Masturbation is frequently referenced as a key issue for supporting the sexuality of people with learning disabilities, yet the subject has received little attention in the professional and academic literature. This article provides an overview of masturbation in relation to service responses and user support in sexuality work in learning disability more widely, drawing in evidence and experience from sex education, clinical work and staff training. Issues such as gender, sexuality, culture and consent are addressed and some of the commonly held myths and assumptions about sexuality and masturbation are challenged. The discussion and related suggestions are designed to be of value to service managers and practitioners, particularly those involved in sexuality work and one-to-one support.
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References
1.
BAXTER, C. (1996) `Sex Education: Ethnically Sensitive Services to People with Learning Disabilities' , Tizard Learning Disability Review1 (4): 13-16 .
2.
BAXTER, C., POONIA, K., WARD, L. & NADIRSHAW, Z. (1990) Double Discrimination. London: King's Fund .
3.
BROWN, H. (1980) `Sexual Knowledge and Education of ESN Students in Centres of Further Education' , Sexuality and Disability3 (3): 215-220 .
4.
BROWN, H. & THOMPSON, D. (1997) `Service Responses to Men with Intellectual Disabilities Who Have Unacceptable or Abusive Sexual Behaviours: The Case against Inaction' , Journal of Applied Research in Intellectual Disabilities10 (2): 176-197 .
5.
BROWN, H. & TURK, V. (1992) `Defining Sexual Abuse as It Affects Adults with Learning Disabilities' , Mental Handicap Research20 (2): 44-54 .
6.
BROWN, H., STEIN, J. & TURK, V. (1995) `The Sexual Abuse of Adults with Learning Disabilities: Report of a Second Two Year Incidence Survey' , Mental Handicap Research8 (1): 1-22 .
7.
CAMBRIDGE, P. (1996) The Sexuality and Sexual Rights of People with Learning Disabilities: Considerations for Staff and Carers. Kidderminster: British Institute of Learning Disabilities .
8.
CAMBRIDGE, P. (1997) `How Far to Gay? The Politics of HIV in Learning Disability' , Disability and Society12 (3): 427-453 .
9.
CAMBRIDGE, P. (1999) `Considerations for Informing Safer Sex Education Work with Men with Learning Disabilities' , British Journal of Learning Disabilities27: 123-126 .
10.
CAMBRIDGE, P. (2001a) `The HIV Testing of a Man with Learning Disabilities: Informed Consent, Confidentiality and Policy' , Journal of Adult Protection3 (4): 23-28 .
11.
CAMBRIDGE, P. (2001b) `Editorial: Sexuality under Scrutiny' , Tizard Learning Disability Review6 (1): 2-3 .
12.
CAMBRIDGE, P. & CARNABY, S. (2000a) `A Personal Touch: Managing the Risks of Abuse during Intimate and Personal Care for People with Learning Disabilities' , Journal of Adult Protection2 (4): 4-16 .
13.
CAMBRIDGE, P. & CARNABY, S. (2000b) Making It Personal: Providing Intimate and Personal Care for People with Learning Disabilities. Brighton: Pavilion .
14.
CAMBRIDGE, P. & MCCARTHY, M. (1997) `Developing and Implementing Sexuality Policy for a Learning Disability Provider Service' , Health and Social Care in the Community5 (4): 227-236 .
15.
CAMBRIDGE, P. & MELLAN, B. (2000) `Reconstructing the Sexuality of Men with Learning Disabilities: Empirical Evidence and Theoretical Interpretations of Need' , Disability and Society15 (2): 293-311 .
16.
CARNABY, S. (1997) `What Do You Think? A Qualitative Approach to Evaluating Individual Planning Services' , Journal of Intellectual Disability Research41 (3): 225-231 .
17.
CARNABY, S. (1999) `Individual Programme Planning: Where Is the Individual?' , Tizard Learning Disability Review4 (3): 4-9 .
18.
CARNABY, S. (2002) `Making Plans: Undertaking Assessment and Care Planning', in S. CARNABY (ed.) Learning Disability Today. Brighton: Pavilion .
19.
CRAFT, A. (1983) Sex Education and Counselling for Mentally Handicapped People. Tunbridge Wells: Costello .
20.
CRAFT, A. (ed.) (1987) Mental Handicap and Sexuality: Issues and Perspectives. Tunbridge Wells: Costello .
21.
DEPARTMENT OF HEALTH (2000) No Secrets: Guidance on Developing and Implementing Multi-Agency Policies and Procedures to Protect Vulnerable Adults from Abuse. London: Department of Health .
22.
DEPARTMENT OF HEALTH (2001) Valuing People: A New Strategy for Learning Disability for the 21st Century. London: Department of Health .
23.
DOWNS, C. & CRAFT, A. (1997) Sex in Context: A Personal and Social Development Programme for Children and Adults with Profound and Multiple Impairments. Brighton: Pavilion .
24.
DOWNS, C. & FARRELL, S. (1996) `A Practical Response to Masturbation: Working with People with Profound and Multiple Disabilities' , Tizard Learning Disability Review1 (4): 23-26 .
25.
FELCE, D., LOWE, K. & DE PAIVA, S. (1994) `Ordinary Housing for People with Severe Learning Disabilities and Challenging Behaviours', in E. EMERSON, P. MCGILL & J. MANSELL (eds) Severe Learning Disabilities and Challenging Behaviours. London: Chapman and Hall .
26.
FPANSW (1993) Feeling Sexy, Feeling Safe. Family Planning Association of New South Wales .
27.
