More young people with a diagnosis of autism are enrolling and successfully completing higher education courses than ever before and this is set to increase; however, while there is a burgeoning body of literature surrounding the transition into this stage of education, there is a paucity of research that investigates the transition as this population exit higher education. This exploratory qualitative study is one of the first to identify the specific experiences of young autistic adults making this transition, drawing on semi-structured interviews with 21 students and recent graduates. Findings indicate that transition out of higher education is challenging on both practical and psychological levels, manifested by feelings of anxiety and loss. However, there is also evidence that the same phenomenon can also be understood as a positive departure with important implications for identity development. Findings are discussed in relation to future research and implications for practice in higher education institutions.
AccardoALKuderSJWoodruffJ (2018). Accommodations and support services preferred by college students with autism spectrum disorder. Autism. Advance online publication. doi:10.1177/1362361318760490
2.
AdreonDDurocherJS (2007). Evaluating the college transition needs of individuals with high-functioning autism spectrum disorders. Intervention in School and Clinic, 42, 271–279.
3.
AlqahtaniMM (2012). Understanding autism in Saudi Arabia: A qualitative analysis of the community and cultural context. Journal of Pediatric Neurology, 10, 15–22.
4.
AndersonAHCarterMStephensonJ (2018). Perspectives of university students with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 48, 651–665.
5.
AndersonKAMcDonaldTAEdsallDSmithLETaylorJL (2016). Postsecondary expectations of high-school students with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 31, 16–26.
6.
ArnettJJ (2000). Emerging adulthood: A theory of development from the late teens through the twenties. The American Psychologist, 55, 469–480.
7.
ArnettJJ (2004a). Adolescence and emerging adulthood: A cultural approach. Upper Saddle River, NJ: Pearson Prentice Hall.
8.
ArnettJJ (2004b). Emerging adulthood: The winding road from the late teens through the twenties. New York, NY: Oxford University Press.
9.
ArnettJJŽukauskienėRSugimuraK (2014). The new life stage of emerging adulthood at ages 18–29 years: Implications for mental health. The Lancet Psychiatry, 1, 569–576.
10.
BaldwinSCostleyD (2016). The experiences and needs of female adults with high-functioning autism spectrum disorder. Autism, 20, 483–495.
11.
BarkleyRA (2012). Executive functions: What they are, how they work, and why they evolved. New York, NY: Guilford Press.
12.
BarnhillGP (2014). Supporting students with Asperger syndrome on college campuses: Current practices. Focus on Autism and Other Developmental Disabilities, 1(7), 73–89.
13.
Baron-CohenSWheelwrightSSkinnerRMartinJClubleyE (2001). The Autism-Spectrum Quotient (AQ): Evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians. Journal of Autism and Developmental Disorders, 31, 5–17.
14.
BolourianYZeedykSMBlacherJ (2018). Autism and the university experience: Narratives from students with neurodevelopmental disorders. Journal of Autism and Developmental Disorders, 48, 3330–3343.
15.
BrosnanMMillsE (2016). The effect of diagnostic labels on the affective responses of college students towards peers with ‘Asperger’s Syndrome’ and ‘Autism Spectrum Disorder’. Autism, 20, 388–394.
16.
CaiRYRichdaleAL (2016). Educational experiences and needs of higher educational students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46, 31–41.
17.
CamarenaPMSarigianiPA (2009). Postsecondary educational aspirations of high-functioning adolescents with autism spectrum disorders and their parents. Focus on Autism and Other Developmental Disabilities, 24, 115–128.
18.
CashinA (2018). The transition from university completion to employment for students with autism spectrum disorder. Issues in Mental Health Nursing. Advance online publication. doi:10.1080/01612840.2017.1401188
19.
ChenX (2009). Students who study science, technology, engineering, and mathematics (STEM) in postsecondary education (NCES 2009-161). Washington, DC: National Center for Education Statistics.
20.
ChownNRobinsonJBeardonLDowningJHughesLLeatherlandJ. . .MacGregorD (2017). Improving research about us, with us: A draft framework for inclusive autism research. Disability & Society, 32, 720–734.
21.
CoxBEThompsonKAndersonAMintzALocksTMorganL. . . WolzA (2017). College experiences for students with autism spectrum disorder: Personal identity, public disclosure, and institutional support. Journal of College Student Development, 58, 71–87.
22.
DenzinNKLincolnYS (Eds.). (2013). The landscape of qualitative research: Theories and issues. Thousand Oaks, CA: SAGE.
23.
