Restricted accessResearch articleFirst published online 2015-10
Training professionals’ communication and motivation skills to improve spinal cord injury patients’ satisfaction and clinical outcomes: Study protocol of the ESPELMA trial
Acute spinal cord injury leaves patients severely impaired and generates high levels of psychological distress among them and their families, which can cause a less active role in rehabilitation, worse functional recovery, and less perceived satisfaction with the results. Additionally, rehabilitation professionals who deal with this psychological distress could ultimately experience higher stress and more risk of burnout. This article presents the study protocol of the ESPELMA project, aimed to train rehabilitation professionals in the clinical management of acute spinal cord injury–associated psychological distress, and to measure the impact of this training on the patients’ perceived satisfaction with treatment.
AckermanPMorrisonSAMcDowellS. (2010) Using the Spinal Cord Independence Measure III to measure functional recovery in a post-acute spinal cord injury program. Spinal Cord48(5): 380–387 (PubMed: 19884897).
2.
Alcorta-GarzaAGonzález-GuerreroJFTavitas-HerreraSE. (2005) Validación de la escala de empatía médica de Jefferson en estudiantes de medicina mexicanos. Salud Mental28(5): 57–63.
3.
American Spinal Injury Association (ASIA) (2000) International Standards for Neurological Classification of Spinal Cord Injury (6th edn). Chicago, IL: ASIA.
4.
AskinWJ (2008) Coaching for physicians: Building more resilient doctors. Canadian Family Physician54: 1399–1400 (PubMed: 18854466).
5.
BaerJSKivlahanDRDonovanDM (1999) Integrating skills training and motivational therapies. Implications for the treatment of substance dependence. Journal of Substance Abuse Treatment17(1–2): 15–23 (PubMed: 10435249).
6.
BanerjeaRFindleyPASmithB. (2009) Co-occurring medical and mental illness and substance use disorders among veteran clinic users with spinal cord injury patients with complexities. Spinal Cord47(11): 789–795 (PubMed: 19417763).
7.
Barrio-CantalejoIMSimón-LordaPSánchez-RodríguezC. (2009) Adaptación transcultural y validación del Picker Patient Experience Questionnaire-15 para su uso en población española. Revista de Calidad Asistencial24(5): 192–206 (PubMed: 19717076).
8.
BrittEHudsonSMBlampiedNM (2004) Motivational Interviewing in health settings: A review. Patient Education and Counseling53(2): 147–155 (PubMed: 15140454).
9.
ChanRCLeePWLieh-MakF (2000) The pattern of coping in persons with spinal cord injuries. Disability and Rehabilitation22(11): 501–507 (PubMed: 10972354).
10.
CharlifueSLammertseDPAdkinsRH (2004) Aging with spinal cord injury: Changes in selected health indices and life satisfaction. Archives of Physical Medicine and Rehabilitation85(11): 1848–1853 (PubMed: 15520980).
11.
ChevalierZKennedyPSherlockO (2009) Spinal cord injury, coping and psychological adjustment: A literature review. Spinal Cord47(11): 778–782 (PubMed: 19506568).
12.
DavidsonDNoonanVKDvorakMF. (2010) The impact of patient expectations on outcome following treatment for spinal trauma: Part 1: What are spine surgeons telling their patients?Spine35(19): 1807–1811 (PubMed: 20386504).
13.
DicksonAO’BrienGWardR. (2012) Adjustment and coping in spousal caregivers following a traumatic spinal cord injury: An interpretative phenomenological analysis. Journal of Health Psychology17(2): 247–257 (PubMed: 21708870).
14.
DonnellyCEngCCHallJ. (2004) Client-centered assessment and the identification of meaningful treatment goals for individuals with a spinal cord injury. Spinal Cord42: 302–307 (PubMed: 14993893).
15.
DonnellyCMcCollMACharlifueS. (2007) Utilization, access and satisfaction with primary care among people with spinal cord injuries: A comparison of three countries. Spinal Cord45(1): 25–36 (PubMed: 16733520).
16.
DorstynDMathiasJDensonL (2011) Efficacy of cognitive behavior therapy for the management of psychological outcomes following spinal cord injury: A meta-analysis. Journal of Health Psychology16(2): 374–391 (PubMed: 20978150).
17.
Escribà-AgüirVMas-PonsRFlores-ReusE (2001) Validation of the Job Content Questionnaire in hospital nursing staff. Gaceta Sanitaria15(2): 142–149 (PubMed: 11333640).
18.
GillM (1999) Psychosocial implications of spinal cord injury. Critical Care Nursing Quarterly22(2): 1–7 (PubMed: 10646436).
19.
