric or a couple-centered way; they also show that spouses’ choice of approach does not seem to be dictated by how cognitively impaired their partners have become. This suggests that spouses’ approach to partners’ DEC deserves more of our attention as it could have implications not only for transitions into spousal caregiving but also for caregiving experiences as such.