Adolescent/young adult cancer survivors (AYACS) are diagnosed with cancer between 15 and 39 years of age. Improving AYACS’ survivorship quality is crucial—including improving social connectedness, a construct describing the quality, structure and function of social relationships. With better understanding of AYACS’ social connectedness, network-based interventions can be developed to foster social health. This study explored how a personal cancer diagnosis impacts AYACS’ social connectedness among 35 AYACS 15–25 years old. Three themes emerged through thematic analysis: (1) AYACS experience substantial heterogeneity related to social support needs; (2) AYACS leverage multiple relationships and resources when seeking support after a personal cancer diagnosis; (3) AYACS’ individual experiences were unique in that some noted positive changes, whereas others noted negative changes in relationships within social networks, specifically with peers. These findings create a foundation to develop social programming, foster peer relationships, and incorporate social science methods to aid intervention development to strengthen AYACS’ social connectedness.
BarakatLPGaltieriLRSzaldaD, et al. (2016) Assessing the psychosocial needs and program preferences of adolescents and young adults with cancer. Supportive Care in Cancer24(2): 823–832.
2.
BecofskyKMShookRPSuiX, et al. (2015) Influence of the source of social support and size of social network on all-cause mortality. Mayo Clinic Proceedings90(7): 895–902.
3.
BradleyBJGreeneAC (2013) Do health and education agencies in the United States share responsibility for academic achievement and health? A review of 25 years of evidence about the relationship of adolescents’ academic achievement and health behaviors. Journal of Adolescent Health52(5): 523–532.
4.
CaruMLevesqueARaoP, et al. (2022) A scoping review to map the evidence of physical activity interventions in post-treatment adolescent and young adult cancer survivors. Critical Reviews in Oncology/Hematology171: 103620.
5.
CatalanoRFHaggertyKPOesterleS, et al. (2004) The importance of bonding to school for healthy development: findings from the Social Development Research Group. Journal of School Health74(7): 252–261.
6.
ChardonMLBealSJBreenG, et al. (2021) Systematic review of substance use measurement tools in adolescent and young adult childhood cancer survivors. Journal of Adolescent and Young Adult Oncology11(4): 333–345.
7.
ChristiansenHLBingenKHoagJA, et al. (2015) Providing children and adolescents opportunities for social interaction as a standard of care in pediatric oncology. Pediatric Blood & Cancer62(Suppl 5): S724–S749.
8.
CocciaPFPappoASBeaupinL, et al. (2018) Adolescent and young adult oncology, version 2.2018, NCCN clinical practice guidelines in oncology. Journal of the National Comprehensive Cancer Network16(1): 66–97.
9.
CreswellJWCreswellJD (2017) Research Design: Qualitative, Quantitative, and Mixed Methods Approaches. Thousand Oaks, CA: Sage Publications.
10.
Duh-LeongCDreyerBPHuangTT, et al. (2021) Social capital as a positive social determinant of health: A narrative review. Academic Pediatrics21(4): 594–599.
11.
FitzgeraldAFitzgeraldNAherneC (2012) Do peers matter? A review of peer and/or friends’ influence on physical activity among American adolescents. Journal of Adolescence35(4): 941–958.
12.
GlaserBG (1965) The constant comparative method of qualitative analysis. Social Problems12(4): 436–445.
13.
Halpern-MeekinSManningWDGiordanoPC, et al. (2013) Relationship churning, physical violence, and verbal abuse in young adult relationships. Journal of Marriage and Family75(1): 2–12.
Holt-LunstadJ (2022) Social connection as a public health issue: The evidence and a systemic framework for prioritizing the “social” in social determinants of health. Annual Review of Public Health43: 193–213.
16.
HsiehHShannonSE (2005) Three approaches to qualitative content analysis. Qualitative Health Research15(9): 1277–1288.
17.
HuangICJonesCMBrinkmanTM, et al. (2018) Development of the functional social network index for adolescent and young adult cancer survivors. Cancer124(10): 2220–2227.
18.
HussonOZebrackBJAguilarC, et al. (2017) Cancer in adolescents and young adults: Who remains at risk of poor social functioning over time?Cancer123(14): 2743–2751.