GoossensDDousseMVenturaM. (2009) Chronic neuropathic pain in spinal cord injury patients: What is the impact of social and environmental factors on care management?Annals of Physical and Rehabilitation Medicine52(2): 173–179 (PubMed: 19909707).
20.
HartkoppABronnum-HansenHSeidenschnurA. (1998) Suicide in a spinal cord injured population: Its relation to functional status. Archives of Physical Medicine and Rehabilitation79(11): 1356–1361.
21.
HatcherMBWhitakerCKarlA (2009) What predicts post-traumatic stress following spinal cord injury?British Journal of Health Psychology14(Pt 3): 541–561 (PubMed: 18983727).
22.
HillMRNoonanVKSakakibaraBM. (2010) Quality of life instruments and definitions in individuals with spinal cord injury: A systematic review. Spinal Cord48(6): 438–450 (PubMed: 20029393).
23.
HojatMGonnellaJSNascaTJ. (2002a) The Jefferson Scale of Physician Empathy: Further psychometric data and differences by gender and specialty at item level. Academic Medicine77(Suppl. 10): S58–S60 (PubMed: 12377706).
24.
HojatMGonnellaJSNascaTJ. (2002b) Physician empathy: Definition, components, measurement, and relationship to gender and specialty. The American Journal of Psychiatry159(9): 1563–1569 (PubMed: 1220227).
25.
HouseLARussellHFKellyEH. (2009) Rehabilitation and future participation of youth following spinal cord injury: Caregiver perspectives. Spinal Cord47(12): 882–886 (PubMed: 19528994).
26.
JaniBDBlaneDNMercerSW (2012) The role of empathy in therapy and the physician-patient relationship. Forschende Komplementarmedizin19(5): 252–257 (PubMed: 23128100).
27.
JenkinsonCCoulterABrusterS (2002) The Picker Patient Experience Questionnaire: Development and validation using data from in-patient surveys in five countries. International Journal for Quality in Health Care14(5): 353–358 (PubMed: 12389801).
28.
JohnstonMVEastwoodEWilkersonDL. (2005) Systematically assessing and improving the quality and outcomes of medical rehabilitation programs. In: De LisaJAGansBMWalshNE (eds) Physical Medicine and Rehabilitation: Principles and Practice. Philadelphia, PA: Lippincott-Williams & Wilkins, pp. 1163–1192.
29.
JohnstonMVWoodKMillisS. (2004) Perceived quality of care and outcomes following spinal cord injury: Minority status in the context of multiple predictors. Journal of Spinal Cord Medicine27(3): 241–251 (PubMed: 15478527).
30.
KarasekRBrissonCKawakamiN. (1998) The Job Content Questionnaire (JCQ): An instrument for internationally comparative assessments of psychosocial job characteristics. Journal of Occupational Health Psychology3(4): 322–355 (PubMed: 9805280).
31.
KennedyPRogersBA (2000) Anxiety and depression after spinal cord injury: A longitudinal analysis. Archives of Physical Medicine and Rehabilitation81(7): 932–937 (PubMed: 10896007).
32.
KinterETPriorTJCarswellCI. (2012) A comparison of two experimental design approaches in applying conjoint analysis in patient-centered outcomes research: A randomized controlled trial. Patient5(4): 279–294 (PubMed: 23145548).
33.
KishiYRobinsonRGKosierJT (2001) Suicidal ideation among patients with acute life-threatening physical illness: Patients with stroke, traumatic brain injury, myocardial infarction, and spinal cord injury. Psychosomatics42(5): 382–390 (PubMed: 11739904).
34.
KrauseJSReedKSMcArdleJJ (2010) A structural analysis of health outcomes after spinal cord injury. Spinal Cord Medicine33(1): 22–32 (PubMed: 20397441).
35.
KrollTBeattyPWBinghamS (2003) Primary care satisfaction among adults with physical disabilities: The role of patient-provider communication. Managed Care Quarterly11(1): 11–19 (PubMed: 12790061).
36.
KrollTGroahSGilmoreB. (2008) Consumer-directed teaching of health care professionals involved in the care of people with spinal cord injury: The Consumer-Professional Partnership Program. The Journal of Continuing Education in Nursing39(5): 228–234 (PubMed: 18512584).
37.
Li CalziSFarinelliMErcolaniM. (2006) Physical rehabilitation and burnout: Different aspects of the syndrome and comparison between healthcare professionals involved. Europa Medicophysica42(1): 27–36 (PubMed: 16565683).
38.
MarksDF (2010) Publication guidelines for intervention studies in the Journal of Health Psychology. Journal of Health Psychology15(1): 5–7.
