Advances in the understanding of molecular biology associated with the Human Genome Project are already having a considerable social impact. Assessing that social impact provides a number of challenges for sociology. Using the perspective of medical technology assessment, this article considers issues concerning genetic testing and screening, individual versus collective uses of these biotechnologies and the special case of pregnancy and prenatal screening. It concludes with the specification of a research agenda for sociologists interested in the field.
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References
1.
Annas, G. (1993) 'Privacy Rules for DNA Databanks: Protecting Coded "Future Diaries"' Journal of the American Medical Association270(19): 2346-50.
2.
Banta, D. and B. Luce (1993) Health Care Technology and Its Assessment: An International PerspectiveOxford: Oxford University Press.
3.
Beardsley, T. (1996) 'Trends in Human Genetics'Scientific American March.
4.
Beck, U. (1992) Risk Society: Towards a New ModernityLondon: Sage.
5.
Billings, P., M. Kohn, M. de Cuevas, J. Beckwith, J. Alper and M. Natowicz (1992) 'Discrimination as a Consequence of Genetic Testing'American Journal of Human Genetics50: 476-482.
6.
Caplan, A. and J. Merz (1996) 'Patenting Gene Sequences: Not in the Best Interests of Science or Society'British Medical Journal (editorial) 7036: 312.
7.
Cook-Deegan, R. (1994) The Gene Wars: Science, Politics and the Human GenomeNew York: Norton.
8.
Commission of the European Communities (1989 ) Modified Proposal for a Council Decision, Adopting a Specific Research and Technological Development Program in the Field of Health (1990-1991)Brussels, 13 November.
9.
Cox, S., B. McKellin and M. Burgess (1995) 'The Medical Genetics "Patient"—Individual or Family?' Paper presented at the 1995 Canadian Society for Sociology and Anthropology Conference, Montreal .
10.
Daly, J. and E. Willis (1994) 'Health Technology Policy in a Just Society: The Case of Sleep Disorder Centres' in C. Waddell and A. Peterson (eds) Just HealthMelbourne: Churchill Livingstone.
11.
Davison, C., S. Macintyre and G. Davey Smith (1994) 'The Potential Social Impact of Predictive Genetic Testing for Susceptibility to Common Chronic Diseases: A Review and Proposed Research Agenda'Sociology of Health and Illness16: 340-371.
12.
Dickson, D. (1974) Alternative Technology and the Politics of Technological ChangeGlasgow: Fontana.
13.
Duster, T. (1990) Backdoor to EugenicsNew York : Routledge.
14.
Fisher, A. (1996) 'The Brave New World of Genetic Screening: Ethical Issues' in J. Flader (ed.) Death or Disability? Hobart: University of Tasmania: 16-34.
15.
Flinter, F., A. Silver, G. Mathew and M. Bobrow (1992) 'Population Screening for Cystic Fibrosis'Lancet339: 1539-1540.
16.
Giddens, A. (1982) Sociology: A Brief but Critical IntroductionLondon: Macmillian.
17.
Glasner, P. and H. Rothman (1995) 'Social Dimensions of the Human Genome Mapping Project: An Introduction'The Genetic Engineer and Biotechnologist15(2-3): 85-88.
18.
Hopper, J. (1995) 'Genetic Testing: Review of the Scientific Literature: Discussion Paper'Sydney: NHMRC National Breast Cancer Centre [http://www.nbc.org.au/pages/execsum2.htm ].
19.
Hubbard, R. and E. Wald (1993) Exploding the Gene MythBoston : Beacon Press.
20.
Kenen, R. (1995) 'The Human Genome Project: Creator of the Potentially Sick, Potentially Vulnerable and Potentially Stigmatised' in I. Robinson (ed.) Life and Death Under High Technology MedicineManchester : University of Manchester Press.
21.
Kevles, D. and I. Hood (1992) 'Reflections' in D. Kevles and L. Hood (eds) The Code of Codes: Scientific Issues in the Human Genome ProjectCambridge Mass: Harvard University Press.
22.
Lippman, A. (1991) 'Prenatal Genetic Testing and Screening: Constructing Needs and Reinforcing Inequities'American Journal of Law and Medicine17(1-2): 15-50.
23.
Lippman, A. (1992) 'Mother Matters: A Fresh Look at Prenatal Genetic Testing'Issues in Reproductive and Genetic Engineering5(2): 141-154.
24.
McKinlay, J. (1981) 'From "Promising Report" to "Standard Procedure": Seven Stages in the Career of Medical Innovation' Millbank Memorial Fund Quarterly59(3): 374-411.
25.
Mann, C. (1994) 'Behavioural Genetics in Transition' Science264 (17 June): 1686-1689.
26.
Nelkin, D. and S. Lindee (1995) The DNA Mystique: The Gene as a Cultural IconNew York: Freeman and Co.
27.
Nelkin, D. and L. Tancredi (1989) Dangerous Diagnostics: The Social Power of Biological InformationNew York: Basic Books .
28.
Richards, M.P.M. (1993) 'The New Genetics: Some Issues for Social ScientistsSociology of Health and Illness15(5): 567-586.
29.
Rose, H. (1994) Love, Power and Knowledge: Towards a Feminist Transformation of the SciencesCambridge: Polity .
30.
Rothman, B.K. (1986) The Tentative Pregnancy: Prenatal Diagnosis and the Future of MotherhoodNew York: Norton.
31.
Schwartz-Cowan, R. (1992) 'Genetic Technology and Reproductive Choice' in D. Kevles and L. Hood (eds) The Code of Codes: Scientific and Social Issues in the Human Genome ProjectCambridge, Mass: Harvard University Press: 244-263.
32.
Science (1995) Issue of 17 November, 270: 5239 [http://science.highwire.org/science/content/vo1270/issue5239/news-summaries-alt.shtml ].
33.
Turner, B. (1995) Medical Power and Social KnowledgeLondon: Sage.
34.
Wake, S., C. Rogers, P. Colley, E. Hieatt, C. Jenner and G. Turner (1996) 'Cystic Fibrosis Carrier Screening in a NSW Country Town'Medical Journal of Australia 15 April: 471-474.
35.
Weiss, R. and S. Thier (1988) 'HIV Testing is the Answer: What's the QuestionNew England Journal of Medicine319: 1010-1012.
36.
Wilfond, B.S. and N. Fost (1990) 'The Cystic Fibrosis Gene: Medical and Social Implications for Heterozygote Detection'Journal of the American Medical Association263(23-30 May): 2777-2783.
37.
Willis, E. (1994) 'The Social Relations of HIV Testing Technology' in S. Scott and G. Williams (eds) Private Risks and Public DangersAldershot: Avebury.
38.
Willis, E. (1995) 'The Political Economy of Genes'Journal of Australian Political Economy36: 104-113.
39.
Willis, E. (1997) 'The Prostatic Imperative and the Social Relations of Medical Technology'International Journal for Technology Assessment in Health Care13(4): 602-612.
40.
Yoxen, E. (1984) 'Constructing Genetic Diseases' in T. Duster and K. Gareth (eds) Perspectives in Biology and MedicineNorwood NJ: Ablex.