19.
KirchhoffACYiJWrightJ, et al. (2012) Marriage and divorce among young adult cancer survivors. Journal of Cancer Survivorship6(4): 441–450.
20.
LeeCMCadiganJMRhewIC (2020) Increases in loneliness among young adults during the COVID-19 pandemic and association with increases in mental health problems. The Journal of Adolescent Health67(5): 714–717.
21.
LieNKLarsenTMBHaukenMA (2018) Coping with changes and uncertainty: A qualitative study of young adult cancer patients’ challenges and coping strategies during treatment. European Journal of Cancer Care27(6): e12743.
22.
MagsonNRFreemanJYARapeeRM, et al. (2021) Risk and protective factors for prospective changes in adolescent mental health during the COVID-19 pandemic. Journal of Youth and Adolescence50(1): 44–57.
23.
McGradyMEBredenbergDLDanziger-IsakovL, et al. (2021) Active and protected: Developing a “safer sex” handout for adolescents and young adults with cancer. Journal of Adolescent and Young Adult Oncology10(3): 351–354.
24.
MillerKDFidler-BenaoudiaMKeeganTH, et al. (2020) Cancer statistics for adolescents and young adults, 2020. CA: A Cancer Journal for Clinicians70(6): 443–459.
25.
National Cancer Institute (2024) Cancer stat facts: Cancer among adolescents and young adults (AYAs) (ages 15–39). Available at: https://seer.cancer.gov/statfacts/html/aya.html (accessed 9 January 2025).
26.
PescosolidoBA (1991) Illness careers and network ties: A conceptual model of utilization and compliance. Advances in Medical Sociology2: 161–184.
27.
RaoPSprochAUngemachM, et al. (2022) Life on pause: Lessons learned in creating an adolescent and young adult cancer survivor podcast. Journal of Adolescent and Young Adult Oncology11(4): 439–441.
28.
RaoPKazakAEDoerksenSE, et al. (2023) AYA-UNITE: Lessons learned on intervention development promoting social and physical health of adolescent/young adult cancer survivors. Journal of Adolescent and Young Adult Oncology12(6): 929–934.
29.
Ritt-OlsonAUngerJValenteT, et al. (2005) Exploring peers as a mediator of the association between depression and smoking in young adolescents. Substance Use & Misuse40(1): 77–98.
30.
SiraNLamsonAFosterCL (2020) Relational and spiritual coping among emerging and young adult cancer survivors. Journal of Holistic Nursing38(1): 52–67.
31.
SolarOIrwinA (2010) A conceptual framework for action on the social determinants of health. Social Determinants of Health Discussion Paper 2 (Policy and Practice). Geneva, Switzerland: World Health Organization.
32.
TeheraniAMartimianakisTStenfors-HayesT, et al. (2015) Choosing a qualitative research approach. Journal of Graduate Medical Education7(4): 669–670.
33.
ThomasJHardenA (2008) Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology8: 45.
34.
UchinoBN (2006) Social support and health: A review of physiological processes potentially underlying links to disease outcomes. Journal of Behavioral Medicine29(4): 377–387.
35.
UmbersonD (1987) Family status and health behaviors: Social control as a dimension of social integration. Journal of Health and Social Behavior28(3): 306–319.
36.
ValenteTWPalinkasLACzajaS, et al. (2015) Social network analysis for program implementation. PLoS One10(6): e0131712.
VetschJWakefieldCEMcGillBC, et al. (2018) Educational and vocational goal disruption in adolescent and young adult cancer survivors. Psychooncology27(2): 532–538.
39.
WarnerELKentEETrevinoKM, et al. (2016) Social well-being among adolescents and young adults with cancer: A systematic review. Cancer122(7): 1029–1037.
40.
WidmanLChoukas-BradleySHelmsSW, et al. (2016) Adolescent susceptibility to peer influence in sexual situations. Journal of Adolescent Health58(3): 323–329.
41.
ZebrackBJMillsJWeitzmanTS (2007) Health and supportive care needs of young adult cancer patients and survivors. Journal of Cancer Survivorship1(2): 137–145.
