The incidence of Alzheimer's disease (AD) is predicted to grow by multiples in the coming decades, and today's young adults will be formal and/or informal caregivers in unprecedented numbers. Their ability to support the independence and well-being of people with AD will depend on their ability to identify intact social and cognitive abilities, selfhood, and needs of people with AD. This case study, conducted in an undergraduate seminar, provides preliminary, suggestive evidence for the educational advantages of a Bio-Psycho-Social approach to understanding these aspects of people with AD. Findings revealed a striking increase in students’ accurate understanding of: (1) the losses due to AD; (2) intact positive qualities in and inaccurate negative stereotypes about people with AD; and (3) important needs of people with AD. These are discussed in light of extant theory. The application of this approach in the case of one student and her family is explored.
AyresL. (2000). Narratives of family caregiving: The process of making meaning. Research in Nursing and Health, 23, 424–434.
3.
BenderM. P.ChestonR. (1997). Inhabitants of a lost kingdom: A model of the subjective experiences of dementia. Ageing and Society, 17, 513–532.
4.
BrodyE. (1971). Excess disabilities of mentally impaired aged: Impact of individualized treatment. The Gerontologist, 25, 124–133.
5.
ClareL. (2002). Developing awareness about awareness in early stage dementia. Dementia, 1, 295–312.
6.
ClareL. (2003). Managing threats to self: Awareness in early-stage Alzheimer's disease. Social Science and Medicine, 57, 1017–1029.
7.
ClaireL. (2004). Awareness in early-stage Alzheimer's disease: A review of methods and evidence. British Journal of Clinical Psychology, 43, 177–196.
8.
CorbeilR. R.QuayhagenM. P.QuayhagenM. (1999). Intervention effects on dementia caregiving interaction: A stress-adaptation modeling approach. Journal of Aging and Health, 11, 79–95.
9.
CotrellV.SchulzR. (1993). The perspective of the patient with Alzheimer's disease: A neglected dimension of dementia research. The Gerontologist, 33, 205–211.
10.
DownsM. (1997). The emergence of the person in dementia research. Ageing and Society, 17, 597–607.
11.
DownsM. (2000). Dementia in a socio-cultural context: An idea whose time has come. Ageing and Society, 20, 369–375.
12.
DownsM.BowersB. (Eds.) (2008). Excellence in dementia care: Research into practice. New York: Open University Press/McGraw Hill.
13.
FarranC. (2001). Family caregiver intervention research: Where have we been? Where are we going?. Journal of Gerontological Nursing, 27, 38–45.
14.
GrantG.RamcharanP.McGrathM.NolanM.KeadyJ. (1998). Rewards and gratifications among family caregivers: Toward a refined model of caring and coping. Journal of Intellectual Disability Research, 42, 58–71.
15.
HarréR. (1991). The discursive production of selves. Theory and Psychology, 1, 51–63.
16.
HarrisP. B. (Ed.) (2002). The person with Alzheimer's disease: Pathways to understanding the experience. Baltimore, MD: The Johns Hopkins University Press.
17.
HebertL. E.ScherrP. A.BieniasJ. L.BennettD. A.EvansD. A. (2003). Alzheimer disease and the U.S. population. Archives of Neurology, 60, 1119–1122.
18.
HolstG.HallbergI. (2003). Exploring the meaning of everyday life, for those suffering from dementia. American Journal of Alzheimer's Disease and Other Dementias, 18, 359–365.
19.
HubbardG.TesterS.DownsM. (2003). Meaningful social interactions between older people in institutional care settings. Ageing and Society, 23(1), 99–114.
20.
HughesJ. C. (2001). Views of the person with dementia. Journal of Medical Ethics, 27, 86–91.
21.
HughesJ. C. (Ed.) (2006). Palliative care in severe dementia. London: Quay Books.
22.
HughesJ. C.LouwS. J.SabatS. R. (Eds.) (2006). Dementia: Mind, meaning, and the person. Oxford: Oxford University Press.
23.
InnesA. (2001). Student-centred learning and person-centred dementia care. Education and Ageing, 16, 229–252.
24.
InnesA. (Ed.) (2003). Dementia care mapping: Applications across cultures. Baltimore, MD: Health Professions Press.
KeadyJ. (1996). The experience of dementia: A review of the literature and implications for nursing practice. Journal of Clinical Nursing, 5, 275–288.
27.
KeadyJ.GilliardJ. (2002). Testing times: The experience of neuropsychological assessment for people with suspected Alzheimer's disease. In HarrisP. B. (Ed.), The person with Alzheimer's disease: Pathways to understanding the experience (pp. 3–28). Baltimore, MD: The Johns Hopkins University Press.
28.
KillickJ.AllanK. (2001). Communication and the care of people with dementia. Buckingham: Open University Press.
29.
KitwoodT. (1990). The dialectice of dementia: With particular reference to Alzheimer's disease. Ageing and Society, 10(2), 177–196.
30.
KitwoodT. (1993). Towards a theory of dementia care: The interpersonal process. Ageing and Society, 13, 51–67.
31.
KitwoodT. (1997). Dementia reconsidered: The person comes first. Buckingham: Open University Press.
32.
