Although data from parent-implemented Naturalistic Developmental Behavioral Interventions have shown positive effects on decreasing core symptoms of autism, there has been limited examination of the effectiveness of Naturalistic Developmental Behavioral Interventions in community settings. In addition, parent perspectives of their involvement in parent-implemented early intervention programs have not been well studied. Using both qualitative and quantitative data to examine parent perspectives and the perceived feasibility of parent training by community providers, 13 families were followed as they received training in the Naturalistic Developmental Behavioral Intervention, Project ImPACT. Data indicate that parent training by community providers is feasible and well received, and parents find value in participating in intervention and perceive benefit for their children. Recommendations for adaptation of program elements and future research are discussed.
AldredCGreenJAdamsC (2004) A new social communication intervention for children with autism: pilot randomised controlled treatment study suggesting effectiveness. Journal of Child Psychology and Psychiatry45(8): 1420–1430.
2.
BaileyDBHebbelerKScarboroughA. (2004) First experiences with early intervention: a national perspective. Pediatrics113(4): 887–896.
3.
BondyEBrownellMT (2004) Getting beyond the research to practice gap: researching against the grain. Teacher Education and Special Education27: 47–56.
4.
BourqueLFielderEP (2003) How to Conduct Telephone Surveys, vol. 4. Thousand Oaks, CA: SAGE.
5.
Brookman-FrazeeLStahmerACLewisK. (2012) Building a research-community collaborative to improve community care for infants and toddlers at-risk for autism spectrum disorders. Journal of Community Psychology40(6): 715–734.
6.
BuescherAVCidavZKnappM. (2014) Costs of autism spectrum disorders in the United Kingdom and the United States. JAMA Pediatrics168(8): 721–728.
7.
Centers for Disease Control and Prevention (CDC) (2014) Prevalence of autism spectrum disorders—autism and developmental disabilities monitoring network, United States, 2010. Morbidity and Mortal Weekly Report (MMWR)63: 1–19.
8.
ChorpitaBMuellerC (2008) Toward new models for research, community, an consumer partnerships: some guiding principles and an illustration. Clinical Psychology: Science and Practice15(2): 144–148.
9.
ChorpitaBYimLMDonkervoetJC. (2002) Toward large scale implementation of empirically supported treatments for children: a review and observations by the Hawaii Empirical Basis to Services Task Force. Clinical Psychology: Science and Practice9(2): 165–190.
10.
CoogleCGGueretteARHanlineMF (2013) Early intervention experiences of families of children with an autism spectrum disorder: a qualitative pilot study. Early Childhood Research & Practice15(1).
11.
DawsonG (2008) Research: early behavioral intervention, brain plasticity, and the prevention of autism spectrum disorder. Development and Psychopathology20(3): 775–803.
12.
DawsonGRogersSMunsonJ. (2010) Randomized, controlled trial of an intervention for toddlers with autism: the Early Start Denver Model. Pediatrics125(1): e17–e23.
13.
DurlakJADuPreEP (2008) Implementation matters: a review of research on the influence of implementation on program outcomes and the factors affecting implementation. American Journal of Community Psychology41: 327–350.
14.
EstesAVismaraLMercadoC. (2014) The impact of parent-delivered intervention on parents of very young children with autism. Journal of Autism and Developmental Disorders44(2): 353–365.
15.
FreulerACBaranekGTTashjianC. (2013) Parent reflections of experiences of participating in a randomized controlled trial of a behavioral intervention for infants at risk of autism spectrum disorders. Autism18(5): 519–528.
16.
GlaserBStraussA (1967) The Discovery of Grounded Theory: Strategies for Qualitative Research. Chicago, IL: Aldine.
17.
HessKLMorrierMJHeflinLJ. (2008) Autism treatment survey: services received by children with autism spectrum disorders in public school classrooms. Journal of Autism and Developmental Disorders38(5): 961–971.
18.
HoagwoodKBurnsBJKiserL. (2001) Evidence-based practice in child and adolescent mental health services. Psychiatric Services52(9): 1179–1189.
19.
