■ A literature review was undertaken to
identify factors that may influence
adherence to health advice amongst
chronically ill young people.
■ It emerged from the literature that internal
and external factors influenced adherence
in this client group.
■ Internal influences were associated with
adolescent biopsychosocial development
and intra-personal dynamics.
■ External factors were linked to
interpersonal dynamics between the young
person, family, peers, health care
professionals and society as a whole.
■ It is proposed that the difficulties in
adherence to health advice were often due
to 'adultist' beliefs.
■ The implications of these findings are
relevant to all health professionals involved
in promoting health and in the
development of approaches to promote
'young person-centred adherence.'
Abbott P. (1993) Why do we need to review literature?Nurse Researcher; 1(1): 15-22.
2.
Anderson BJ, Miller TP, Auslander WF, Santiago JV (1981) Family characteristics of diabetic adolescents: relationships to metabolic controlDiabetic Care ; 4(4): 586-94.
3.
Bell F. ( 2000) Post-renal transplant complianceJournal of Child Health Care; 4 (1): 5-9.
4.
Belzer ME, Fuchs DN, Luftman GS, Tucker TJ (1999) Antiretroviral adherence issues among H.I.V.-positive adolescents and young adultsJournal of Adolescent Health ; 25(5): 316-9.
5.
Bloch C.A., Clemons P., Speerling MA (1987) Puberty decreases insulin sensitivityJournal of Pediatrics; 110 : 481-487.
6.
Bobrow ES, Avruskin TW, Siller J. (1985) Mother-daughter interaction and adherence to diabetic regimenDiabetic Care, 8(2): 146-151
7.
Burley Moore J. (1995) Measuring the self-care practices of children and adolescentsMaternal-Child Nursing Journal ; 23(3): 101-8.
8.
Cameron K. (1987) Chronic illness and compliance, Journal of Advance Nursing; 12 : 671-676.
9.
Capelli M., McGrath PJ, Heick CE, MacDonald NE, Friedman W., Rowe P. ( 1989) Chronic disease and its impactJournal of Adolescent Health Care; 10 : 285-288.
10.
Coleman JA, Coleman EZ (1984) Adolescents attitudes to authority, Journal of Adolescence; 7 : 131-41
11.
Coleman JC, Hendry LB (1996) The Nature of AdolescenceRoutledge : London.
12.
Conway A. (1998) Adherence and compliance in the management of asthma: 1British Journal of Nursing; 7(21): 12-15.
13.
Cramer JA, Spliker B. (1984) Patient Compliance in Medical Practice and Clinical TrialsRaven Press: New York73-99.
14.
Delameter AM, Albrecht DR, Postellon DC, Gutai JP (1991) Racial differences in metabolic control of children and adolescents with Diabetes Type 1Diabetes Mellitus, Diabetes Care, 14(1): 20-25
15.
Department of Health. (1995) The Health of the NationHMSO: London.
16.
Department of Health. (1999) The NHS PlanHMSO: London.
17.
Dracup KA, Melais Al. (1994) Compliance: an interactionalist approachNursing Research; 31(1): 31-36.
18.
Du Pasquier FL, Tubiana RN (1999) Discordance between physician and adolescent assessments of adherence to treatment: influences on HbA1c levelsDiabetes Care; 22(9): 1445-9.
19.
Elkind D. (1984) Teenage thinking: implications for health carePediatric Nursing ; Nov./Dec., 383-385.
20.
Eraker SA, Kirscht JP, Becker MH (1984) Understanding and improving patient complianceAnnals of Internal Medicine; 100: 258-268.
21.
Fairburn CG, Peveler RC, Davies B., Mann JI, Mayou RA (1991) Eating disorders in young adults with insulin dependent diabetes mellitus; a control studyBritish Medical Journal; 303: 17-20.
22.
Friedman IR, Litt IF ( 1986) Promoting adolescents' compliance with therapeutic regimensPediatric Clinics of North America; 33(4): 955-973.
23.
Friedman IR, Litt IF, King DR, Henson R., Holtzman D., Halverson D., Kraemer H. (1988) Compliance with anticonvulsant therapy amongst epileptic youth - relationships to psychosocial aspects of adolescent developmentJournal of Adolescent Health Care; 7: 12-17.
24.
Hanson CL, Henggeler SW, Burghen GA (1987) Race and sex differences in metabolic control of adolescents with I.D.D.M.: a function of psychosocial variables ?Diabetes Care; 10(3): 313-318
25.
Hentinen M., Kyngas H. (1992) Compliance of young diabetics with health regimensJournal of Advanced Nursing; 17: 530-536
26.
Hentinen M., Kyngas H. (1996) Diabetic adolescent's compliance with health regimens and associated factorsInternational Journal of Nursing Studies; 33(3): 325-337.
27.
Hussey LC, Gilliland K. (1989) Compliance, low literacy and locus of control, Nursing Clinics of North America; 24(3): 605-611.
28.
Ingersoll GH, Orr DP, Herrold AJ, Golden MP (1986) Cognitive maturity and self management amongst adolescents with insulin dependent diabetes mellitusJournal of Pediatrics; 104(4): 620-623.
29.
Jacobson AM, Hauser ST, Wolfsdorf JI, Houlihan J., Milley JE, Wertlieb D., Watt E. (1987) Psychologic predictors of compliance in children with recent onset diabetes mellitusJournal of Pediatrics ; 110(5): 805-811.
