AvisMReardonR (2008) Understanding the views of parents of children with special needs about the nursing care their child receives when in hospital: a qualitative study. Journal of Child Health Care12(1): 7–17.
2.
ChenXVelezJCBarbosaC. (2015) Smoking and perceived stress in relation to short salivary telomere length among caregivers of children with disabilities. Stress18(1): 20–28.
3.
DychesTTChristensenRHarperJM. (2015) Respite care for single mothers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders. Epub ahead of print 22 October 2015. DOI: 10.1007/s10803-015-2618-z.
4.
Hewitt-TaylorJ (2005) Caring for children with complex needs: staff education and training. Journal of Child Health Care9(1): 72–86.
5.
JohnsonRFO’ReillyMVostanisP (2006) Caring for children with learning disabilities who present problem behaviours: a maternal perspective. Journal of Child Health Care10(3): 188–198.
LingJPayneSConnaireK. (2015) Parental decision-making on utilisation of out-of-home respite in children’s palliative care: findings of qualitative case study research – a proposed new model. Child: Care, Health & Development. Epub ahead of print 7 November 2015. DOI: 10.1111/cch.12300.
8.
McCannDBullRWinzenbergT (2012) The daily patterns of time use for parents of children with complex needs: a systematic review. Journal of Child Health Care16(1): 26–52.
9.
McCannDBullRWinzenbergT (2015). Sleep deprivation in parents caring for children with complex needs: a mixed methods systematic review. Journal of Family Nursing21(1): 86–118.
10.
MurphyNAChristianBCaplinDA. (2007) The health of caregivers for children with disabilities: caregiver perspectives. Child: Care, Health & Development33(2): 180–187.
11.
National People with Disabilities and Carer Council (2009) Shut out: the experience of people with disabilities and their families in Australia. National disability strategy consultation report. Available at: https://www.dss.gov.au/sites/default/files/documents/05_2012/nds_report.pdf (accessed 6 March 2015).
12.
NichollH (2015) ‘Going between worlds’: travelling with children with complex needs. Journal of Child Health Care19(3): 293–303.
13.
PelchatDLefebvreHPerreaultM (2003) Differences and similarities between mothers’ and fathers’ experiences of parenting a child with a disability. Journal of Child Health Care7(4): 231–247.
14.
StrunkJ (2010) Respite care for families of special needs children: a systematic review. Journal of Developmental and Physical Disabilities22(6): 615–630.
15.
ThunbergGBuchholzMNilssonS (2015) Strategies that assist children with communicative disability during hospital stay: parents’ perceptions and ideas. Journal of Child Health Care. Epub ahead of print 12 February 2015. DOI: 10.1177/1367493514568298.
16.
WhitingM (2013) Impact, meaning and need for help and support: the experience of parents caring for children with disabilities, life-limiting/life-threatening illness or technology dependence. Journal of Child Health Care17(1): 92–108.