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Abstract

In Japan, the practice of disclosing the diagnosis of cancer to young people varies between hospitals. Some hospitals respect parent’s wishes and do not to tell young people about their diagnoses whereas others encourage parents to adopt their policy of informing patients. Unfortunately, there is no research about parents’ adjustment to either course of action. This study examines parents’ perspectives regarding this decision. Parents (55) and grand-parents (3) were interviewed about their experience of sharing or not sharing the diagnosis with their children. Analysis of the interviews reveals a complex picture in which parents struggle to balance their emotions, their representation of ‘cancer as death’, their views of their children’s level of understanding as well as the positive and negative effects of disclosure on their children. We suggest that knowledge of parents’ perspectives can be useful to health professionals who support parents living with this dilemma.

Keywords

Childhood cancer diagnosis disclosure parents coping with paediatric cancer

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References

Clarke

S.-A.

Davies

Jenney

Glaser

Eiser

(2005). Parental communication and children’s behaviour following diagnosis of childhood leukaemia. Psycho-Oncology, 14, 274–281.

Clarke

S.-A.

Sheppard

Eiser

(2008). Mothers’ explanation of communicating past health and future risks to survivors of childhood cancer. Clinical Child Psychology and Psychiatry, 13, 157–170.

Eiser

(2004). Children with cancer: the quality of life. New Jersey: Laurence Erlbaum Associates, Inc.

Eiser

Parkyn

Havermans

McNinch

(1994). Parent’s recall on the diagnosis of cancer in their child, Psycho-Oncology, 3, 197–203.

Gatta

Corazziari

Magnani

Peris-Bonet

Roazzi

Stiller

& the EUROCARE Working Group (2003). Childhood cancer survival in Europe. Annals of Oncology, 14, 119–127.

Gersternberger

K. B.

(2011). Because of Katie: a true story. Charlestone, New Carolina: Published privately.

Goodnow

J. J.

Collins

W. A.

(1990). Development according to parents. The nature, sources, and consequences of parents’ ideas. Hillsdale, NJ: Lawrence Erlbaum.

Kaneko

Matushita

(1995). Shouni-gan chiryou ni okeru byoumei-kokuchi, informed consent, supportive care no genjo [Report on informing the name of cancer, informed consent and supportive care in treatment on pediatric cancer]. Journal of Japan Pediatric Society, 99, 534–539.

Ishii-Kuntz

(2008). Sharing of housework and childcare in contemporary Japan. Expert Group Meeting on ‘Equal sharing of responsibilities between women and men, including care-giving in the context of HIV/AIDS.’ United Nations. Retrieved from http://www.un.org/womenwatch/daw/egm/equalsharing/Final%20report%20EGM%2010%20Feb.pdf (accessed on 10 December 2012)

10.

Ishii-Kuntz

Makino

Kato

Tsuchiya

(2004). Japanese fathers of preschoolers and their involvement in child care. Journal of Marriage and Family, 66, 779–791.

11.

Lavigne

J. V.

Faier-Routman

(1992). Psychological adjustment to pediatric physical disorders: a meta-analytic review. Journal of Pediatric Psychology, 17, 133–157.

12.

Parsons

S. K.

Saiki-Craighill

Mayer

D. K.

Sullivan

A. M.

Jeruss

Terrin

… Block

(2007). Telling children and adolescents about their cancer diagnosis: cross-cultural comparisons between pediatric oncologists in the US and Japan. Psycho-Oncology, 16, 60–68.

13.

Pretzlik

(1997). Children coping with a serious illness: a study exploring coping and distress in children with leukaemia or aplastic anaemia. Amsterdam, Netherlands: SCO-Kohnstamm Instituut.

14.

Seo

Tamura

Shijo

Morioka

Ikegame

Hirasako

(2000). Telling the diagnosis to cancer patients in Japan: attitude and perception of patients, physicians and nurses. Palliative Medicine, 14, 105–110.

15.

Slavin

L. A.

O’Malley

J. E.

Koocher

G. P.

Foster

D. J.

(1982). Communication of the cancer diagnosis to pediatric patients: impact on long-term adjustment. American Journal of Psychiatry, 139, 179–183.

16.

Sontag

(1989). Aids and its metaphor. London, UK: Penguin Press.

17.

Tanigawa

Inada

Komamatu

Mibu

Saitou

(2000). Shouni-gan no kodomono total care to gakkou kyouiku [Total care and school education of children with cancer]. Kyoto, Japan: Nakanishiya.

18.

United Nations High Commissioner for Human Rights. (1989). Convention on the rights of children. Retrieved from http://www2.ohchr.org/english/law/crc.htm

19.

Young

Dixon-Wood

Windridge

K. C.

Heney

(2003). Managing communication with children who have a potentially life threatening chronic illness: qualitative study of patients and parents. British Medical Journal, 8 February, 305–310.

20.

Watanabe

(2007). The effect of the social context on children’s stress and coping with cancer. Unpublished PhD thesis. Oxford Brookes University, Oxford, UK.

21.

World Medical Association. (1981). WMA declaration on the rights of the patient. Retrieved from http://www.wma.net/en/30publications/10policies/l4/index.html

Japanese parents’ perception of disclosing the diagnosis of cancer to their children

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