• Summary: This article considers the implications for social work and social care education, policy and practice of including the viewpoints and knowledges of service users. The development of policy and practice for user involvement is critically discussed and the role of service users and their organizations in the construction of social work explored.
• Findings: Disabled people’s and service users’ organizations have developed their own knowledges, theories and models, based on their first-hand experience. This paper examines the implications of such users’ knowledge for social work and social care theory, policy and practice. It draws on discussions and developments in the disabled people’s and other movements whose members are the subjects of social work theory and practice. It is informed by the authors’ work and experience as service users, educators and practising social workers, as well as writers, activists and researchers in this field.
• Applications: The article examines the progress that has been made in involving service users in social work education, theory building, research, practice development and standard setting. It explores some of the practical and philosophical issues involved in developing a more inclusive and socially constructed social work and suggests that this may offer a route to restoring social work to its core values.
Abberley, Paul (1998) ‘The Spectre at the Feast: Disabled People and Social Theory’, in Tom Shakespeare (ed.) The Disability Reader: Social Science Perspectives. London: Cassell.
2.
Adams, Robert (1998) ‘Empowerment and Protest’, in Bogdan Lesnik (ed.) Challenging Discrimination in Social Work. Aldershot: Ashgate.
3.
Arnstein, Sherry (1969) ‘A Ladder of Citizen Participation in the USA’, Journal of the American Institute of Planners35(4): 216-224.
4.
Barnes, Colin (1991) Disabled People In Britain and Discrimination. London: Hurst.
5.
Barnes, Colin (1998) ‘The Social Model of Disability: A Sociological Phenomenon Ignored by Sociologists?’, in Tom Shakespeare (ed.) The Disability Reader: Social Science Perspectives. London: Cassell.
6.
Barnes, Colin and Mercer, Geof, eds (1997) Doing Disability Research. Leeds: The Disability Press.
7.
Begum, Nasa and Gillespie-Sells, Kath (1994) Towards Managing User-led Service. London: Race Equality Unit (REU).
8.
Beresford, Peter (1994) ‘Changing the Culture: Involving Service Users in Social Work Education’. Paper 32: 3. London: CCETSW.
9.
Beresford, Peter (1999a) ‘Making Participation Possible: Movements of Disabled People and Psychiatric System Survivors’, in Tim Jordan and Adam Lent (eds) Storming the Millennium: The New Politics of Change. London: Lawrence & Wishart.
10.
Beresford, Peter (1999b) ‘Towards An Empowering Social Work Practice: Learning from Service Users and Their Movements’, in Wes Shera and Lillian M. Wells (eds) Empowerment Practice In Social Work: Developing Richer Conceptual Foundations. Toronto: Canadian Scholars’ Press.
11.
Beresford, Peter (2000) ‘Service Users’ Knowledges And Social Work Theory: Conflict or Collaboration’, British Journal of Social Work30(4): 489-504.
12.
Beresford, Peter and Campbell, Jane (1994) ‘Disabled People, Service Users, User Involvement and Representation’, Disability & Society9(3): 315-325.
13.
Beresford, Peter and Croft, Suzy (1987) ‘Are We Really Listening?: The Client Speaks by John Meyer and Noel Timms’, in Terry Philpot (ed.) On Second Thoughts: Reassessments of the Literature of Social Work. Surrey: Reed Business Publishing/Community Care.
14.
Beresford, Peter and Croft, Suzy (1995) ‘Whose Empowerment? Equalising the Competing Discourses in Community Care’, in Raymond Jack (ed.) Empowerment in Community Care. London: Chapman & Hall,.
15.
Beresford, P., Croft, S., Evans, C. and Harding, T. (1997) ‘Quality In Personal Social Services: The Developing Role of User Involvement in the UK’, in A. Evers, R. Haverinen, K. Leichsenring and G. Wistow (eds) Developing Quality In Personal Social Services: Concepts, Cases and Comments. Aldershot: Ashgate.
16.
Beresford, Peter and Evans, Clare (1999) ‘Research and Empowerment’, British Journal of Social Work29: 671-677.
17.
Beresford, P., Green, D., Lister, R. and Woodard, K. (1999) Poverty First Hand: Poor People Speak for Themselves. London: Child Poverty Action Group.
18.
Beresford, Peter and Holden, Chris (2000) ‘We Have Choices: Globalization and Welfare User Movements’, Disability & Society15(7): 973-979.