MillerAArcherJ (2010) Impact of workplace based assessment on doctors’ education and performance: A systematic review. British Medical Journal341: c5064 (PubMed: 20870696).
41.
MillerWRRollnickS (2002) Motivational Interviewing: Preparing People for Change (2nd edn). New York: Guildford Press.
42.
MillerWRYahneCEMoyersTB. (2004) A randomized trial of methods to help clinicians learn motivational interviewing. Journal of Consulting and Clinical Psychology72(6): 1050–1062.
43.
MoroniLColangeloMGallìM. (2007) “I would like to give him my life”: Results of a psychological support intervention to caregivers of patients undergoing neuromotor rehabilitation. Giornale Italiano di Medicina del Lavoro ed Ergonomia29(3 Suppl. B): 5–17 (PubMed: 18575353).
44.
MortensonWBNoreauLMillerWC (2010) The relationship between and predictors of quality of life after spinal cord injury at 3 and 15 months after discharge. Spinal Cord48(1): 73–79 (PubMed: 19636329).
45.
MüllerRCiezaAGeyhS (2012) Rasch analysis of the hospital anxiety and depression scale in spinal cord injury. Rehabilitation Psychology57(3): 214–223 (PubMed: 22946609).
46.
MunceSEPerrierLTriccoAC. (2013) Impact of quality improvement strategies on the quality of life and well-being of individuals with spinal cord injury: A systematic review protocol. Systematic Review22: 2–14 (PubMed: 23432954).
47.
PellattGC (2004) Patient-professional partnership in spinal cord injury rehabilitation. British Journal of Nursing13(16): 948–953 (PubMed: 15389135).
48.
QualeAJSchankeAK (2010) Resilience in the face of coping with a severe physical injury: A study of trajectories of adjustment in a rehabilitation setting. Rehabilitation Psychology55(1): 12–22 (PubMed: 20175630).
49.
RepperJBreezeJ (2007) User and carer involvement in the training and education of health professionals: A review of the literature. International Journal of Nursing Studies44(3): 511–519 (PubMed: 16842793).
50.
RodriguezHPAnastarioMPFrankelRM. (2008) Can teaching agenda-setting skills to physicians improve clinical interaction quality? A controlled intervention. BMC Medical Education8: 3 (PubMed: 18194559).
51.
RollnickSButlerCCKinnersleyP. (2010) Motivational interviewing. British Medical Journal340: c1900 (PubMed: 20423957).
52.
RoyRRHarkemaSJEdgertonVR (2012) Basic concepts of activity-based intervention for improved recovery of motor function after spinal cord injury. Archives of Physical Medicine and Rehabilitation93(9): 1487–1497 (PubMed: 22920448).
53.
SaittaNHodgeSDJr (2012) Efficacy of a physician’s words of empathy: An overview of state apology laws. The Journal of American Osteopathic Association112(5): 302–306 (PubMed: 22582200).
54.
SandAKarlbergIKreuterM (2006) Spinal cord injured persons’ conceptions of hospital care, rehabilitation, and a new life situation. Scandinavian Journal of Occupational Therapy13(3): 183–192 (PubMed: 17042466).
55.
SkevingtonSMLotfyMO’ConnellKA. (2004) The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research13(2): 299–310 (PubMed: 15085902).
56.
SöderlundLLMadsonMBRubakS. (2011) A systematic review of motivational interviewing training for general health care practitioners. Patient Education and Counseling84(1): 16–26 (PubMed: 20667432).
57.
TateDGForchheimerMBKrauseJS. (2004) Patterns of alcohol and substance use and abuse in persons with spinal cord injury: Risk factors and correlates. Archives of Physical Medicine and Rehabilitation85(11): 1837–1847 (PubMed: 15520979).
58.
Van LeeuwenCMPostMWVan AsbeckFW. (2010) Social support and life satisfaction in spinal cord injury during and up to one year after inpatient rehabilitation. Journal of Rehabilitation Medicine42(3): 265–271 (PubMed: 20411223).
59.
WagnildGMYoungHM (1993) Development and psychometric evaluation of the resilience scale. Journal of Nursing Measurement1(2): 165–178 (PubMed: 7850498).
60.
WallaceJELemaireJBGhaliWA (2009) Physician wellness: A missing quality indicator. The Lancet374(9702): 1714–1721 (PubMed: 19914516).
61.
WellerDJMillerPM (1977) Emotional reactions of patient, family, and staff in acute-care period of spinal cord injury: Part 1. Social Work in Health Care2(4): 369–377 (PubMed: 918817).
62.
ZigmondASSnaithRP (1983) The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica67(6): 361–370 (PubMed: 6880820).
