Raising a child with intellectual disability (ID) has significant consequences for parents and family. The impact of the disability has been found to be influenced by the sociocultural context. This paper aims to show how for some parents the experience of an offspring with ID is not interpreted as a loss but as a gain because of the parents’ attribution of sacred meaning. It is suggested that these beliefs influence parental care, and are related to a high level of parental concern and closeness. This has implications for family relationships and life-cycle, as well as help-seeking and service uptake. The article provides a brief review of relevant research studies, a description of two illustrative case reports and discussion, including possible future research directions.
Abbott, D., & Meredith, W. ( 1986). Strengths of parents with retarded children. Family Relations, 35(3), 371-375.
2.
Beck, A., Daley, D., Hastings, R.P., & Stevenson, J. ( 2004). Mothers’ expressed emotion towards children with and without intellectual disability. Journal of Intellectual Disability Research, 48, 628-638.
3.
Berman, A.L. ( 2003). An idiographic approach to understanding suicide in the young. In R.A. King & A. Apter (Eds.), Suicide in children and adolescents (pp. 198-210). Cambridge: Cambridge University Press.
4.
Blacher, J., & Baker, B.L. ( 2007). Positive impact of intellectual disability on families . American Journal on Mental Retardation, 112(5), 330-348.
5.
Blazer, D.G., & Hays, J.C. ( 1998). Single-subject design. In D.G. Blazer & J.C. Hays (Eds.), An introduction to clinical research in psychiatry (pp. 54-63). Oxford : Oxford University Press.
6.
Blacher, J., & McIntyre, L.L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50, 184-198.
7.
Cheng, P., & Tang, C.S. ( 1995). Coping and psychological distress of Chinese parents of children with Down’s Syndrome. Mental Retardation , 33, 10-20.
8.
Dein, S. ( 2004). Working with patients with religious beliefs. Advances in Psychiatric Treatment, 10, 287-294.
9.
Demarle, D.J., & Le Roux, P. ( 2001). The life cycle and disability: Experiences of discontinuity in child and family development. Journal of Loss & Trauma , 6(1), 29-43.
10.
Dossetor, D.R., Nicol, A.R., Stretch, D.D., & Rajkhowa, S.J. (1994). A study of expressed emotion in the parental primary carers of adolescents with intellectual disability . Journal of Intellectual Disability Research, 38, 487-499.
11.
Einfeld, S., & Emerson, E. ( 2008). Intellectual disability. In M. Rutter, D.V.M. Bishop , D.S. Pine, S. Scott , J. Stevenson, E. Taylor, & A. Thapar (Eds.), Rutter’s child and adolescent psychiatry (5th ed., pp. 820-840). Oxford: Blackwell .
12.
Fatimilehin, I.A., & Nadirshaw, Z. ( 1994). A cross-cultural study of parental attitudes and beliefs about learning disability (mental handicap). Mental Handicap Research, 7, 202-227.
13.
Helman, C.G. ( 2007) Gender and reproduction. In Culture, health and illness (pp. 27-53). London: Hodder Arnold .
14.
Hastings, R.P., & Lloyd, T. ( 2007). Expressed emotion in families of children with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13, 339-345.
15.
Haworth, A.M., Hill, A.E., & Glidden, L.M. ( 1996). Measuring religiousness of parents of children with developmental disabilities. Mental Retardation’34(5), 271-279.
16.
Katbamna, S., Bhakta, P., Ahmad, W., Baker, R., & Parker, G. ( 2002). Supporting South Asian carers and those they care for: The role of the primary health care team. British Journal of General Practice, 52(477), 300-305.
17.
Katbamna, S., Bhakta, P., & Parker, G. ( 2000). Perceptions of disability and care-giving relationships in South Asian Communities. In W.I.U. Ahmad (Ed.), Ethnicity, disability and chronic illness (pp. 12-28). Philadelphia : Open University Press.
18.
Koenig, H.G. ( 1997). Is religion good for your health? The effects of religion on physical and mental health. New York: The Haworth Press.
19.
Koenig, H.G., McCullough, M., & Larsen, D.B. ( 2001). Handbook of religion and health. New York: Oxford University Press.
20.
Lam, D., Giles, A., & Lavander, A. ( 2003). Carers’ expressed emotion, appraisal of behavioural problems and stress in children attending schools for learning disability . Journal of Intellectual Disability Research , 47, 456-463.
21.
Magaña, S., Schwartz, S., Rubert, M., & Szapocznik, J. (2006). Hispanic caregivers of adults with mental retardation: Importance of family functioning. American Journal of Mental Retardation, 111, 250-262.
22.
Martin, E. ( 2001). Medical metaphors of women’s bodies: Menstruation and menopause. In The woman in the body: a cultural analysis of reproduction (pp. 27-53). Boston, MA: Beacon Press.
23.
O’Hara, J., & Bouras, N. ( 2007). Intellectual disabilities across cultures. In D. Bhugra & K. Bhui (Eds.), Textbook of cultural psychiatry (pp. 461-470). Cambridge: Cambridge University Press.
24.
Rogers-Dulan, J. ( 1998). Religious connectedness among urban African American families who have a child with disabilities. Mental Retardation , 36(2), 91-103.
25.
Scorgie, K., & Sobsey, D. ( 2000). Transformational outcomes associated with parenting children who have disabilities. Mental Retardation, 38(3), 195-206.
26.
Skinner, D.G., Correa, V., Skinner, M., & Bailey, D.B. Jr (2001). Role of religion in the lives of Latino families of young children with developmental delays. American Journal of Mental Retardation, 106, 297-331.
27.
Skinner, D., & Weisner, T.S. ( 2007). Sociocultural studies of families of children with intellectual disabilities. Mental Retardation and Developmental Disabilities. Research Reviews, 13, 302-312.
28.
Stainton, T., & Besser, H. ( 1998). The positive impact of children with an intellectual disability on the family. Journal of Intellectual & Developmental Disability, 23(1), 57-70.
29.
Stubblefield, H.W. ( 1977). Religion, parents and mental retardation. In C.J. Drew, M.L. Hardman , & H.P. Bluhm (Eds.), Mental retardation. Social and educational perspectives (pp. 32-37). Saint Louis: C.V. Mosby Company.
30.
Thomas, B., Dowling, C., & Nicoll, N. ( 2004). Spirituality. In B. Thomas and C. Dowling (Eds.), Parenting a child with special needs (pp. 167-183). London: Souvenir Press.
31.
Vaughn, C.E., & Leff, J. ( 1976). The measurement of expressed emotion in the families of psychiatric patients. British Journal of Social and Clinical Psychology, 15, 157-165.
32.
Weisner, T.S., Beizer, L., & Stolze, L. ( 1991). Religion and families of children with developmental delays. American Journal of Mental Retardation, 95, 647-662.
33.
World Health Organization (WHO)(1992). International classification of diseases - 10th revision (ICD-10) . Geneva: WHO.
34.
World Health Organization (WHO)(2006). Mental retardation: from knowledge to action. Myths and misconceptions about mental retardation. Geneva: WHO. Regional office for South-East Asia . Mental health and substance abuse. Retrieved March 17, 2009 , from http://www.searo.who.int/en/Section1174/Section1199/Section1567/Section1825_8073.htm
35.
Wyngaarden Krauss, M. ( 1993). Child-related and parenting stress: Similarities and differences between mothers and fathers of children with disabilities . American Journal of Mental Retardation’97, 383-404.