KitwoodT. (1998). Toward a theory of dementia care: Ethics and interaction. Journal of Clinical Ethics, 9(1), 23–34.
33.
KitwoodT.BredinK. (1992). Towards a theory of dementia care: Personhood and well-being. Ageing and Society, 12(1), 269–287.
34.
KontosP. (2004). Ethnographic reflections on selfhood, embodiment, and Alzheimer's disease. Ageing and Society, 24(6), 829–849.
LundquistT. S.ReadyR. E. (2008). Young adult attitudes about Alzheimer's disease. American Journal of Alzheimer's Disease and Other Dementias, 23, 267–273.
37.
LymanK. (1989). Bringing the social back in: A critique of the biomedicalization of dementia. Gerontologist, 29, 597–604.
38.
PerrenS.SchmidR.WettsteinA. (2006). Caregivers' adaptation to change: The impact of increasing impairment of persons suffering from dementia on their caregivers’ subjective well-being. Aging and Mental Health, 8, 438–449.
39.
PhillipsL. R.RempusheskiV.MorrisonE. (1989). Developing and testing the beliefs about caregiving scale. Research in Nursing and Health, 12, 207–220.
40.
PhillipsL. R.MorrisonE.StefflB.YoungM. C.CromwellS. L.RussellC. K. (1995). Effects of situational context and interactional process on the quality of family caregiving. Research in Nursing and Health, 18, 2056–21.
41.
PostS. G. (1995). The moral challenge of Alzheimer disease. Baltimore, MD: Johns Hopkins University Press.
42.
SabatS. R. (1991). Facilitating conversation via indirect repair: A case study of Alzheimer's disease. The Georgetown Journal of Languages and Linguistics, 2, 284–296.
43.
SabatS. R. (1994). Excess disability and malignant social psychology: A case study of Alzheimer's disease. Journal of Community and Applied Social Psychology, 4(3), 157–166.
44.
SabatS. R. (2001). The experience of Alzheimer's disease: Life through a tangled veil. Oxford: Blackwell.
45.
SabatS. R. (2003). Malignant positioning and the predicament of the person with Alzheimer's disease. In MoghaddamF. M.HarréR. (Eds.), The self and others: Positioning individuals and groups in personal, political, and cultural contexts (pp. 85–98). Westport, CT: Greenwood Publishing Group.
46.
SabatS. R. (2006). Implicit memory and people with Alzheimer's disease: Implications for caregiving. American Journal of Alzheimer's Disease and Other Dementias, 21, 11–14.
47.
SabatS. R. (2008). A Bio-Psycho-Social approach to dementia. In DownsM.BowersB. (Eds.), Excellence in dementia care: Research into practice (pp. 70–84). New York: Open University Press/McGraw Hill: New York.
48.
SabatS. R.CollinsM. (1999). Intact social, cognitive ability, and selfhood: A case study of Alzheimer's disease. American Journal of Alzheimer's Disease, 14, 11–19.
49.
SabatS. R.FathH.MoghaddamF. M.HarréR. (1999). The maintenance of self-esteem: Lessons from the culture of Alzheimer's sufferers. Culture and Psychology, 5, 5–31.
50.
SabatS. R.HarréR. (1992). The construction and deconstruction of self in Alzheimer's disease. Ageing and Society, 12, 443–461.
51.
SabatS. R.HarréR. (1994). The Alzheimer's disease sufferer as a semiotic subject. Philosophy, Psychiatry, and Psychology, 1(1), 145–160.
52.
SabatS. R.NapolitanoL.FathH. (2004). Barriers to the construction of a valued social identity: A case study of Alzheimer's disease. American Journal of Alzheimer's Disease and Other Dementias, 19(3), 177–185.
53.
SandersS.OttC. H.KelberS. T.NoonanP. (2008). The experience of high levels of grief in caregivers of persons with Alzheimer's disease and related dementia. Death Studies, 32, 495–523.
54.
ShwederR. A.SullivanM. (1990). The semiotic subject of cultural psychology. In PrevinL. (Ed.), Handbook of personality theory and research (pp. 399–416). New York: Guilford Publications.
55.
SnyderL. (1999). Speaking our minds: Personal reflections from individuals with Alzheimer's. New York: Freeman.
56.
TempleV.SabatS. R.KrogerR. (1999). Intact use of politeness strategies in the discourse of Alzheimer's disease sufferers. Language and Communication, 19(2), 163–180.
57.
ThorngateW. (1993). A change of heart: Uses of qualitative gerontology. Canadian Journal on Aging, 12, 244–250.
58.
ToselandR. W.RossiterC. M. (1989). Group interventions to support family caregivers: A review and analysis. The Gerontologist, 29, 438–448.
59.
VitalianoP. P.YoungH. M.RussoJ. (1991). Burden: A review of measures used among caregivers of people with dementia. The Gerontologist, 31, 67–75.
60.
WashburnA. M.SandsL. P.WaltonP. J. (2003). Assessment of social cognition in frail older adults and its association with social functioning in the nursing home. The Gerontologist, 43(2), 203–212.
61.
WilkinsonH. (Ed.) (2002). The perspectives of people with dementia. London: Jessica Kingsley Publishers.