30.
Jacobson AM, Hauser ST, Lavori P., Wolfsdorf JI, Herskowitz RD, Milley JE, Bliss R., Gelfand E., Wertlieb D., Stein J. (1990) Adherence amongst children and adolescents with Insulin Dependent Diabetes Mellitus over a 4 year longitudinal follow up; 1. The influence of patient coping and adjustmentJournal of Pediatric Psychology; 15(4): 511-526.
31.
Jay S., Litt IF, Durant RH (1984) Compliance with therapeutic regimensJournal of Adolescent Health Care; 5 : 124-136.
32.
Johnson JH, Johnson SB, (eds.) (1991) Advances in Child Health PsychologyUniversity of Florida Press: Florida.
33.
Koocher GP, McGrath ML, Gudas U. (1990) Typologies of nonadherence in Cystic FibrosisBehavioural and Developmental Pediatrics ; 11 (6): 353-358.
34.
Kyngas H., Hentinen M. (1995) Meaning attached to compliance with self-care and conditions for compliance amongst young diabeticsJournal of Advanced Nursing; 21 : 729-736.
35.
Kyngas H., Hentinen M., Barlow JH (1998) Adolescents' perceptions of physicians, nurses, parents and friends: help or hindrance in compliance with diabetic self-careJournal of Advanced Nursing; 27(4): 760-9.
36.
LaGreca AM (1992) Peer influence in pediatric chronic illness: an updateJournal of Pediatric Psychology ; 17(6): 775-84.
37.
Lawler MK, Volk R., Viviani N., Mengel MB (1990) Individual and family factors impacting diabetic control in the adolescent: a preliminary studyMaternity-Child Nursing Journal; 19(4): 331-345.
38.
Lemanek K. (1990) Adherence issues in the medical management of asthmaJournal of Pediatric Psychology; 25(3): 23-34.
39.
Lilleyman JS (1994) Childhood Leukaemia: The FactsOxford University Press: Oxford.
40.
Litt IF, Cuskey WR (1980) Compliance with medical regimens during adolescencePediatric Clinics of North America; 27: 3-15.
41.
McGurk H., Glachan M. (1988) Children's conversations with adultsChildren and Society; 2:20- 34.
42.
McPherson A., MacPharlane A. (1988) What teenagers think about their healthHealth Visitor; 61 : 224-225.
43.
Mason C. (1993) Doing a research literature reviewNurse Researcher; 1(1): 42-55.
44.
Miller BA (1982) Theophylline compliance in adolescent patients with chronic asthmaJournal of Adolescent Health Care ; 3: 177-179
Porth C. (1982) Pathophysiology: Concepts of Altered Health StatesJ. B. Lippincott: Philadelphia.
47.
Rapoff MA, Christopherson ER (1982) Improving compliance in pediatric practicePediatric Clinics of North America; 29(2): 339-357.
48.
Roe B. ( 1993) Undertaking a critical review of the literatureNurse Researcher; 1(1): 31-42.
49.
Salter M. (1988) Altered Body Image: The Nurses RoleJohn Wiley and Sons: Chichester.
50.
Schafer L., Glasgow R., McCauil K., Dreher M. (1983) Adherence to IDDM regimens : relationships to psychosocial variables and metabolic controlDiabetes Care ; 6(5): 493-500.
51.
Smith I. (1999) The lost secret of asthma compliance: enhancing compliance amongst asthmaticsJournal for Respiratory Care Practitioners; 12(1): 53-54, 57-58.
52.
Steel JM, Young RJ, Lloyd GG, Maclntyre Cca. (1989) Abnormal eating attitudes in young insulin-dependent diabeticsBritish Journal of Psychiatry ; 155: 515-521.
53.
Stewart KS (1999) Adolescents with Chronic Illness: A Focus Upon Nonadherence to Health Advice. Unpublished BA (Hons) Thesis : Oxford Brookes University.
54.
Stewart Truswell A. (1992) ABC of Nutrition. British Medical Journal : London
55.
Waterman P. (1994) Drug Abuse BriefingInstitute for the Study of Drug Dependency : London.
56.
Wayne Holden E, Friend M.Gault C., Kager V., Foltz L., White M. (1991) Family functioning and parental coping with childhood illness: relationships with self-competence, illness adjustment and regimen adherence behaviours in children attending diabetes summer camp In: Johnson JH, Bennett Johnson SB. (Eds.) Advances in Child Health Psychology.University of Florida Press: Gainesville, pp265-275.
57.
Weller BF (1989) Bailliere's Encyclopaedic Dictionary of Nursing and Health CareBailliere Tindall: London.
58.
West KP, Durant RH, Pendergrast R. (1993) An experiment test of adolescents' compliance with dental appointmentsJournal of Adolescent Health ; 14: 384-389.
59.
Wong D. (Ed.)( 1995) Nursing Care of Infants and ChildrenMosby: St. Louis.
60.
World Health Organisation. (1984) Health Promotion: A WHO Discussion Document on the Concepts and PrinciplesWHO: Geneva.
61.
Wysocki T. (1993) Association amongst teen-parents relationships - metabolic control and adjustment to diabetesJournal of Pediatric Psychology; 18(4): 441-452.
