Hearing distressing voices is a key feature of psychosis. The time between voice onset and disclosure may be crucial as voices can grow in complexity. This study aimed to investigate barriers and enablers to early voice disclosure. In total, 20 voice hearers were interviewed, and Thematic Analysis was used to identify themes. Beliefs about the effect of disclosure on self and others acted as a barrier and enabler to voices being discussed. Voice hearing awareness should be increased among young people, the public, and care services. To support earlier disclosure, measures should be taken to increase skill among those likely to be the recipients of disclosure.
BayNBjørnestadJJohannessenJO, et al. (2016) Obstacles to care in first-episode psychosis patients with a long duration of untreated psychosis. Early Intervention in Psychiatry10(1): 71–76.
4.
BeavanVReadJCartwrightC (2011) The prevalence of voice-hearers in the general population: A literature review. Journal of Mental Health20(3): 281–292.
5.
BoydTGumleyA (2007) An experiential perspective on persecutory paranoia: A grounded theory construction. Psychology and Psychotherapy: Theory, Research and Practice80(1): 1–22.
6.
BoydellKMGladstoneBMVolpeT (2006) Understanding help seeking delay in the prodrome to first episode psychosis: A secondary analysis of the perspectives of young people. Psychiatric Rehabilitation Journal30(1): 54–60.
7.
BraunVClarkeV (2006) Using thematic analysis in psychology. Qualitative Research in Psychology3(2): 77–101.
8.
Bril-BarnivSMoranGSNaamanA, et al. (2017) A qualitative study examining experiences and dilemmas in concealment and disclosure of people living with serious mental illness. Qualitative Health Research27(4): 573–583.
9.
ByrneRMorrisonAP (2010) Young people at risk of psychosis: A user-led exploration of interpersonal relationships and communication of psychological difficulties. Early Intervention in Psychiatry4(2): 162–168.
10.
ClementSLassmanFBarleyE, et al. (2013) Mass media interventions for reducing mental health-related stigma. The Cochrane Database of Systematic Reviews7(7): CD009453.
11.
CoffeyMHewittJ (2008) “You don’t talk about the voices”: Voice hearers and community mental health nurses talk about responding to voice hearing experiences. Journal of Clinical Nursing17(12): 1591–1600.
12.
ComptonMTChienVHLeinerAS, et al. (2008) Mode of onset of psychosis and family involvement in help-seeking as determinants of duration of untreated psychosis. Social Psychiatry and Psychiatric Epidemiology43(12): 975–982.
13.
DanermarkBEkströmMJakobsenL, et al. (2002) Explaining Society: Critical Realism in the Social Sciences. Abingdon: Routledge.
14.
De JagerARhodesPBeavanV, et al. (2016) Investigating the lived experience of recovery in people who hear voices. Qualitative Health Research26(10): 1409–1423.
15.
De LooreEGuntherNDrukkerM, et al. (2011) Persistence and outcome of auditory hallucinations in adolescence: A longitudinal general population study of 1800 individuals. Schizophrenia Research127(1–3): 252–256.
GreeneK (2009) An integrated model of health disclosure decision-making. In: AfifiTAfifiW (eds) Uncertainty, Information Management, and Disclosure Decisions: Theories and Applications. Oxford: Routledge, pp. 226–253.
18.
GreeneK (2014) Disclosure of chronic illness varies by topic and target: The role of stigma and boundaries in willingness to disclose. In: PetrinoS (ed.) Balancing the Secrets of Private Disclosures. New York: Psychology Press, pp. 123–135.
19.
GulliverAGriffithsKMChristensenH (2010) Perceived barriers and facilitators to mental health help-seeking in young people: A systematic review. BMC Psychiatry10(1): 113.
20.
HazellCMHaywardMCavanaghK, et al. (2016) A systematic review and meta-analysis of low intensity CBT for psychosis. Clinical Psychology Review45: 183–192.
21.
McGlashanTH (1987) Recovery style from mental illness and long-term outcome. Journal of Nervous and Mental Diseases175(11): 681–685.
22.
McGlashanTH (1999) Duration of untreated psychosis in first-episode schizophrenia: Marker or determinant of course?Biological Psychiatry46(7): 899–907.
23.
McGorryPDTantiCStokesR, et al. (2007) headspace: Australia’s National Youth Mental Health Foundation-where young minds come first. The Medical Journal of Australia187(7): S68–S70.
24.
MallaAIyerSMcGorryP, et al. (2016) From early intervention in psychosis to youth mental health reform: A review of the evolution and transformation of mental health services for young people. Social Psychiatry and Psychiatric Epidemiology51(3): 319–326.
25.
MaysNPopeC (2000) Qualitative research in health care: Assessing quality in qualitative research. British Medical Journal320(7226): 50–52.
26.
MilliganDMcCarthy-JonesSWinthropA, et al. (2013) Time changes everything? A qualitative investigation of the experience of auditory verbal hallucinations over time. Psychosis5(2): 107–118.
27.
MorganCAbdul-AlRLappinJM, et al. (2006) Clinical and social determinants of duration of untreated psychosis in the AESOP first-episode psychosis study. British Journal of Psychiatry189(5): 446–452.
28.
MorrisonAP (2001) The interpretation of intrusions in psychosis: An integrative cognitive approach to hallucinations and delusions. Behavioural and Cognitive Psychotherapy29(3): 257–276.
29.
MuellerJCallananMMGreenwoodK (2016) Communications to children about mental illness and their role in stigma development: An integrative review. Journal of Mental Health25(1): 62–70.
30.
PadillaEMolinaJKamisD, et al. (2015) The efficacy of targeted health agents education to reduce the duration of untreated psychosis in a rural population. Schizophrenia Research161(2): 184–187.
31.
PenttilaMJaaskelainenEHirvonenN, et al. (2014) Duration of untreated psychosis as predictor of long-term outcome in schizophrenia: Systematic review and meta-analysis. British Journal of Psychiatry205(2): 88–94.
32.
PhillipsLYungARHearnN, et al. (1999) Preventative mental health care: Accessing the target population. Australian and New Zealand Journal of Psychiatry33(6): 912–917.
33.
RommeMEscherSDillonJ, et al. (2009) Living with Voices: 50 Stories of Recovery. Ross-on-Wye: PCCS Books Ltd.
34.
RuddleAMasonOWykesT (2011) A review of hearing voices groups: Evidence and mechanisms of change. Clinical Psychology Review31(5): 757–766.
35.
SickelAESeacatJDNaborsNA (2019) Mental health stigma: Impact on mental health treatment attitudes and physical health. Journal of Health Psychology24(5): 586–599.
VilhauerRP (2017) Stigma and need for care in individuals who hear voices. International Journal of Social Psychiatry63(1): 5–13.
38.
YardleyL (2000) Dilemmas in qualitative health research. Psychology and Health15(2): 215–228.
39.
YungARMcGorryPD (1996) The prodromal phase of first-episode psychosis: Past and current conceptualizations. Schizophrenia Bulletin22(2): 353–370.
40.
YungARKillackeyEHetrickSE, et al. (2007) The prevention of schizophrenia. International Review of Psychiatry19(6): 633–646.
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