HuangLNHepburnMSEspirituRC (2003) To be or not to be… Evidence-based?Data Matters: An Evaluation Newsletter6: 1–3.
20.
HumeKSBelliniSPrattC (2005) The usage and perceived outcomes of early intervention and early programs for young children with autism spectrum disorder. Topics in Early Childhood Special Education25(4): 195–207.
21.
IngersollB (2009) Increasing generalizations through the use of parent-mediated interventions. In: WhalenC (ed.) Real Life, Real Progress: A Practical Guide for Parents and Professional on Generalization for Children with Autism Spectrum Disorders. Baltimore, MD: Brookes Publishing Company, pp. 173–194.
22.
IngersollB (2011) Child and family outcomes for children with autism participating in the Teaching Social Community Curriculum. Paper presented at the International Meeting for Autism Research, San Diego, CA, 12–14 May 2011.
23.
IngersollBDvortcsakA (2010) Teaching Social Communication to Children with Autism: A Practitioner’s Guide to Parent Training. New York: Guilford Press.
24.
IngersollBDvortcsakAWhalenC. (2005) The effects of a developmental, social-pragmatic language intervention on rate of expressive language production in young children with autistic spectrum disorders. Focus on Autism and Other Developmental Disabilities20(4): 213–222.
25.
IngersollBMeyerKBonterN. (2012) A comparison of developmental social-pragmatic and naturalistic behavioral interventions on language use and social engagement in children with autism. Journal of Speech, Language, and Hearing Research55(5): 1301–1313.
26.
JarbrinkKKnappM (2001) The economic impact of autism in Britain. Autism5(1): 7–22.
27.
JonesLWellsK (2007) Strategies for academic and clinician engagement in community-participatory partnered researchThe Journal of the American Medical Association197(4): 407–410.
28.
KaiserAPHancockTBNietfeldJP (2000) The effects of parent-implemented enhanced milieu teaching on the social communication of children who have autism. Early Education and Development11(4): 423–442.
29.
KasariCLawtonKShihW. (2014) Caregiver-mediated intervention for low-resourced preschoolers with autism: an RCT. Pediatrics134(1): e72–e79.
30.
KieslerCA (1971) The Psychology of Commitment: Experiments Linking Behavior to Belief. Cambridge, MA: Academic Press.
31.
KoegelLKBimbelaASchreibmanL (1996) Collateral effects of parent training on family interactions. Journal of Autism and Developmental Disorders26(3): 347–359.
32.
LordCRisiSDiLavorePS. (2006) Autism from 2 to 9 years of age. Archives of General Psychiatry63(6): 694–701.
33.
LorigKLaurentDDPlantK. (2013) The components of action planning and their associations with behavior and health outcomes. Chronic Illness10(1): 50–59.
34.
McNaughtonD (1994) Measuring parent satisfaction with early childhood intervention programs. Topics in Early Childhood Special Education14(1): 26–48.
35.
MaglioneMAGansDDasL. (2012) Nonmedical interventions for children with ASD: recommended guidelines and further research needs. Pediatrics130(Suppl. 2): S169–S178.
36.
MahoneyGPeralesF (2003) Using relationship-focused intervention to enhance the social-emotional functioning of young children with autism spectrum disorders. Topics in Early Childhood Special Education23(2): 77–89.
MooreTRSymonsFJ (2011) Adherence to treatment in a behavioral intervention curriculum for parents of children with autism spectrum disorder. Behavior Modification35(6): 570–594.
39.
NAMH Council (2001) Blueprint for Change: Research on Child and Adolescent Mental Health. Bethesda, MD: NIMH.
40.
National Research Council (2001) Educating Children with Autism. Washington, DC: National Academy Press.
41.
National Standards Project (NSP) (2009) National Standards Report. Randolph, MA: National Autism Center.
42.
NaylorPJWharf-HigginsJBlairL. (2002) Evaluating the participatory process in a community-based heart health project. Social Science & Medicine55(7): 1173–1187.
43.
PennerMRayarMBashirN. (2015) Cost-effectiveness analysis comparing pre-diagnosis autism spectrum disorder (ASD)-Targeted intervention with Ontario’s autism intervention program. Journal of Autism and Developmental Disorders45: 2833–2847.
