Children with intellectual disabilities and/or complex needs

Avis M Reardon R (2008) Understanding the views of parents of children with special needs about the nursing care their child receives when in hospital: a qualitative study. Journal of Child Health Care 12(1): 7–17.

Barr O Millar R (2003) Parents of children with intellectual disabilities: their expectations and experience of genetic counseling. Journal of Applied Research in Intellectual Disabilities 16(3): 189–204.

Carpenter B (2005) Early childhood intervention: possibilities and prospects for professionals, families and children. British Journal of Special Education 32(4): 176–183.

Department of Health (DH) (2004) National Service Framework: Children, Young People and Maternity Services. London: Department of Health.

DH (2010) National Framework for Children and Young People’s Continuing Care. London: Department of Health.

Equality Act 2010. Available at: http://www.legislation.gov.uk/ukpga/2010/15/contents.

Gray DE (2002) Everybody just freezes. Everybody is just embarrassed: felt and enacted stigma among parents of children with high functioning autism. Sociology of Health and Illness 24(6): 734–749.

Hewitt-Taylor J (2005) Caring for children with complex needs: staff education and training. Journal of Child Health Care 9(1): 72–86.

Johnson RF O’Reilly M Vostanis P (2006) Caring for children with learning disabilities who present problem behaviours: a maternal perspective. Journal of Child Health Care 10(3): 188–198.

Mafuba K Gates B (2015) Learning disability nursing throughout the lifespan. In: Gates B Mafuba K (eds) Learning Disability Nursing: Modern Day Practice. London: Taylor and Francis, pp. 51–81.

McCann D Bull R Winzenberg T (2012) The daily patterns of time use for parents of children with complex needs: a systematic review. Journal of Child Health Care 16(1): 26–52.

McConkey R Spollen M Jamison J (2003) Administrative Prevalence of Learning Disability in Northern Ireland – Report to Department of Health and Social Services and Public Safety. Belfast: Department of Health and Social Services and Public Safety.

Murphy E (2014) Statistics on People with Learning Disabilities in Northern Ireland - Research and Information Service Briefing Paper. Belfast: Northern Ireland Assembly.

Nicholl H (2015) ‘Going between worlds’: travelling with children with complex needs. Journal of Child Health Care 19(3): 293–303.

Pelchat D Lefebvre H Perreault M (2003) Differences and similarities between mothers’ and fathers’ experiences of parenting a child with a disability. Journal of Child Health Care 7(4): 231–247.

Statistics for Wales (2015) Local Authority Registers of People with Disabilities, Wales, 31 March 2015. Cardiff: Welsh Government.

The Scottish Government (2011) Report of the National Review of Services for Disabled Children. Edinburgh: The Scottish Government.

Thunberg G Buchholz M Nilsson S (2015) Strategies that assist children with communicative disability during hospital stay: parents’ perceptions and ideas. Journal of Child Health Care. Epub ahead of print 12 February 2015. DOI: 10.1177/1367493514568298.

Whiting M (2012) Impact, meaning and need for help and support: the experience of parents caring for children with disabilities, life-limiting/life-threatening illness or technology dependence. Journal of Child Health Care 17(1): 92–108.