Dementia: Stigma,Language,and Dementia-friendly

Alzheimer’s Australia (2009). Dementia friendly language: position paper 4. Retrieved from http://www.fightdementia.org.au/dementia-friendly-language.aspx.

Alzheimer’s Australia (2014a). Dementia Advisory Committee. Retrieved from http://www.fightdementia.org.au/dementia-advisory-commitee.aspx (accessed 3 April 2014).

Alzheimer’s Australia (2014b). Dementia friendly communities presented by Rachael Litherland. http://www.fightdementia.org.au/south-australia/dementia-friendly-communities-presented-by-rachael-litherland-.aspx.

Alzheimer’s Australia (2014c). Key facts and statistics 2014: Australian statistics. Retrieved from http://www.fightdementia.org.au/western-australia/key-facts-and-statistics.aspx.

Alzheimer’s Australia (2014d). Setting the agenda for a dementia-friendly Australia. Retrieved from http://www.fightdementia.org.au/research-publications/setting-the-agenda-for-a-dementia-friendly-australia.aspx.

Alzheimer’s Australia (2012e). Stigma surrounding dementia today as widespread as ever. Retrieved from http://www.fightdementia.org.au/research-publications/stigma-surrounding-dementia-today-as-widespread-as-ever-ita-buttrose.aspx.

Alzheimer’s Disease International (2013). Dementia statistics. Retrieved from http://www.alz.co.uk/research/statistics.

Alzheimer’s Europe (2014). The European Dementia Working Group. Retrieved from http://www.alzheimer-europe.org/Alzheimer-Europe/Who-we-are/European-Working-Group-of-People-with-Dementia (accessed 3 April 2014).

Alzheimer’s Society Canada (2012) Person centred language. Retrieved from http://www.alzheimer.ca/en/About-dementia/For-health-care-professionals/culture-change-towards-person-centred-care/person-centred-language-guidelines.

Alzheimer’s Society of Ireland (2008). Media Guidelines to Dementia Language: Dementia Friendly Language. Retrieved from http://www.alzheimer.ie/about-us/news-and-media/media-guidelines-to-dementia-language.aspx.

Anon (2010). Body language is a powerful communication tool. Johannesburg: Independent Online (South Africa).

Bartlett R. (2014) The emergent modes of dementia activism. Ageing and Society 34: 623–644.

Batsch N. Mittelman M. Alzheimer’s Disease International (2012) World Alzheimer’s Report 2012: overcoming the stigma of dementia, London: Alzheimer’s Disease International, pp. 56, . Retrieved from http://www.alz.co.uk/research/WorldAlzheimerReport2012.pdf.

Benbow S. Jolley D. (2012) Dementia: stigma and its effects. Neurodegenerative Disease Management 2: 165–172.

Burgener S. Berger B. (2008) Measuring perceived stigma in persons with progressive neurological disease: Alzheimer's dementia and Parkinson's disease. Dementia 7: 31–53.

Buttrose, I. (2012). National press club speech: towards a world without dementia. Alzheimer’s Australia. Retrieved from http://www.fightdementia.org.au/research-publications/stigma-surrounding-dementia-today-as-widespread–as-ever-ita-buttrose.aspx.

Cayton, C. (2006) From childhood to childhood? Autonomy and dependence through the ages. In Hughes, J, S. Louw & S. Sabat (Eds.), Dementia: mind, meaning, and the person e-Kindle (p.4364). New York, NY: Oxford University Press, Inc.

Clasper, K. (2014) Time to raise awareness of dementia again, blog post. In Living well with Lewy body dementia, 20 April. Retrieved from http://ken-kenc2.blogspot.com.au/2014/04/time-to-raise-awareness-of-dementia.html.

Crampton, J., Dean, J., & Eley R. (2012). Creating a dementia-friendly York, Retrieved from http://www.jrf.org.uk/publications/creating-dementia-friendly-york-full(1).pdf.

Dean E. (2011a) Stigma and dementia care. Nursing Older People 23: 12.

Dean E. (2011b) Workloads and staff levels hamper dementia care. Nursing Older People 23: 6.

Devlin E. MacAskill S. Stead M. (2007) ‘We're still the same people’: developing a mass media campaign to raise awareness and challenge the stigma of dementia. International Journal of Nonprofit and Voluntary Sector Marketing 12: 47–58.

DPS News (2014). The C-word for aged care. Retrieved from http://www.agedcareguide.com.au/news/2014/03/12/the-c-word-for-aged-care/.

Garand, L., Lingler, J., Conner, K., & Dew, M. (2009). Diagnostic labels, stigma, and participation in research related to dementia and mild cognitive impairment. Research in Gerontological Nursing, 2(2), 112–121.

Goffman E. (1963) Stigma: notes on the management of spoiled identity, Englewood Cliffs, NJ: Prentice Hall.

Hodkinson B. (2011) Taking the stigma out of dementia. Nursing Older People 23: 8.

Hoffert B. (2006) The definitive book of body language. Library Journal 131: 66.

Hughes J. Louw S. Sabat S. (2006) Seeing the whole. In: Hughes J. Louw S. Sabat S. e-Kindle (eds) Dementia: mind, meaning, and the person, New York: Oxford University Press, Inc, pp. 475.

Link B. Phelan J. (2001) Conceptualizing stigma. Annual Review of Sociology 27: 363–338.

Mackenzie J. (2006a) Stigma and dementia. Dementia 5: 233–247.

Mackenzie J. (2006b) Stigma and dementia: East European and South Asian family carers negotiating stigma in the UK. Dementia 5: 233–224.

Milne A. (2010) The ‘D' word: Reflections on the relationship between stigma, discrimination and dementia. Journal of Mental Health (Abingdon, England) 19: 227–233.

Mukadam N. Livingston G. (2012) Reducing the stigma associated with dementia: approaches and goals, London: Future Medicine Ltd.

Parker J. (2001) Language: a pernicious and powerful tool. The English Journal 91: 74–78.

Pesonen H. Remes A. Isola A. (2011) Ethical aspects of researching subjective experiences in early-stage dementia. Nursing Ethics 18: 651–661.

Phillipson, L., Magee, C., Jones, S., & Skladzien, E. (2012). Correlates of dementia attitudes in a sample of middle-aged Australian adults. Australasian Journal on Ageing.

Ryan, S. (2006). Stigma of dementia is ‘cruel and widespread’. Irish Medical Times, 40(39), 6.

Sabat S. (2001) The experience of Alzheimer's disease: life through a tangled veil, Malden, MA: Blackwell, pp. 29.

Sandblom, J. (2014). ADI2014: What an experience, Early onset A-typical Alzheimer’s disease. Retrieved from http://www.earlyonsetatypicalalzheimers.com/blog/adi2014-what-an-experience.

Sandra R. (2006) Stigma of dementia is ‘cruel and widespread. Irish Medical Times 40: 6.

Scheff T. (1990) Microsociology: Discourse, emotion and social structure, London: University of Chicago Press, pp. 58.

Swaffer, K. (2012) We live until we die. In P. Wilson & K. Leeson. Learning life from illness stories. Mt. Gravatt, Qld: Post Pressed.

The Scottish Dementia Working Group. (2014) About us. Retrieved from http://www.sdwg.org.uk/home/about-us-sdwg/.

Ticehurst S. (2001) Is dementia a mental illness?. Australian and New Zealand Journal of Psychiatry 35: 716–723.

Werner P. Mittelman M. Goldstein D. Heinik J. (2012) Family stigma and caregiver burden in Alzheimer's disease. The Gerontologist 52: 89–97.