44.
PerkinsMBJensenPSJaccardJ. (2007) Applying theory-driven approaches to understanding and modifying clinicians’ behavior: what do we know?Psychiatric Services58(3): 342–348.
45.
ReedSStahmerASuhrheinrichJ. (2013) Stimulus overselectivity in typical development: implications for teaching children with autism. Journal of Autism and Developmental Disorders43(6): 1249–1257.
46.
RogersLVismaraAWagnerAL. (2014) Autism treatment in the first year of life: a pilot study of infant start, a parent-implemented intervention for symptomatic infants. Journal of autism and Other Developmental Disabilities44(12): 2981–2995.
47.
RogersSJ (1998) Empirically supported comprehensive treatments for young children with autism. Journal Clinical Child Psychology27: 168–179.
48.
SchreibmanLDawsonGStahmerAC. (2015) Naturalistic developmental behavioral interventions: empirically validated treatments for autism spectrum disorders. Journal of Autism and Developmental Disorders45(8): 2411–2428.
49.
SchwartzIS (1999) Controversy or lack of consensus? Another way to examine treatment alternatives. Topics in Early Childhood Special Education19(3): 189–193.
50.
SolishAPerryA (2008) Parents’ involvement in their children’s behavioral intervention programs: parent and therapist perspectives. Research in Autism Spectrum Disorders2(4): 728–738.
51.
SolomonRVan EgerenLAMahoneyG. (2014) PLAY Project Home Consultation intervention program for young children with autism spectrum disorders: a randomized controlled trial. Journal of Developmental and Behavioral Pediatrics35(8): 475–485.
52.
Southam-GerowMHouriganSAllinR (2009) Adapting evidence-based mental health treatments in community settings: preliminary results from a partnership approach. Behavior Modification33(1): 82–103.
53.
StahmerA (2005) Teaching professionals and paraprofessionals to use pivotal response training: differences in training methods. Paper presented at the annual meeting of the California Association for Behavior Analysis, Dana Point, CA, 17–19 February 2005.
54.
StahmerAGistK (2001) The effects of an accelerated parent education program on technique mastery and child outcome. Journal of Positive Behavior Interventions3(2): 75–82.
55.
StahmerAPellecchiaM (2015) Moving towards a more ecologically valid model of parent-implemented interventions in autism. Autism19(3): 259–261.
56.
StahmerACollingsNMPalinkasLA (2005) Early intervention practices for children with autism: descriptions from community providers. Focus on Autism and Other Developmental Disabilities20(2): 66–79.
57.
StahmerARiethSRBrookman-FrazeeL. (2014) Proximal and distal outcomes from use of research-community partnerships to adapt evidence based practices for community ASD providers. Paper presented at the 9th biennial conference on research innovations in early intervention, San Diego, CA, 20–22 February 2014.
58.
StahmerASchreibmanLCunninghamAB (2010) Towards a technology of treatment individualization for young children with autism spectrum disorders. Brain Research1380: 229–239.
59.
SummersJAHoffmanLMarquisJ. (2005) Relationship between parent satisfaction regarding partnerships with professionals and age of child. Topics in Early Childhood Special Education25(1): 48–58.
60.
VismaraLAYoungGSStahmerAC. (2009) Dissemination of evidence-based practice: can we train therapists from a distance?Journal of Autism and Developmental Disorders39(12): 1636–1651.
61.
WellsKMMirandaJBruceML. (2004) Bridging community intervention and mental health services research. The American Journal of Psychiatry161: 955–963.
62.
WetherbyAMPrizantB (2002) Communication and Symbolic Behavior Scales Developmental Profile: Manual. Baltimore, MD: Brookes Publishing Company.
63.
WetherbyAMGuthrieWWoodsJ. (2014) Parent-implemented social intervention for toddlers with autism: an RCT. Pediatrics134(6): 1084–1093.
64.
WillmsDGBestJATaylorDW. (1990) A systematic approach for using qualitative methods in primary prevention research. Medical Anthropology Quarterly4(4): 391–409.
