Care for disabled family members in Brazil has historically been concentrated in the home, but the Covid-19 pandemic has intensified domestic care labor by limiting infrastructures of care. Drawing on ethnographic fieldwork with women caring for disabled others at different stages of life in three regions of Brazil, we advance two interconnected concepts that emerged in our interlocutors’ narratives. We contend that the Covid-19 pandemic has engendered a chronification of home-making, which intensified a long-standing pattern of unequally gendered labor in maintaining arrangements of spaces, people, and things. In the context of the progressive loss of social safety nets and deepening social inequality, this chronicified process of home-making also gives rise to dis/abling care—care that simultaneously enables others and disables caregivers. Our work demonstrates how the pandemic is re-entrenching historical inequalities in Brazil and how disability is produced in pandemic times.
ArmstrongP.ArmstrongH. (2019). Privatizing care: Setting the stage. In ArmstrongP.ArmstrongH. (Eds.), The privatization of care: The case of nursing homes (pp. 18–27). Routledge.
2.
AddlakhaR. (2020). Kinship destabilized!: Disability and the micropolitics of care in Urban India. Current Anthropology, 61(S21), S46–S54. https://doi.org/10.1086/705390
3.
BlockP.CavalcanteF. G. (2014). Historical perceptions of autism in Brazil: Professional treatment, family advocacy, and autistic pride, 1943–2010. In BurchS.RembisM. (Eds.), Disability histories (pp. 77–97). University of Illinois Press.
4.
BruschiniM.RicoldiA. (2009). Família e trabalho: difícil conciliação para mães trabalhadoras de baixa renda [Family and work: difficult conciliation for low-income working mothers]. Cadernos de Pesquisa, 39(136), 93–123.
5.
de AlbuquerqueW. R. (2009). O jogo da dissimulação: abolição e cidadania negra no Brasil [The game of dissimulation: abolition and black citizenship in Brazil]. Companhia das Letras.
6.
DebertG. G. (1999). A reinvenção da velhice: socialização e reprivatização do envelhecimento [The reinvention of old age: socialization and reprivatization of aging]. Editora da Universidade de São Paulo.
7.
de MachadoT. (2022). Um pé na cozinha: um olhar sócio-histórico para o trabalho de cozinheiras negras no Brasil [A foot in the kitchen: a socio-historical look at the work of black female cooks in Brazil]. Editora Fósforo.
8.
de MatosS. S.da SilvaA. C. R. (2020). Quando duas epidemias se encontram: a vida das mulheres que têm filhos com a Síndrome Congênita do Zika Vírus na pandemia da COVID-19 [When two epidemics meet: the life of women who have children with congenital Zika syndrome in the Covid-19 pandemic]. Cadernos De Campo, 29, 329–340. https://doi.org/10.11606/issn.2316-9133.v29isuplp329-340
9.
DevliegerP.StrickfadenM. (2012). Reversing the {im}material sense of a nonplace: The impact of blindness on the Brussels metro. Space and Culture, 15(3), 224–238. https://doi.org/10.1177/1206331212445951
10.
EcksS. (2021). Depression, deprivation, and dysbiosis: Polyiatrogenesis in multiple chronic illnesses. Culture, Medicine, and Psychiatry, 45(4), 507–524. https://doi.org/10.1007/s11013-020-09699-x
11.
EngelC. L. (2013). Doença de Alzheimer e Cuidado Familiar [Alzheimer’s disease and family care] [Master’s thesis, Universidade de Brasília]. https://repositorio.unb.br/handle/10482/14160
12.
EngelC. L. (2020). Partilha e cuidado das demências: entre interações, medicamentos e rotinas [Sharing and care of dementias: between interactions, medications and routines] [Doctoral dissertation, Universidade de Brasília]. https://repositorio.unb.br/handle/10482/38126
13.
EngelC. L.PereiraB. C. J. (2015). A organização social do trabalho doméstico e de cuidado: considerações sobre gênero e raça [The social organization of domestic work and care work: considerations about gender and race]. Revista Punto Género, 5, 4–24.
14.
EstroffS. E. (1993). Identity, disability, and schizophrenia: The problem of chronicity. In LockM. M.LindenbaumS. (Eds.), Knowledge, power, and practice: The anthropology of medicine and everyday life (pp. 247–286). University of California Press.
15.
FietzH. M. (2020). Construindo futuros, provocando o presente : cuidado familiar, moradias assistidas e temporalidades na gestão cotidiana da deficiência intelectual no Brasil [Constructing futures, provoking the present: family care, assisted living and temporalities in the everyday management of intellectual disability in Brazil] [Doctoral dissertation]. https://lume.ufrgs.br/handle/10183/218580
16.
FonsecaC. (2010). Família e parentesco na antropologia brasileira contemporânea [Family and kinship in contemporary Brazilian anthropology]. In MartinsC. B.DuarteL. F. D. (Eds.), Horizontes das Ciências Sociais: Antropologia (pp. 123–154). ANPOCS.
17.