19.
Beresford, P., Stalker, K. and Wilson, A. (1997) Speaking for Ourselves: A Bibliography. London: Open Services Project in association with the Social Work Research Centre, University of Stirling.
20.
Beresford, Peter and Trevillion, Steve (1995) Developing Skills for Community Care: A Collaborative Approach. Aldershot: Arena.
21.
Bewley, Catherine and Glendinning, Caroline (1994) Involving Disabled People In Community Care Planning. York: Joseph Rowntree Foundation and Community Care magazine.
22.
Butler, Ian and Drakeford, M. (2001) ‘Which Blair Project?: Communitarianism, Social Authoritarianism and Social Work’, Journal of Social Work1(1): 7-19.
23.
Campbell, Jane and Oliver, Mike (1996) Disability Politics: Understanding Our Past, Changing Our Future. Basingstoke: Macmillan.
24.
Campbell, Peter (1994) ‘A Survivor’s Perspective on Mental Health’. Lecture, Social Work Department, West London Institute, Middlesex, 24 April.
25.
Campbell, Peter (1996) ‘The History of the User Movement in the United Kingdom’, in T. Heller, J. Reynolds, R. Gomm, R. Muston and S. Pattison (eds) Mental Health Matters. Basingstoke: Macmillan.
26.
Charlton, James, I. (2000) Nothing About Us Without Us: Disability, Oppression and Empowerment. California: University of California Press.
27.
Coleridge, Peter (1993) Disability, Liberation And Development. Oxford: Oxfam.
28.
Cooke, Bill and Kothari, Uma, eds (2001) Participation: The New Tyranny?London: Zed Books.
29.
De Jong, Gerben (1979) The Movement For Independent Living: Origins, Ideology and Implications for Disability Research. East Lansing: Michigan State University Press.
30.
Derbyshire Centre for Inclusive Living (DCIL) (1998) ‘Developing Accredited Qualification in Peer Support Work: “Mapping”Meeting at Midland Hotel, Derby, 8 December, Notes’. Ripley: Derbyshire Centre for Inclusive Living.
31.
Derbyshire Centre for Inclusive Living (DCIL) (1999a) ‘Proposal To Develop a National Qualification For Independent/Integrated Living Advice Work’. Ripley: Derbyshire Centre for Inclusive Living.
32.
Derbyshire Centre for Inclusive Living (DCIL) (1999b) ‘Integrated Living Advisors or Direct Payment Advisors: A Nationally Recognized Qualification’. Briefing notes for workshops at CILS Conference, 21-2 July. Ripley: Derbyshire Centre for Inclusive Living.
33.
Dominelli, L. (1998) ‘Anti-Oppressive Practice In Context’, in R. Adams, L. Dominelli and M. Payne (eds) Social Work: Themes, Issues and Critical Debates. Basingstoke: Macmillan.
34.
European Foundation (1995) For Citizens and Against Exclusion: The Role of Public Welfare Services. Dublin: European Foundation for the Improvement of Living and Working Conditions.
35.
European Foundation (2001) Social Public Services: Quality of Working Life and Quality of Service. Dublin: European Foundation for the Improvement of Living and Working Conditions.
36.
Evans, Clare (1995) ‘Joint Training’. Presentation at Joint Training Conference, Joint Training Board, November, London.
37.
Evans, Clare and Fisher, Mike (1999) ‘User Controlled Research and Empowerment’, in Wes Shera and Lillian M. Wells (eds) Empowerment Practice in Social Work: Developing Richer Conceptual Foundations. Toronto: Canadian Scholars’ Press.
38.
Evers, A., Haverinen, R., Leichsenring, K. and Wistow, G., eds (1997) Developing Quality in Personal Social Services: Concepts, Cases and Comments. Aldershot: Ashgate.
39.
Giddens, Anthony (1998) The Third Way: The Renewal of Social Democracy. Cambridge: Polity Press.
40.
Harding, Sandra (1993) ‘Rethinking Standpoint Epistemology: What is “Strong Objectivity”?’, in Linda Alcoff and Elizabeth Potter (eds) Feminist Epistemologies. London: Routledge.
41.
Harding, Tessa and Beresford, Peter, eds (1996) The Standards We Expect: What Service Users and Carers Want from Social Services Workers. London: National Institute for Social Work.
