The purpose of the study was to assess the psychometric properties of the parent-report version of the Sibling Perception Questionnaire (SPQ) in well-siblings. Participants were 200 caregivers of healthy children ages 9–17 years who had a sibling (ages 0–18 years) diagnosed with cancer, diabetes, cystic fibrosis, epilepsy, spina bifida, or congenital heart disease. The SPQ had acceptable internal consistency reliability for the total score (α = 0.83) and displayed acceptable convergent validity as evidenced by medium to large positive correlations with the Strengths and Difficulties Questionnaire and Pediatric Quality of Life Inventory 4.0 (r’s ranged from 0.39 to 0.56). The original four-factor model displayed a poor model fit (CFI = 0.6, RMSEA = 0.11, TLI = 0.55, SRMR = 0.14) in comparison to a revised, 14-item four-factor model (CFI = 0.92, RMSEA = 0.07, TLI = 0.90, SRMR = 0.06). The shortened, 14-item parent-report version of the SPQ largely demonstrated good psychometric properties and has the potential to reduce the burden of caregivers filling out the measure.
AltmanEHedekerDPetersonJL, et al. (1997) The Altman Self-Rating Mania Scale. Biological Psychology42(10): 948–955.
2.
AwangZ (2012) A Handbook on SEM Structural Equation Modelling: SEM Using AMOS Graphic (5th ed.). Kota Baru: Universiti Teknologi Mara Kelantan.
3.
BandalosD (2018) Measurement Theory and Applications for the Social Sciences. New York, NY: Guilford Publications.
4.
BarreraMChungJFlemingC (2004) A group intervention for siblings of pediatric cancer patients. Journal of Psychosocial Oncology22(2): 21–39.
5.
BastiaansenDKootHMBongersIL, et al. (2004) Measuring quality of life in children referred for psychiatric problems: Psychometric properties of the PedsQL™ 4.0 Generic Core Scales. Quality of Life Research13(2): 489–495.
6.
BaumannINiemitzMGoldbeckL (2017) Psychometrische Eigenschaften der deutschen Version des Sibling Perception Questionnaire (SPQ) [Psychometric properties of the German version of the Sibling Perception Questionnaire (SPQ)]. Psychotherapie, Psychosomatik, Medizinische Psychologie67(11): 485–490.
7.
BlackwellCElliottAJGanibanJ, et al. (2019) General health and life satisfaction in children with chronic illness. Pediatrics143(6): e20182988.
8.
BourdonKGoodmanRRaeDS, et al. (2005) The Strengths and Difficulties Questionnaire: U.S. normative data and psychometric properties. Journal of the American Academy of Child and Adolescent Psychiatry44(6): 557–564.
9.
ByrneBM (1994) Structural Equation Modeling With EQS and EQS/Windows. Thousand Oaks, CA: Sage Publications.
10.
CarpenterPSahlerO (1991) Sibling perception and adaptation to childhood cancer: Conceptual and methodological considerations. Advances in Child Health Psychology30: 193–205.
11.
CohenJ (1988) Statistical Power Analysis, 2nd edn.Hillsdale, NJ: Erlbaum.
12.
CohenM (1999) Families coping with childhood chronic illness: A research review. Families Systems & Health17(2): 149–164.
13.
ComreyA (1988) Factor-analytic methods of scale development in personality and clinical psychology. Journal of Consulting and Clinical Psychology56: 754–761.
14.
ComreyALeeH (1992) A First Course in Factor Analysis, 2nd edn.Hillsdale, NJ: Psychology Press.
15.
DinleyiciMÇarmanKBÖzdemirC, et al. (2020) Quality-of-life evaluation of healthy siblings of children with chronic illness. Balkan Medical Journal37(1): 34–42.
16.
FullertonTTotsikaVHainR, et al. (2017) Siblings of children with life-limiting conditions: Psychological adjustment and sibling relationships. Child: Care, Health & Development43(3): 393–400.
17.
GraffJ (2001) An evaluation of a modified intervention for siblings of children with chronic illness/disability. ProQuest Dissertations Publishing.
18.
GuiteJLobatoDKaoB, et al. (2004) Discordance between sibling and parent reports of the impact of chronic illness and disability on siblings. Children’s Health Care33(1): 77–92.
19.
GutierrezAHoranMLimbersCA (2023) A systematic review of the psychometric properties of the sibling perception questionnaire. Clinical Child Psychology and Psychiatry28(3): 1192–1216.
20.
HavermansCCroockIDVercruysseT, et al. (2015) Belgian siblings of children with a chronic illness: Is their quality of life different from their peers?Journal of Child Health Care19(2): 154–166.
21.
HavermansTEiserC (1994) Siblings of a child with cancer. Child: Care, Health and Development20: 309–322.
22.
HavermansTWuytackLDeboelJ, et al. (2011) Siblings of children with cystic fibrosis: Quality of life and the impact of illness. Child: Care, Health and Development37: 252–260.