FreundP. (2001). Bodies, disability and spaces: The social model and disabling spatial organisations. Disability & Society, 16(5), 689–706. https://doi.org/10.1080/09687590120070079
GonzalesL. (1984). Gênero e raça. Racismo e sexismo na cultura brasileira [Gender and race. Racism and sexism in Brazilian culture]. Revista Ciências Sociais Hoje, Anpocs, 223–244.
20.
GoodleyD. (2014). Dis/ability studies: Theorising disablism and ableism. Routledge.
21.
Heurtin-RobertsS.BeckerG. (1993). Anthropological perspectives on chronic illness: Introduction. Social Science & Medicine, 37(3), 281–283. https://doi.org/10.1016/0277-9536(93)90259-7
22.
HirataH.GuimarãesN. A. (Eds.). (2012). Cuidado e Cuidadoras: as várias faces do trabalho do care [Care and caregivers: the various faces of care work]. Atlas.
23.
ImrieR.KumarM. (1998). Focusing on disability and access in the built environment. Disability & Society, 13(3), 357–374. https://doi.org/10.1080/09687599826687
KitchinR. (1998). ‘Out of place’, ‘knowing one’s place’: Space, power and the exclusion of disabled people. Disability & Society, 13(3), 343–356. https://doi.org/10.1080/09687599826678
27.
KittayE. (2011). The ethics of care, dependence, and disability. Ratio Juris, 24(1), 49–58.
MitchellD. T.SnyderS. L. (2019). Is the study of debility akin to disability studies without disability?GLQ: A Journal of Lesbian and Gay Studies, 25(4), 663–666.
34.
MolinierP. (2012). Care as work: Mutual vulnerabilities and discrete knowledge. In SmithN. H.DerantyJ. (Eds.), New philosophies of labour: Work and the social bond (pp. 251–271). Brill.
35.
NixonR. (2011). Slow violence and the environmentalism of the poor. Harvard University Press.
36.
NouvetE. (2014). Some carry on, some stay in bed: (In)convenient affects and agency in neoliberal Nicaragua. Cultural Anthropology, 29(1), 80–102. https://doi.org/10.14506/ca29.1.06
37.
PasveerB.SynnesO.MoserI. (2020). Doing home with care in ageing societies. In PasveerB.SynnesO.MoserI. (Eds.), Ways of home making in care for later life (pp. 1–16). Palgrave Macmillan. https://doi.org/10.1007/978-981-15-0406-8_1
38.
PeixotoC. E.LuzG. M. (2007). De uma morada à outra: processos de re-coabitação entre as gerações. [From one residence to another: processes of re-cohabitation among the generations]. Cadernos Pagu, 29, 171–191. https://doi.org/10.1590/S0104-83332007000200008
39.
Pesquisa Nacional por Amostra de Domicílios. (2021). PNAD contínua [The PNAD continues]. Instituto Brasileiro de Geografia e Estatística.
40.
Piepzna-SamarasinhaL. L. (2018). Care work: Dreaming of disability justice. Arsenal Pulp Press.
41.
PuarJ. K. (2017). The right to maim: Debility, capacity, disability. Duke University Press.
SalemT. (2007). O Casal Grávido: Disposições e Dilemas da Parceria Igualitária [The pregnant couple: Dispositions and dilemas in equal partnership]. FGV Editora.
44.
SchalkS. (2018). Bodyminds reimagined: (Dis)ability, race, and gender in black women’s speculative fiction. Duke University Press.
45.
SchillmeierM.HeinleinM. (2009). Moving home: From house to nursing home and the (un-)canniness of being at home. Space and Culture, 12(2), 218–231.
SimplicanS. (2015). Care, disability, and violence: Theorizing complex dependency in Eva Kittay and Judith Butler. Hypatia, 30(1), 217–233.
48.
SingerM.SnipesC. (1992). Generations of suffering: Experiences of a treatment program for substance abuse during pregnancy. Journal of Health Care for the Poor and Underserved, 3(1), 222–234. https://doi.org/10.1353/hpu.2010.0180
ThompsonS.RohwerderB. (2023). Spaces of exclusion and neglect: The impact of COVID-19 on people with disabilities in Bangladesh, Kenya, Nepal, Nigeria, and Uganda. Space and Culture, March, 12063312231159208. https://doi.org/10.1177/12063312231159208
51.
VelhoG. (2001). Família e Parentesco no Brasil Contemporâneo: Individualismo e Projetos no Universo de Camadas Médias [Family and kinship in contemporary Brazil: Individualism and projects in the world of the middle classes]. Interseções: Revista de Estudos Disciplinares, 2(3), 45–52.
WilliamsonK. E. (2018). Care in the time of Zika: Notes on the “afterlife” of the epidemic in Salvador (Bahia), Brazil. Interface, 22(66), 685–696. https://doi.org/10.1590/1807-57622017.0856
YaziciB. (2012). The return to the family: Welfare, state, and politics of the family in Turkey. Anthropological Quarterly, 85(1), 103–140. https://www.jstor.org/stable/41427090
