Neurodiversity and community-led rights-based movements: Barriers and opportunities for global research partnerships

Abebe T. (2019). Reconceptualising children’s agency as continuum and interdependence. Social Sciences, 8(3), 81. https://doi.org/10.3390/socsci8030081

Addlakha R. (2018). South Asia and disability studies: Redefining boundaries and extending horizons. Asia Pacific Journal of Education, 38(1), 147–149. https://doi.org/10.1080/02188791.2017.1355883

Botha M. (2021). Academic, activist, or advocate? Angry, entangled, and emerging: A critical reflection on autism knowledge production. Frontiers in Psychology, 12, 727542. https://doi.org/10.3389/fpsyg.2021.727542

Botha M. Gillespie-Lynch K. (2022). Come as you are: Examining autistic identity development and the neurodiversity movement through an intersectional lens. Human Development, 66(2), 93–112. https://doi.org/10.1159/000524123

Bottema-Beutel K. Kapp S. K. Lester J. N. Sasson N. J. Hand B. N. (2021). Avoiding ableist language: Suggestions for autism researchers. Autism in Adulthood, 3(1), 18–29. http://doi.org/10.1089/aut.2020.0014

Chaudhuri M. M. Mkumba L. Raveendran Y. Smith R. D. (2021). Decolonising global health: Beyond ‘reformative’ roadmaps and towards decolonial thought. BMJ Global Health, 6, e006371. https://doi.org/10.1136/bmjgh-2021-006371

Cheng Y. (2018). Rude and cold? Hong Kong’s cruel myths about autism go against ideal of inclusive society. South China Morning Post. https://www.scmp.com/comment/letters/article/2134483/rude-and-cold-hong-kongs-cruel-myths-about-autism-go-against-ideal

Chilisa B. (2019). Indigenous research methodologies (2nd ed.). SAGE.

Divan G. Vajaratkar V. Desai M. U. Strik-Lievers L. Patel V. (2012). Challenges, coping strategies, and unmet needs of families with a child with autism spectrum disorder in Goa, India. Autism Research, 5(3), 190–200. https://doi.org/10.1002/aur.1225

Ellis J. (2023). Imagining neurodivergent futures from the belly of the identity machine: Neurodiversity, biosociality, and strategic essentialism. Autism in Adulthood. Advance online publication. http://doi.org/10.1089/aut.2021.0075

Gibson M. F. Sakamoto I. Monroe H. (2021). Decolonising neurodiversity: Implications for social work education. Presentation at the CASWE-ACFTS Conference. https://uwaterloo.ca/scholar/m23gibso/presentations

Giwa Onaiwu M . (2020). ‘They don’t know, don’t show, or don’t care’: Autism’s White privilege problem. Autism in Adulthood, 2(4), 270–272. https://doi.org/10.1089/aut.2020.0077

Goodley D. Lawthom R. Liddiard K. Runswick-Cole K. (2019). Provocations for critical disability studies. Disability & Society, 34(6), 972–997. https://doi.org/10.1080/09687599.2019.1566889

Ho P. S. Y. Jackson S. Cao S. Kwok C. (2018b). Sex With Chinese characteristics: Sexuality research in/on 21st-century China. Journal of Sex Research, 55(4–5), 486–521. https://doi.org/10.1080/00224499.2018.1437593

Ho P. S. Y. Kong S. Huang Y. T. (2018a). Democratising qualitative research methods: Reflections on Hong Kong, Taiwan and China. Qualitative Social Work, 17, 469–481. https://doi.org/10.1177/1473325018764133

Huang S. (2020). International rights and local realities: Transnational allies of the disability rights movement in China. In Carey A. C. Ostrove J. M. Fannon T. (Eds.), Disability alliances and allies: Opportunities and challenges (pp. 19–39). Emerald. https://doi.org/10.1108/S1479-354720200000012004

Kapp S. K. (2023). Profound concerns about ‘profound autism’: Dangers of severity scales and functioning labels for support needs. Education Sciences, 13(2), 106. https://doi.org/10.3390/educsci13020106

Kapp S. K. Gillespie-Lynch K. Sherman L. E. Hutman T. (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59–71. https://doi.org/10.1037/a0028353

Kara H. (2022). Indigenous research methods: Another reading list. https://helenkara.com/2022/04/28/indigenous-research-methods-another-reading-list/

Khan M. Abimbola S. Aloudat T. Capobianco E. Hawkes S. Rahman-Shepherd A. (2021). Decolonising global health in 2021: A roadmap to move from rhetoric to reform. BMJ Global Health, 6, e005604. https://doi.org/10.1136/bmjgh-2021-005604