23.
HuLBentlerP (1999) Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal6(1): 1–55.
24.
IBM Corp (2021) IBM SPSS Statistics for Windows, Version 28.0. Armonk, NY: IBM Corp.
25.
JacksonCRicherJEdgeJA (2008) Sibling psychological adjustment to type 1 diabetes mellitus. Pediatric Diabetes9(4pt1): 308–311.
26.
KiernanGGormleyMMacLachlanM (2004) Outcomes associated with participation in a therapeutic recreation camping programme for children from 15 European countries: Data from the ‘Barretstown Studies’. Social Science and Medicine59(5): 903–913.
27.
KimKwonS (2017) Initial psychometric properties of the Korean Altman Self-Rating Mania Scale: Preliminary validation study in a non-clinical sample. Psychiatry Investigation14(5): 562–567.
28.
LobatoDKaoB (2002) Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability. Journal of Pediatric Psychology27(8): 711–716.
29.
LobatoDKaoBPlanteW (2005) Latino sibling knowledge and adjustment to chronic disability. Journal of Family Psychology19(4): 625–632.
30.
MassieK (2010) Frequency and predictors of sibling psychological and somatic difficulties following pediatric cancer diagnosis. ProQuest Dissertations Publishing.
31.
MokkinkLVan der LeeJHGrootenhuisMA, et al. (2008) Defining chronic diseases and health conditions in childhood (0–18 years of age): National consensus in the Neatherlands. European Journal of Pediatrics167: 1441–1447.
32.
MorawskaCCalamRFraserJ (2015) Parenting interventions for childhood chronic illness: A review and recommendations for intervention design and delivery. Journal of Child Health Care19(1): 5–17.
NiemitzMGoldbeckL (2018) Outcomes of an enhancement study with additional psychoeducational sessions for healthy siblings of a child with cancer during inpatient family-oriented rehabilitation. Psycho-Oncology27(3): 892–899.
35.
NunnallyJ (1978) Psychometric Theory, 2nd edn.New York, NY: McGraw-Hill.
36.
PannucciCWilkinsE (2010) Identifying and avoiding bias in research. Plastic and Reconstructive Surgery126(2): 619–625.
37.
RaykovTMarcoulidesGA (2011) Introduction to Psychometric Theory. New York, NY: Routledge.
38.
SahlerOCarpenterJ (1989) Evaluation of a camp program for siblings of children with cancer. American Journal of Diseases of Children143(6): 690–696.
39.
SahlerORoghmannKJCarpenterPJ, et al. (1994) Sibling adaptation to childhood cancer collaborative study: Prevalence of sibling distress and definition of adaptation levels. Journal of Developmental and Behavioral Pediatrics15(5): 353–366.
40.
SawyerMAntoniouGToogoodI, et al. (2000) Childhood cancer: A 4-year prospective study of the psychological adjustment of children and parents. Journal of Pediatric Hematology and Oncology22(3): 214–220.
41.
SidhuRPassmoreABakerD (2006) The effectiveness of a peer support camp for siblings of children with cancer. Pediatric Blood & Cancer47(5): 580–588.
42.
SloperPWhileD (1996) Needs and responses of parents following the diagnosis of childhood cancer. Child Care Health Development22(3): 187–202.
43.
StabileMAllinS (2012) The economic costs of childhood disability. The Future of Children22(1): 65–96.
44.
StoneLJanssensJMVermulstAA, et al. (2015) The Strengths and Difficulties Questionnaire: Psychometric properties of the parent and teacher version in children aged 4–7. BMC Psychology3(1): 4.
45.
TaylorVCharmanTFuggleP (2001) Well sibling psychological adjustment to chronic physical disorder in a sibling: How important is maternal awareness of their illness attitudes and perceptions?Journal of Child Psychology and Psychiatry42(7): 953–962.
46.
Thibodeau-NielsenRPalermoFWhiteRE, et al. (2021) Child adjustment during COVID-19: The role of economic hardship, caregiver stress, and pandemic play. Frontiers in Psychology12: 716651.
47.
VarniJSeidMKurtinP (2001) The PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ version 4.0 Generic Core Scales in healthy and patient populations. Medical Care39: 800–812.
48.
VermaesIPVan SusanteAMvan BakelHJ (2012) Psychological functioning of siblings in families of children with chronic health conditions: A meta-analysis. Journal of Pediatric Psychology37: 166–184.
49.
WallanderJVarniJ (1992) Adjustment in children with chronic physical disorders: Programmatic research on a disability-stress-coping model. In: LaGrecaAMSiegelLJWallanderJL, et al. (eds) Stress and Coping in Child Health. New York, NY: The Guilford Press, pp.279–298.
50.
WilliamsP (1997) Siblings and pediatric chronic illness: A review of the literature. International Journal of Nursing Studies34(4): 312–323.
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