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Abstract

This article considers ethical dilemmas concerning the protection of confidentiality that often arise in carrying out ethnographic research. A number of problematic assumptions are highlighted that generally (implicitly or explicitly) guide the practice of contemporary research ethics review committees: (1) ethical rules are context free; (2) there is always an ethical ‘right answer’; (3) there is an objective position from which to judge what one ought ethically to do. Notably, this is a position of emotional detachment from the situation; (4) this objectively identified ethical position can be articulated in explicit and unambiguous public language. The troublesome character of these assumptions is raised in the context of fifteen years of ethnographic research among African American families in clinical settings within the urban United States, with special attention to an ongoing relationship with one research participant the author has known for eight years. Finally the article suggests an alternative ethical framework drawn from recent philosophical work in an Aristotelian-inspired ‘virtue ethics’.

Keywords

ethnography informed consent medical anthropology narrative virtue ethics

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References

Adams, R. (1981). Ethical principles in anthropological research: One or many? Human Organization, 40, 155-160 .

American Anthropological Association . (1998). Code of ethics of the American Anthropological Association. Retrieved from http://www.aaanet.org/committees/ethics/ethcode.htm

Arendt, H. (1958). The human condition. Chicago, IL: University of Chicago Press .

Aristotle (1985). Nicomachean ethics. Trans. T. Irwin. Indianapolis: Hackett Publishing . (Original work published 350 BC.)

Bruner, J. (1986). Actual minds, possible worlds. Cambridge, MA: Harvard University Press .

Bruner, J. (1990). Acts of meaning. Cambridge, MA: Harvard University Press .

Bruner, J. (1996). The culture of education. Cambridge, MA: Harvard University Press .

Caplan, P. , Ed. (2003). The ethics of anthropology: Debates and dilemmas. London: Routledge .

Carr, D. (1986). Time, narrative, and history. Bloomington, IN: Indiana University Press .

10.

Cassell, J. (1980). Ethical principles for conducting fieldwork . American Anthropological Association, 82, 28-41 .

11.

Christakis, N. (1992). Ethics are local: Engaging cross-cultural variation in the ethics for clinical research . Social Science and Medicine, 35, 1079-1091 .

12.

Estroff, S. (1995). Whose story is it anyway? In K.S. Toombs , D. Bernard and R.A. Carson (Eds.), Chronic illness: From experience to policy, pp. 77-102. Bloomington, IN: Indiana University Press .

13.

Fluehr-Lobban, C. (1993). An ethically conscious anthropology . Anthropology Newsletter, 34, 1-4 .

14.

Fluehr-Lobban, C. (1998). Ethics. In H.R. Bernard (Ed.), Handbook of methods in cultural anthropology, pp. 173-202. Walnut Creek, CA: Alta Mira Press .

15.

Fluehr-Lobban, C. (2003). Ethics and the profession of anthropology: Dialogue for ethically conscious practice, 2nd edn. Walnut Creek, CA: Alta Mira Press .

16.

Gerlach, J. (2002). Bioethics inside the beltway: What should IRBs consider when applying the privacy rule to research? Kennedy Institute of Ethics Journal, 12, 299-303 .

17.

Givens, D. (1993). Ethics of confidentiality . Anthropology Newsletter, 34, 37 .

18.

Gordon, E. (2000). When oral consent will do . Field Methods, 12, 235-238 .

19.

Gordon, E. (2003). Trials and tribulations of navigating IRBs: Anthropological and biomedical perspectives of ‘risk’ in conducting human subjects . Research. Anthropological Quarterly, 76, 299-320 .

20.

Jorgensen, J. (1971). On ethics and anthropology . Current Anthropology, 12, 321-334 .

21.

Kaufman, S. (1997). The World War II plutonium experiments: Contested stories and their lessons for medical research and informed consent . Culture, Medicine and Psychiatry, 21, 161-197 .

22.

MacIntyre, A. (1981). After virtue: A study in moral theory. Notre Dame, IN: University of Notre Dame Press .

23.

Marshall, P. (2003). Human subject protections, institutional review boards, and cultural anthropological research . Anthropological Quarterly, 76, 269-285 .

24.

Murdoch, I. (1967). Sovereignty of good and other concepts. Cambridge: Cambridge University Press .

25.

Murphy, M. and Johannsen, A. (1990). Ethical obligations and federal regulations in ethnographic research and anthropological education . Human Organization, 49, 127-134 .

26.

Newton, A.Z. (1995). Narrative ethics. Cambridge: Harvard University Press .

27.

Nussbaum, M. (1986). The fragility of goodness: Luck and ethics in Greek tragedy and philosophy. New York: Cambridge University Press .

28.

Nussbaum, M. (1990). Love’s knowledge. New York: Oxford University Press .

29.

Nussbaum, M. (2001). Upheavals of thought: The intelligence of emotions. Cambridge: Cambridge University Press .

30.

Pels, P. (1999). Professions of duplexity: A prehistory of ethical codes in anthropology . Current Anthropology, 40, 101-136 .

31.

Plattner, S. (2002). The protection of human subjects in anthropological research . Anthropology News, 43, 22 .

32.

Plattner, S. (2003). Human subjects protection and cultural anthropology . Anthropological Quarterly, 76, 287-297 .

33.

Ricoeur, P. (1984) Time and narrative, vol. 1. Trans. K. McLaughlin and D. Pellauer. Chicago, IL: University of Chicago Press . (Original work published 1983.)

34.

Ricoeur, P. (1992). Oneself as another. Chicago, IL: University of Chicago Press .

35.

Scheper-Hughes, N. (1995). The primacy of the ethical: Propositions for a militant anthropology . Current Anthropology, 36, 409-440 .

36.

Skomal, S. (1993). The ethics of fieldwork . Anthropology Newsletter, 34, 1-26 .

37.

Taylor, C. (1979). Interpretation and the sciences of man. In P. Rabinow and W. Sullivan (Eds.), Interpretive social science: A reader, pp. 225-241. Berkeley, CA: University of California Press .

38.

Toulmin, S. (2001). Return to reason. Cambridge, MA: Harvard University Press .

39.

Trend, M.G. (1978). Freedom, confidentiality, and regulation: A dissent . Human Organization, 37, 88-89 .

40.

Wax, M. (1977). On fieldworkers and those exposed to fieldwork: Federal regulations and moral issues . Human Organization, 36, 321-328 .

41.

Wax, M. (1995). Informed consent in applied research: A comment . Human Organization, 54, 330-331 .

42.

Weindling, P. (2001). The origins of informed consent: The International Scientific Commission on Medical War Crimes, and the Nuremberg Code . Bulletin of the History of Medicine, 75, 37-71 .

43.

Williams, B. (1981). Moral luck: Philosophical papers 1973-1980. Cambridge: Cambridge University Press .

Toward a vulnerable ethics of research practice

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