DillenburgerKJordanJMcKerrL (2016). School’s out forever: Postsecondary educational trajectories of students with autism. Australian Psychologist, 51, 304–315.
24.
DipeoluAOStorlieCJohnsonC (2015). College students with high-functioning autism spectrum disorder: Best practices for successful transition to the world of work. Journal of College Counselling, 18, 175–190.
25.
EliasRWhiteSW (2018). Autism goes to college: Understanding the needs of a student population on the rise. Journal of Autism and Developmental Disorders, 48, 732–746.
26.
ElsabbaghMDivanGKohYKimYSKauchaliSMarcínC. . . FombonneE (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5, 160–179.
27.
EnglishL (2018). Supporting the transition of autistic students into university life: Reflections on a specialist peer mentoring scheme. Good Autism Practice (GAP), 19, 63–67.
28.
FlemingAPMcMahonRJ (2012). Developmental context and treatment principles for ADHD among college students. Clinical Child and Family Psychology Review, 15, 303–329.
29.
Fletcher-WatsonSAdamsJBrookKCharmanTCraneLCusackJ. . . PellicanoE (2018). Making the future together: Shaping autism research through meaningful participation. Autism. Advance online publication. doi:10.1177/1362361318786721
30.
GelbarNWSmithIReichowB (2014). Systematic review of articles describing experience and supports of individuals with autism enrolled in college and university programs. Journal of Autism and Developmental Disorders, 44, 2593–2601.
31.
GiarelliERuttenbergJSegalA (2013). Bridges and barriers to successful transitioning as perceived by adolescents and young adults with Asperger syndrome. Journal of Paediatric Nursing, 28, 563–574.
32.
GobboKShmulskyS (2014). Faculty experience with college students with autism spectrum disorders: A qualitative study of challenges and solutions. Focus on Autism and Other Developmental Disabilities, 29, 13–22.
33.
GrayDE (2006). Coping over time: The parents of children with autism. Journal of Intellectual Disability Research, 50, 970–976.
34.
GurbuzEHanleyMRibyDM (2018). University students with autism: The social and academic experiences of university in the UK. Journal of Autism and Developmental Disorders. Advance online publication. doi:10.1007/s10803-018-3741-4
35.
HartDGrigalMWeirC (2010). Expanding the paradigm: Postsecondary education options for individuals with autism spectrum disorder and intellectual disabilities. Focus on Autism and Other Developmental Disabilities, 25(3), 134–150.
36.
HeinzWRMarshallVW (2003). Social dynamics of the life course: Transitions, institutions, and interrelations. Piscataway, NJ: Transaction Publishers.
37.
HendricksD (2010). Employment and adults with autism spectrum disorders: Challenges and strategies for success. Journal of Vocational Rehabilitation, 32, 125–134.
38.
HendricksDRWehmanP (2009). Transition from school to adulthood for youth with autism spectrum disorders: Review and recommendations. Focus on Autism and Other Developmental Disabilities, 24, 77–88.
HillierAGoldsteinJMurphyDTrietschRKeevesJMendesEQueenanA (2018). Supporting university students with autism spectrum disorder. Autism, 22, 20–28.
41.
JacksonSLHartLVolkmarFR (2018). Preface: Special Issue – College Experiences for Students with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 48(3), 639–642.
42.
JansenDPetryKCeulemansENoensIBaeyensD (2017). Functioning and participation problems of students with ASD in higher education: Which reasonable accommodations are effective?European Journal of Special Needs Education, 32(1), 71–88.
43.
KirbyAVBaranekGTFoxL (2016). Longitudinal predictors of outcomes for adults with autism spectrum disorder: Systematic review. OTJR: Occupation, Participation and Health, 36(2), 55–64.
44.
KuderSJAccardoA (2018). What works for college students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 722–731.
45.
LeeA (2014). Students with disabilities choosing science technology engineering and math (STEM) majors in postsecondary institutions. Journal of Postsecondary Education and Disability, 27, 261–272.
46.
LeeGKCarterEW (2012). Preparing transition-age students with high-functioning autism spectrum disorders for meaningful work. Psychology in the Schools, 49, 988–1000.
47.
LindstromLDorenBMethenyJJohnsonPZaneC (2007). Transition to employment: Role of the family in career development. Exceptional Children, 73, 348–366.
48.
MadriagaMGoodleyDHodgeNMartinN (2008). Enabling transition into higher education for students with Asperger syndrome. Sheffield, UK: Sheffield Hallam Press.
49.
MilesMBHubermanAMSaldanaJ (2013). Qualitative data analysis. Thousand Oaks, CA: SAGE.
