CarterB.EdwardsM.HuntA., (2015) ‘Being a presence’: The ways in which family support workers encompass, embrace, befriend, accompany and endure with families of life-limited children. Journal of Child Health Care. 19(3): 304–319.
2.
LoebS. J. (2005). Perseverance: Analysis of a concept with utility for caregiver research. Journal of Theory Construction & Testing. 9: 21–25.
3.
McCannD.BullR.WinzenbergT. (2012) The daily patterns of time use for parents of children with complex needs: A systematic review. Journal of Child Health Care. 16: 26–52.
4.
McCannD. (2015) Parenting children with complex needs. Journal of Child Health Care. DOI: 1367493515624008.
5.
NichollH. (2015) ‘Going between worlds’: Travelling with children with complex needs. Journal of Child Health Care. 19(3): 293–303.
6.
SolomonMPistrangNBarkerC., (2001) The benefits of mutual support groups for parents of children with disabilities. American Journal of Community Psychology. 29(1): 113–32.