Kourti M. (2022). Autism, race, ethnicity and the whiteness of the neurodiversity movement. Presentation at the Autscape Conference, Derbyshire. http://www.autscape.org/2022/programme/presentations

Kwete X. Tang K. Chen L. Ren R. Chen Q. Wu Z. Cai Y. Li H. (2022). Decolonizing global health: What should be the target of this movement and where does it lead us? Global Health Research & Policy, 7, 3. https://doi.org/10.1186/s41256-022-00237-3

Kwok K. Kwok D. K. (2020). More than comfort and discomfort: Emotion work of parenting children with autism in Hong Kong. Children and Youth Services Review, 118, 105456. https://doi.org/10.1016/j.childyouth.2020.105456

Lam G. Y. H. Sabnis S. Migueliz Valcarlos M. Wolgemuth J. R. (2021). A Critical review of academic literature constructing well-being in autistic adults. Autism in Adulthood, 3(1), 61–71. https://doi.org/10.1089/aut.2020.0053

Leadbitter K. Buckle K. L. Ellis C. Dekker M. (2021). Autistic self-advocacy and the neurodiversity movement: Implications for autism early intervention research and practice. Frontiers in Psychology, 12, 635690. https://doi.org/10.3389/fpsyg.2021.635690

Milton D. (2022). A personal account of neurodiversity, academia and activism. In Milton D. Ryan S. (Eds.), The Routledge international handbook of critical autism studies (1st ed., pp. 150–156). Routledge.

Ndlovu-Gatsheni S. J. (2015). Decoloniality as the future of Africa. History Compass, 13(10), 485–496.

Pellicano L. den Houting J. (2022). Annual research review: Shifting from ‘normal science’ to neurodiversity in autism science. Journal of Child Psychiatry & Psychology, 63(4), 381–396.

Poluha E. (2008). The world of boys and girls in rural and urban Ethiopia. Forum for Social Studies.

Poon F. Lin A. (2011). Creating a school program to cater to learner diversity: A dialogue between a school administrator and an academic. In Hawkins M. R. (Ed.), Social justice language teacher education (pp. 124–161). Multilingual Matters.

Poon F. Lin A. (2015). Building inclusive education from the ground up: The transformative experience of HKRSS Tai Po Secondary School (Hong Kong 2006–2013). In Rodríguez E. (Ed.), Pedagogies and curriculums to (re)imagine public education: Transnational tales of hope and resistance (pp. 141–155). Springer.

Quicksand. (2023). Quicksand; Design, thinking and innovation. http://quicksand.co.in/

Sangath. (2023). Sangath: Healing minds, inspiring lives. https://sangath.in/

Schalk S. (2022). Black disability politics. Duke University Press.

Shaw S. C. K. Doherty M. McCowan S. Eccles J. A. (2022). Towards a neurodiversity-affirmative approach for an over-represented and under-recognised population: Autistic adults in outpatient psychiatry. Journal of Autism and Developmental Disorders, 52, 4200–4201. https://doi.org/10.1007/s10803-022-05670-4

Shaw S. C. K. McCowan S. Doherty M. Grosjean B. Kinnear M. (2021). The neurodiversity concept viewed through an autistic lens. The Lancet Psychiatry, 8(8), 654–655. https://doi.org/10.1016/S2215-0366(21)00247-9

Smith L. T. (1999). Decolonizing methodologies: Research and indigenous peoples. Zed Books.

Staples J. (2020). Decolonising disability studies? Developing South Asia-specific approaches to understanding disability. In Mehrotra N. (Ed.), Disability studies in India: Interdisciplinary perspectives (pp. 25–41). Springer.

Tilahun D. Hanlon C. Araya M. Davey B. Hoekstra R.A. Fekadu A. (2017). Training needs and perspectives of community health workers in relation to integrating child mental health care into primary health care in a rural setting in sub-Saharan Africa: A mixed methods study. International Journal of Mental Health Systems, 11, 1–11. https://doi.org/10.1186/s13033-017-0121-y

Thou C. K. (2017). A Revisit – The Swastika: A symbol of Buddhism or Nazism? Buddhism and Daily Living – Mangala Vihara Dhamma Fellowship (MVDF). https://buddhismanddailyliving.wordpress.com/2017/02/18/a-revisit-the-swastika-%E5%8D%90-a-symbol-of-buddhism-or-nazism/

United Nations. (2006). Convention on the rights of persons with disabilities. https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities

Vaidya S. (2020). Disorder, disability, difference: (Re)presenting autism in India. In Mehrotra N. (Ed.), Disability studies in India: Interdisciplinary perspectives (pp. 43–59). Springer.

Yenus Z. (2012). Autism activist: Zemi Yenus. Presentation for TEDx ADDIS. https://www.youtube.com/watch?v=0k8QrkAd9TM