42.
Hoggett, Paul and Burns, Danny (1991/2) ‘The Revenge of the Poor: The Anti-poll Tax Campaign in Britain’, Critical Social Policy33, Winter: 95-110.
43.
Langan, Mary and Lee, Phil, eds (1989) Radical Social Work Today. London: Unwin Hyman.
44.
Levitas, Ruth (1998) The Inclusive Society? Social Exclusion and New Labour. Basingstoke: Macmillan.
45.
Lindow, Viv (1994) Self-Help Alternatives to Mental Health Services. London: MIND Publications.
46.
Lindow, Viv (2000) Review of ‘Taking Over the Asylum: Empowerment and Mental Health’, Community Care 10-16 May: 34.
47.
Lindow, Viv (2001) ‘Survivor Research’, in C. Newnes, G. Holmes and C. Dunn (eds) This Is Madness Too, pp. 135-146. Ross on Wye: PCCS Books.
48.
Meyer, John E. and Timms, Noel (1970) The Client Speaks: Working Class Impressions of Casework. London: Routledge & Kegan Paul.
49.
Midgley, J. (2001) ‘Issues in International Social Work: Resolving Critical Debates in the Profession’, Journal of Social Work1(1): 21-35.
50.
Morris, Jenny (1993) Independent Lives: Community Care and Disabled People. Basingstoke: Macmillan.
51.
Morris, Jenny (1994) The Shape of Things to Come?: User Led Social Services. London: National Institute for Social Work.
52.
Morris, Jenny (1997) Community Care: Working in Partnership with Service Users. Birmingham: Venture Press.
53.
National Institute for Social Work (NISW) (1999) ‘National Debate on the Future of Social Work: Creating a New Agenda’. NISW Briefing Paper No. 28, London: National Institute for Social Work.
54.
National Institute for Social Work (NISW) (2000) ‘Modernising Social Work: Social Work in the Modernising Agenda’. NISW Briefing Paper No. 29, London: National Institute for Social Work.
55.
Oliver, Mike (1990) The Politics Of Disablement. Basingstoke: Macmillan.
56.
Oliver, Mike (1996) Understanding Disability: From Theory to Practice. Basingstoke: Macmillan.
57.
Oliver, Michael and Barnes, Colin (1998) Disabled People and Social Policy: From Exclusion to Inclusion. London: Longman.
58.
Otto, H.-U., Schaarchuch, A. and Lister, R., eds (2002) Citizenship and Social Welfare: Organization, Profession, and Politics. London: Pearson Education.
59.
Priestley, Mark (1995) ‘Dropping “Es”: The Missing Links in Quality Assurance for Disabled People’, Critical Social Policy44/45: 7-21.
60.
Scherr, Albert (1999) ‘Transformation in Social Work: From Help Towards Social Inclusion to the Management of Exclusion’, European Journal of Social Work2(1): 15-26.
61.
Shakespeare, Tom, ed. (1998) The Disability Reader: Social Science Perspectives. London: Cassell.
62.
Shennan, Guy (1998) ‘ “Are We Asking the Experts”? Practice Teachers’ Use of Client Views in Assessing Client Competence’, Social Work Education17(4): 407-417.
63.
Shera, Wes and Wells, Lillian, M., eds (1999) Empowerment Practice in Social Work: Developing Richer Conceptual Foundations. Toronto: Canadian Scholars’ Press.
64.
Stanley, Liz and Wise, Sue (1993) Breaking Out: Feminist Consciousness and Feminist Research. London: Routledge & Kegan Paul.
65.
Stevens, A., Bur, A-M., and Young, L. (1999) ‘Partial, Unequal and Conflictual: Problems in Using Participation for Social Inclusion’, Social Work in Europe6(2): 2-9.
66.
Stone, Emma, ed. (1999) Disability and Development: Learning from Action and Research on Disability in the Majority World. Leeds: The Disability Press.
67.
Turner, Michael (1998) Shaping Our Lives: Project Report. London: National Institute for Social Work.
68.
Wilson, Anne and Beresford, Peter (2000) ‘ “Anti-Oppressive Practice”: Emancipation or Appropriation?’, British Journal of Social Work30: 553-573.
69.
Wintour, Patrick (2000) ‘Labour Plan for People Power’. Guardian, 27 May: 1-2.
