Experiences of Double-Blind,Placebo-Controlled Food Challenges (DBPCFC): a qualitative analysis of mothers’ experiences

Abstract

Fear and anxiety are recurring problems for parents of food-allergic children. However, no study has described parents’ experiences of introducing food to their children after double-blind provocation. Therefore the aim of this study was to investigate mothers’ experiences during their child’s negative Double-Blind, Placebo-Controlled Food Challenge (DBPCFC) and the following reintroduction of food. Eight mothers were interviewed and a qualitative content analysis displayed two themes and six subthemes. The first theme, ‘living with fear of the unknown’, included the subthemes of ‘fear of losing control’, ‘having faith even though fear prevails’, ‘reintroducing despite fear’ and ‘fear of causing harm’. In the second theme, the mothers described the challenging process of ‘re-evaluating earlier experiences’ through the sub-themes of ‘daring to take new challenges’ and ‘refraining from new challenges’. Our study indicates that the maternal perspective — not only the professional perspective — needs to be taken into account if mothers are to succeed in the challenging process of reintroducing foods.