Experiences of parents caring for more than one child with the same chronic or serious illness in Occupied Palestinian Territory: A qualitative study

Abstract

In Occupied Palestinian territory (OPT), which is in a complex political situation and has limited access to resources, there is a critical need to deepen the understanding of how children with life-limiting and life-threatening illnesses are cared for. This study explores the experiences of parents caring for more than one child with a chronic or serious illness. A qualitative descriptive method was adopted, with data collected from several paediatric units in two OPT cities, Tulkarm and Ramallah. Semi-structured, face-to-face interviews were conducted with 16 parents (each interview was of an individual parent). Data were analysed using thematic analysis, and the analysis unearthed seven major themes that reflected the parents’ experiences. These were as follows: Significant life changes with the first child’s illness; the second experience; becoming stronger; support systems; economic difficulties; social stigma; and social isolation. Data analyses suggest that there is a significant need for emotional and physical support to be provided to parents, and culturally salient social service provisions should be implemented to alleviate the burden placed on these parents.