50.
MossPMandyWHowlinP (2017). Child and adult factors related to quality of life in adults with autism. Journal of Autism and Developmental Disorders, 47, 1830–1837.
NewmanLWagnerMKnokeyAMMarderCNagleKShaverDWeiX (2011). The post-high school outcomes of young adults with disabilities up to 8 years after high school: A report from the National Longitudinal Transition Study-2 (NLTS2) (NCSER 2011-3005). Washington, DC: National Center for Special Education Research.
53.
NolanCGleesonCI (2016). The transition to employment: The perspectives of students and graduates with disabilities. Scandinavian Journal of Disability Research, 2(3), 1–15.
54.
PapayCKBambaraLM (2011). Postsecondary education for transition-age students with intellectual and other developmental disabilities: A national survey. Education and Training in Autism and Developmental Disabilities, 46, 78–93.
55.
PattonMQ (1990). Qualitative evaluation and research methods. Thousand Oaks, CA: SAGE.
56.
PillayYBhatCS (2012). Facilitating support for students with Asperger’s syndrome. Journal of College Student Psychotherapy, 26, 140–154.
57.
Pinder-AmakerS (2014). Identifying the unmet needs of college students on the autism spectrum. Harvard Review of Psychiatry, 22, 125–137.
58.
RouxAMShattuckPTCooperBPAndersonKAWagnerMNarendorfSC (2013). Postsecondary employment experiences among young adults with an autism spectrum disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 52, 931–939.
59.
RydzewskaE (2012). Destination unknown? Transition to adulthood for people with autism spectrum disorders. British Journal of Special Education, 39, 87–93.
60.
ShmulskySGobboKDonahueA (2015). Groundwork for success: A college transition program for students with ASD. Journal of Postsecondary Education and Disability, 28, 235–241.
61.
ShogrenKAPlotnerAJ (2012). Transition planning for students with intellectual disability, autism, or other disabilities: Data from the National Longitudinal Transition Study-2. Intellectual and Developmental Disabilities, 50, 16–30.
62.
Simmeborn-FleischerA (2012). Alienation and struggle: Everyday student-life of three male students with Asperger syndrome. Scandinavian Journal of Disability Research, 14, 177–194.
63.
TaylorJLSeltzerMM (2011). Employment and post-secondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism and Developmental Disorders, 41, 566–574.
64.
ThompsonCBölteSFalkmerTGirdlerS (2018). To be understood: Transitioning to adult life for people with Autism Spectrum Disorder. PLoS ONE, 13(3), e0194758.
65.
TintAWeissJA (2018). A qualitative study of the service experiences of women with autism spectrum disorder. Autism, 22(8), 928–937.
66.
VanBergeijkEKlinAVolkmarF (2008). Supporting more able students on the autism spectrum: College and beyond. Journal of Autism and Developmental Disorders, 38(7), 1359–1370.
67.
Van HeesVMoysonTRoeyersH. (2015). Higher education experiences of students with autism spectrum disorder: Challenges, benefits and support needs. Journal of Autism and Developmental Disorders, 45, 1673–1688.
68.
VincentJPottsMFletcherDHodgesSHowellsJMitchellALedgerT (2017). ‘I think autism is like running on Windows while everyone else is a Mac’: Using a participatory action research approach with students on the autistic spectrum to rearticulate autism and the lived experience of university. Educational Action Research, 25, 300–315.
69.
WalkerDM (2012). Asperger’s/autistic spectrum disorder project: Transition from higher education to the workplace. Journal of the National Institute for Career Education and Counselling, 28(1), 51–58.
70.
WardDWebsterA (2018). Understanding the lived experiences of university students with Autism Spectrum Disorder (ASD): A phenomenological study. International Journal of Disability, Development and Education, 65, 373–392.
71.
WeiXChristianoERJenniferWYBlackorbyJShattuckPNewmanLA (2014). Postsecondary pathways and persistence for STEM versus non-STEM majors: Among college students with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 44, 1159–1167.
72.
WeiXWagnerMHudsonLYuJWShattuckP (2015). Transition to adulthood: Employment, education, and disengagement in individuals with autism spectrum disorders. Emerging Adulthood, 3, 37–45.
73.
WhiteSWEliasRCapriola-HallNNSmithICConnerCMAsselinSB. . .MazefskyCA (2017). Development of a college transition and support program for students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47, 3072–3078.
74.
ZagerDAlpernCS (2010). College-based inclusion programming for transition-age students with autism. Focus on Autism and Other Developmental Disabilities, 32, 768–773.
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