Remote monitoring of implantable cardioverter defibrillator (ICD) patients links patients wirelessly to the clinic via a box in their bedroom. The box transmits data from the ICD to a remote database accessible to clinicians without patient involvement. Data travel across time and space; clinicians can monitor patients from a distance and instantly know about cardiac events. Based on ethnographic fieldwork in two Danish hospitals, this article explores the configuration of the wireless ICD patient by following a number of patients through hospitalisation, implantation, in-clinic follow-up, and remote monitoring. Wireless therapy, we argue, scripts the patient as data. In high-tech clinical encounters, data are enacted as extensions and copies of the patient, and even proxies that, in patients’ experiences, may turn into identity thieves. In illuminating the multiple positions that data take in such clinical encounters and in patients’ experiences we discuss the ambiguities that arise when patients go wireless.
AgicH (2012) Hope Rites – An Ethnographic Study of Mechanical Help-Heart Implantation Treatment. Linköping Studies in Arts and Science 550. Linköping: Linköping University Press.
2.
AkrichM (1992) The de-scription of technical objects. In: BijkerWLawJ (eds) Shaping Technology/Building Society. Cambridge, MA: MIT Press.
3.
AmooreL (2011) Data derivatives: On the emergence of a security risk calculus for our times. Theory, Culture & Society28(6): 24–43.
4.
BennettCJ (2011) In defence of privacy: The concept and the regime. Surveillance & Society8(4): 485–496.
5.
BersonJ (2015) Computable Bodies: Instrumented Life and the Human Somatic Niche. London: Bloomsbury.
6.
BjørnPMarkussenR (2013) Cyborg heart: The affective apparatus of bodily production of ICD patients. Science & Technology Studies26(2): 14–28.
7.
BlackD (2014) Where bodies end and artefacts begin: Tools, machines and interfaces. Body & Society20(1): 31–60.
8.
BlaxterM (2009) The case of the vanishing patient? Image and experience. Sociology of Health & Illness31(5): 762–778.
9.
ClarkJAMishlerEG (1992) Attending to patients’ stories: Reframing the clinical task. Sociology of Health & Illness14(3): 344–372.
10.
ClarkeA (2005) Situational Analysis: Grounded Theory after the Postmodern Turn. Thousand Oaks, CA: Sage.
11.
CrawfordCS (2015) Body image, prostheses, phantom limbs. Body & Society21(2): 221–244.
12.
DalliJ (2011) E-health. Government Gazette, EU Health Special – Telehealth Innovations for Europe, October, p. 121.
13.
Danish Health and Medicines Authority (2014) Pacemakere, ICD’er og andre avancerede pacemakersystemer. Copenhagen: Danish Health and Medicines Authority.
14.
Danish Society of Cardiology (2012) National Cardiologisk Behandlingsvejledning. Available at: http://nbv.cardio.dk.
15.
ElmerG (2003) A diagram of panoptic surveillance. New Media & Society5(2): 231–247.
16.
FleckL (1979) Genesis and Development of a Scientific Fact. Chicago, IL: University of Chicago Press.
17.
FoucaultM (1977) Discipline and Punish: The Birth of the Prison. London: Penguin.
18.
FrankAW (1992) Twin nightmares of the medical simulacrum. In: StearnsWChaloupkaW (eds) Jean Baudrillard: The Disappearance of Art and Politics. London: Macmillan.
19.
FranklinS (2007) Dolly Mixtures: The Remaking of Genealogy. Durham, NC: Duke University Press.
20.
GrossS (2012) Biomedicine inside out: An ethnography of brain surgery. Sociology of Health & Illness34(8): 1170–1183.
21.
HaggertyKDEricsonRV (2000) The surveillant assemblage. British Journal of Sociology51(4): 605–622.
22.
HarawayDJ (1991) Simians, Cyborgs, and Women: The Reinvention of Nature. London: Free Association Books.
23.
LatourB (1987) Science in Action: How to Follow Scientists and Engineers Through Society. Cambridge, MA: Harvard University Press.
24.
LeeS (2013) American DNA: The politics of potentiality in a genomic age. Current Anthropology54(7): 77–86.
25.