GUNN, M. (1996) Sex and the Law: A Brief Guide for Staff Working with People with Learning Difficulties. London: Family Planning Association .
28.
GUNN, M. (1997) `The Law, HIV and People with Learning Disabilities', in P. CAMBRIDGE & H. BROWN (eds) HIV and Learning Disability. Kidderminster: British Institute of Learning Disabilities .
29.
HITE, S. (1976) The Hite Report. London: Pandora .
30.
KARMI, G. (1996) The Ethnic Health Handbook. London: Blackwell .
31.
MALHOTRA, S. & MELLAN, B. (1996) `Cultural and Race Issues in Sexuality Work with People with Learning Disabilities' , Tizard Learning Disability Review1 (4): 7-12 .
32.
MCCARTHY, M. (1996) `The Sexual Support Needs of People with Learning Disabilities: A Profile of Those Referred for Sex Education' , Sexuality and Disability14 (4): 265-279 .
33.
MCCARTHY, M. (1998) `Whose Body Is It Anyway? Pressures and Control for Women with Learning Disabilities' , Disability and Society13 (4): 557-574 .
34.
MCCARTHY, M. (1999) Sexuality and Women with Learning Disabilities. London: Jessica Kingsley .
35.
MCCARTHY, M. (2001) `Women with Learning Disabilities: Experiencing their Sexuality in a Healthy Way' , Tizard Learning Disability Review6 (1): 16-21 .
36.
MCCARTHY, M. (2002a) `Responses to Women with Learning Disabilities as They Go through the Menopause' , Tizard Learning Disability Review7 (1): 4-12 .
37.
MCCARTHY, M. (2002b) `Sexuality', in P. NOONAN WALSH & T. HELLER (eds) Health of Women with Intellectual Disabilities. Oxford: Blackwell .
38.
MCCARTHY, M. & CAMBRIDGE, P. (1996) Your Rights about Sex: A Booklet for People with Learning Disabilities. Kidderminster: British Institute of Learning Disabilities .
39.
MCCARTHY, M. & THOMPSON, D. (1996) `Sexual Abuse by Design: An Examination of the Issues in Learning Disability Services' , Disability & Society11 (2): 205-217 .
40.
MCCARTHY, M. & THOMPSON, D. (1998) Sex and the 3R's: Rights, Responsibilities and Risks. Brighton: Pavilion .
41.
MCNEIL, P. (1992) `Doing It On My Own', in P. MCNEIL, B. FREEMAN & J. NEWMAN (eds) Women Talk Sex. London: Scarlett .
42.
MURPHY, G. (1994) `Understanding Challenging Behaviour', in E. EMERSON, P. MCGILL & J. MANSELL (eds) Severe Learning Disabilities and Challenging Behaviours: Designing High Quality Services. London: Chapman & Hall .
43.
MURPHY, G. & CLARE, I. (1995) `Adults' Capacity to Make Decisions Affecting the Person: Psychologists' Contribution', in R. BULL & D. CARSON (eds) Handbook of Psychology in Legal Contexts. Chichester: Wiley .
44.
NIHIRA, K., FOSTER, R., SHELLHAAS, M. & LELAND, H. (1974) AAMD Adaptive Behaviour Scale. Washington, DC: American Association on Mental Deficiency .
45.
PARKIN, W. (1989) `Private Experiences in the Public Domain: Sexuality and Residential Care Organisations', in J. HEARNET AL. (eds) The Sexuality of Organizations. London: Sage .
46.
ROGERS, J. (2001) `The Experiences and Management of Menstruation for Women with Learning Disabilities' , Tizard Learning Disability Review6 (1): 36-44 .
47.
ROWITZ, L. (1988) `The Forgotten Ones: Adolescence and Mental Retardation' , Mental Retardation June: 115-117 .
48.
SENKER, J. (1997) `Gender, Race and Sexual Behaviour: Issues in Service Responses' , British Journal of Learning Disabilities25 (2): 58-63 .
49.
SHAH, R. (1998) `Addressing Equality in the Provision of Services to Black People with PMLD', in P. LACEY & C. OUVRAY (eds) People with Profound and Multiple Learning Disabilities: A Collaborative Approach to Meeting Complex Needs. London: David Fulton .
50.
SHELTON, D. (1992) `Client Sexual Behaviour and Staff Attitudes: Shaping Masturbation in an Individual with a Profound Mental and Secondary Sensory Handicap' , Mental Handicap20 June: 81-87 .
51.
SHEPPARD, R. (1991) `Sex Therapy and People with Learning Difficulties' , Sexual and Marital Therapy6 (3): 307-316 .
52.
THOMPSON, D. (2001) `Is Sex a Good Thing for Men with Learning Disabilities?' , Tizard Learning Disability Review6 (1): 4-12 .
53.
THOMPSON, D. & BROWN, H. (1998) Response-Ability: Working with Men with Learning Disabilities Who Have Difficult or Abusive Sexual Behaviour. Brighton: Pavilion .
54.
THOMSON, R. (1993) Religion, Ethnicity and Sex Education: Exploring the Issues. London: National Children's Bureau .
55.
WALSH, A. (2000) `IMPROVE and CARE: Responding to Inappropriate Masturbation in People with Severe Intellectual Disabilities' , Sexuality and Disability18 (1): 27-39 .
56.
WARE, J. (1996) Creating a Responsive Environment for People with Profound and Multiple Learning Difficulties. London: David Fulton .
57.
WLHPA (1994) Piece by Piece. West London Health Promotion Agency. Brighton: Pavilion .
