The study casts light on the organ donation decision-making process by exploring the experiences of families and physicians involved. Specifically, semi-structured interviews were conducted with 11 family members of 11 different donors and with 13 intensive care unit physicians. Data collection and analysis draws on the principles of Grounded Theory Methodology. Analysis indicated that in the accounts of both groups, organ donation is represented as a multi-faceted process that includes various social and ideological dilemmas. Overlap and mutual influence was found connecting the experiences of family members and those of physicians, highlighting the need for further education and training for physicians and aftercare for families.
AbdolmajidPNargesKMozhganJ (2018) Barriers to organ donation. Journal of Research in Medical and Dental Science6(2): 178–182.
2.
AlsaiedOBenerAAl MosalamaniY, et al. (2012) Knowledge and attitudes of health care professionals toward organ donation and transplantation. Saudi Journal of Kidney Diseases and Transplantation23(6): 1304–1310.
3.
BilgelHSadikogluGBilgelN (2006) Knowledge and attitudes about organ donation among medical students. Transplantation18: 91–99.
4.
BilligMCondorSEdwardsD, et al. (1988) Ideological Dilemmas: A Social Psychology of Everyday Thinking. London: SAGE.
5.
CharmazK (2006) Constructing Grounded Theory: A Practical Guide through Qualitative Analysis. London: SAGE.
6.
CohenEHoffnerG (2012) Gifts of giving: The role of empathy and perceived benefits to others and self in young adults’ decisions to become organ donors. Journal of Health Psychology181: 128–138.
FlemmingSCRedmondNWilliamsonDHZ, et al. (2020) Understanding the pros and cons of organ donation decision making: Decisional balance and expressing donation intentions among African Americans. Journal of Health Psychology25(10-11): 1612–1623.
9.
GlaserBGStraussA (1967) The Discovery of Grounded Theory, Strategies for Qualitative Research. Chicago, IL: Aldine.
10.
GordonEAguCSiminoffL, et al. (2017) Organ donation attitudes and behaviors among older Hispanic women and Hispanic community health workers: Formative research to inform a culturally-competent mobile health education intervention. Transplantation101: S60.
11.
HillEM (2016) Posthumous organ donation attitudes, intentions to donate and organ donor status. Examining the role of the big five personality dimensions and altruism. Personality and Individual Differences88: 182–186.
12.
JensenAM (2016) “Make sure somebody will survive from this”: Transformative practices of hope among Danish donor families. Medical Anthropology Quarterly30(3): 378–394.
13.
KotloffRBlosserSFuldaGJMaliniskyD, et al. (2015) Management of the potential organ donor in the ICU: Society of critical care medicine/American College of Chest Physicians/Association of Organ Procurement Organizations consensus statement. Critical Care Medicine43(6): 1291–1325.
14.
LauriMAAdamiJZ (2010) The need for increasing the retrieval of organs: Doctor’s attitudes towards opting-out. Malta Medical Journal22: 414–419.
15.
LongTSqueMAddington-HallJ (2008) Conflict rationalism: How family members cope with a diagnosis of brain stem death. Social Science and Medicine67(2): 253–261.
16.
MacveanEYuenEYNTooleyG, et al. (2020) Attitudes of intensive care and emergency physicians in Australia with regard to the organ donation process: A qualitative analysis. Journal of Health Psychology25(10-11): 1601–11.
17.
MillerJCurrieSO’CarrollRE (2019) “What if I’m not dead?”—Myth-busting and organ donation. British Journal of Health Psychology24(1): 141–158.
18.
MoloneyGWalkerI (2002) Talking about transplants: Social representations and the dialectical, dilemmatic nature of organ donation and transplantation. British Journal of Social Psychology41(2): 299–320.
19.
MoloneyGWalkerJCharltonT (2013) I do but don’t … The yes, but Factor in organ donation and transplantation. In: LauriMA (ed.) Organ Donation and Transplantation. New York: Nova Science, pp. 141–149.
20.
MorganSEHarissonTRAfifiWA, et al. (2008) In their own words: The reasons why people will (not) sign an organ donor card. Health Communication23(1): 23–33.
21.
MoscoviciS (1981) On social representations. Perspectives on everyday understanding. In: ForgasJ (ed.) Social Cognition. London: Academic Press, pp. 181–209.
22.
NizzaIEBrittonHPSmithJA (2014) “You have to die first”: Exploring the thoughts and feelings on organ donation of British women who have not signed up to be donors. Journal of Health Psychology21(5): 650–660.
23.
OrøyAStromskagKEGjengedalE (2013) Approaching families on the subject of organ donation: A phenomenological study of the experience of healthcare professionals. Intensive and Critical Care Nursing29(4): 202–211.
24.
OrmrodJARyderTChadwickRJ, et al. (2005) Experiences of families when a relative is diagnosed brain stem dead: Understanding of death, observation of brain stem testing and attitudes to organ donation. Anaesthesia60: 1002–1008.
25.
PotterJEdwardsD (2001) Discursive social psychology. In: RobinsonWPGilesH (eds) The New Handbook of Language and Social Psychology. Chichester: Wiley, pp. 103–118.
26.
PrescottJGardinerDHoggL, et al. (2019) How the mode of organ donation affects family behavior at the time of organ donation. Journal of Intensive Care Society20(3): 204–7.
27.
RiosARamirezPMartinezL, et al. (2006) Are personnel in transplant hospitals in favor of cadaveric organ donation? Multivariate attitudinal study in a hospital with a solid organ transplant program. Clinical Transplantation20(6): 743–754.
28.
SadalaMLorenconMCercalO, et al. (2006) Caring for organ donors: The intensive care unit physicians’ view. Heart Lung35: 190–197.
29.
SannerM (2007) Two perspectives on organ donation: Experiences of potential donor families and intensive care physicians of the same event. Journal of Critical Care22: 296–304.
30.
SharpeEMoloneyGSutherlandM, et al. (2017) The power of an immediate donor registration opportunity: Translating organ donation attitudes into registration behavior. Basic and Applied Social Psychology39(1): 49–59.
31.
SiegelJTAlvaroEM (2010) Understanding Organ Donation. Malden, MA: Willey Blackwell.
32.
SqueMLongTPayneS, et al. (2008) Why relatives do not donate organs for transplants: “Sacrifice” or “gift of life?”Journal of Advanced Nursing61(2): 134–144.
33.
SqueMPayneSClarkJM (2006) Gift of life or sacrifice? Key discourses for understanding of organ donors families’ decision-making. Mortality11(2): 117–132.
34.
VincentALoganL (2012) Consent for organ donation. British Journal of Anaesthesia108: 180–187.