LehouxP (2008) The duality of health technology in chronic illness: How designers envision our future. Chronic Illness4: 85–97.
26.
LuptonD (2012) M-health and health promotion: The digital cyborg and surveillance society. Social Theory & Health10(3): 229–244.
27.
LuptonD (2013) Quantifying the body: Monitoring and measuring health in the age of mHealth technologies. Critical Public Health23(4): 393–403.
28.
LuptonDJutelA (2015) ‘It’s like having a physician in your pocket!’ A critical analysis of self-diagnosis smartphone apps. Social Science & Medicine133: 128–135.
29.
LyonD (2007) Surveillance Studies: An Overview. Cambridge: Polity Press.
30.
LyonD (2010) Surveillance, power and everyday life. In: Kalantzis-CopePGherab-MartinK (eds) Emerging Digital Spaces in Contemporary Society. Basingstoke: Palgrave Macmillan.
31.
LyonD (2014) Surveillance, Snowden, and Big Data: Capacities, consequences, critique. Big Data and SocietyJuly–December: 1–13.
32.
MairMGreiffenhagenCSharrockWW (2015) Statistical practice: Putting society on display. Theory, Culture & Society33(3): 51–77.
33.
MatchettMSearsSFHazeltonGKirianKWilsonENekkantiR (2009) The implantable cardioverter defibrillator: Its history, current psychological impact and future. Expert Review of Medical Devices6(1): 43–50.
34.
MattinglyC (1998) Healing Dramas and Clinical Plots: The Narrative Structure of Experience. Cambridge: Cambridge University Press.
35.
MolA (2002) The Body Multiple: Ontology in Medical Practice. London: Duke University Press.
36.
MortMFinchTMayC (2009) Making and unmaking telepatients: Identity and governance in new health technologies. Science, Technology, & Human Values34(1): 9–33.
37.
NewmanS (2011) Some issues regarding the introduction of telehealth innovations in Europe. Government Gazette, EU Health Special – Telehealth Innovations for Europe, October, p.123.
38.
OudshoornN (2008) Diagnosis at a distance: The invisible work of patients and health care professionals in cardiac telemonitoring technology. Sociology of Health & Illness30(2): 272–288.
39.
OudshoornN (2012) How places matter: Telecare technologies and the changing spatial dimensions of healthcare. Social Studies of Science42(1): 121–142.
40.
OudshoornN (2015) Sustaining cyborgs: Sensing and tuning agencies of pacemakers and implantable cardioverter defibrillators. Social Studies of Science45(1): 56–76.
41.
OudshoornNPinchT (eds) (2003) How Users Matter: The Co-construction of Users and Technologies. Cambridge, MA: MIT Press.
42.
ParsonsT (1951) The Social System. London: Routledge and Kegan Paul.
43.
PollockA (2008) The internal cardiac defibrillator. In: TurkleS (ed.) The Inner History of Devices. Cambridge, MA: MIT Press.
44.
PolsJ (2005) Enacting appreciations: Beyond the patient perspective. Health Care Analysis13(3): 203–221.
45.
PosterM (1990) The Mode of Information. Chicago, IL: University of Chicago Press.
46.
PrainsackBWolinskyH (2010) Direct-to-consumer genome testing: Opportunities for pharmacogenomics research?Pharmacogenomics11(5): 651–655.
47.
RuppertE (2012) The governmental topologies of database devices. Theory, Culture & Society29(4/5): 116–136.
TimmermansS (1996) Saving lives or saving multiple identities? The double dynamic of resuscitation scripts. Social Studies of Science26: 767–797.
50.
TurnerV (1969) The Ritual Process: Structure and Anti-structure. London: Routledge and Kegan Paul.
51.
TurnerV (1977) Variations on a theme of liminality. In: MooreSFMyerhoffBG (eds) Secular Rituals. Assen: Van Gorcum.
52.
WetherellM (2015) Trends in the turn to affect: A social psychological critique. Body & Society21(2): 139–166.
53.
ZipesDP. (2006) ACC/AHA/ESC 2006 guidelines for management of patients with ventricular arrhythmias and the prevention of sudden cardiac death – executive summary. European Heart Journal27(17): 2099–2140.
