Abstract
During the COVID-19 pandemic, policies have been established that have exempted some disabled people from wearing a face covering in public spaces. Yet, despite the introduction of such policies, disabled people have reported being challenged and abused for not wearing one. Drawing upon key ideas and tropes from disability studies and the sociology of the everyday, we sketch out the adverse effects and ambiguities caused by the pandemic relating to the use of face coverings, along with how emerging cultural norms and notions of shame are publicly mobilized to police conduct. Touching on themes of access, materiality, in/visibility, and in/exclusion, we conclude that face coverings are simply another artifact through which disabled people are read, judged, and excluded in public life. We also contend that face coverings, and the controversy surrounding their use, are another example of how disabled people have been overlooked, disregarded, and disproportionately affected by the COVID-19 pandemic.
Introduction
Face coverings—and when, where, and who can (or should) wear them—have remained an issue throughout the COVID-19 pandemic. In the United Kingdom, face covering policies differed across countries, yet across them, exemption policies for people who cannot safely wear one (i.e., for reasons of age, health, and/or disability) were established. Despite such policy exemptions being established, there have been multiple media reports of disabled people being challenged in public for not wearing a face covering and, ostensibly, for not conforming to legal, political, and moral imperatives. In this article, we attend to face coverings as a matter of sociological interest. As Lupton et al. (2021: 85) note: [Face coverings] are things that come together with human bodies, other living and non-living things, place and space to generate forms of safety, self-expression, embodied socialities, creativity and care but also disturbing affective forces such as anger, frustration, discomfort, racism, social exclusion and shame. This is why masks as socio-material objects in COVID times are so vibrant, so political, so meaningful, so forceful, so enchanting: in short, so full of thing-power.
We begin by outlining the political landscape in which face covering policies came to pass and, subsequently, the impact this has had for disabled people who cannot wear them. This involves drawing upon recent media examples that document the experiences (related to the use of face coverings) of disabled people. Our approach included identifying free-to-access stories from major U.K. online newspapers (e.g., The Guardian; The Metro; BBC News). Using their search engines, we typed in key terms (e.g., disability; mask; face covering) and identified relevant and high-profile examples for our analysis. We remain mindful of prioritizing disabled people’s voices, the need for disabled people leading analyses, and the limitations associated with media portrayals. The intention was not to develop a systematic analysis of all publications on the use (or not) of face coverings by disabled people. Rather, our approach was selective in highlighting illustrative examples to inform what is, for us, a theoretical argument about uniting ideas and tropes from disability studies and the sociology of the everyday. This is where we subsequently turn our attention; namely, how face coverings are a conduit through which to consider the adverse effects caused for disabled people who cannot wear them.
We are, of course, not dismissing the act of wearing face coverings for preventing transmission, especially for those who are clinically vulnerable. Rather, we ask what is at stake for disabled people relating to the use/non-use of face coverings as a disruptive artifact. Their use, at least in a U.K. context, has disrupted people’s anticipations and taken-for-granted expectations in the public sphere. Using masks is ‘deeply corporeal, sensory, and affective’; they change ways of being and our relations with others (Lupton et al., 2021: 48). Taken-for-granted assumptions and interactional practices have been altered during the COVID-19 pandemic (Rawls & Gibson, 2020). Indeed, COVID-19 has “[unbuttoned] the normalcy of the ‘cosmos’ of shared lived spaces, what we take for granted as and what we expect from a globalised life-world” (Schillmeier, 2020: 1). The potential of infection means social relations have been ‘thinned out and lived at a distance’; previously “straightforward” interactions have become “hot situations” of suspicion, alarm, and risk (Schillmeier, 2020: 2). With these taken-for-granted and affective encounters in public life in mind, we interweave media case studies from a U.K. context with sociological thought surrounding disability and the everyday. We argue that disabled people’s non/engagement with face coverings is another artifact through which disabled people are—and historically have been—read, judged, and excluded in significant ways within public encounters in everyday life.
Face Coverings
In June 2020 in England and Scotland, and July 2020 in Wales and Northern Ireland, Government officials mandated that face coverings must be worn by members of the public on public transport (Deacon, 2020; UK Parliament, 2020). Face coverings were subsequently made mandatory in shops and supermarkets in July in England and Scotland (UK Parliament, 2020), August in Northern Ireland (Northern Ireland Assembly, 2020), and September in Wales (Deacon, 2020). 1 Yet, face covering exemptions were stipulated for people with breathing difficulties, people who rely on lip reading, facial expressions, and/or clear sound for communication, and people with sensory issues that make wearing them challenging. Those supporting such persons were also not mandated to use a face covering.
Despite exemptions being established, there have been media reports of disabled people and the people supporting them, where present, being confronted for not wearing a face covering. In July 2020, mobile footage shared by Sense (a disability charity) showed a passenger verbally abusing 16-year-old Saule Pakenaite, who lifted her face covering to communicate with her sister Karolina, who has Usher syndrome and is deafblind (The Guardian, 2020a). Pakenaite explained her sister’s condition to the passenger, who then accused them of “taking the piss” and claimed “deafblind, my arse.” Louise Sharp (BBC, 2020b) shared a similar experience, in which a fellow shopper confronted her about not wearing a face covering and, on explaining her exemption due to her daughter’s autism and her own panic and anxiety, was accused of being “selfish.” This sparked a panic attack for Sharp, who is now afraid to leave the house: People feel they’ve got the authority to question anyone, and I feel more should be done to address the issue of exemption and to give people respect . . . Please understand there are exemptions and respect those exemptions.
Others, like Georgina Spray (BBC, 2020b), subsequently wore a face covering, despite qualifying for exemption, to evade expected conflict, especially when entry to public settings can be denied without one. Spray says: It is stressful enough going into a shop when you have autism—with the background music, beeps of the till, customer announcements, people talking, bright lights, humming of the fridges and freezers. Adding a face covering is too much for many autistic people to bear . . . I don’t carry my diagnosis letter and assessment scores around with me and people often say to me, “You don’t look disabled.”
Georgia fears not being recognized as disabled on account of the “invisibility” of autism. She describes the anxiety of facing opposition and how, if this happened, she would be “scared to leave the house.” The invisibility leads some disabled people to visualize (and thus, legitimize) a condition by using material props, such as the Hidden Disabilities Sunflower Lanyard.
2
Yet, this strategy is not always successful. In an article for The Guardian (2020b), Paul Feeley claimed that in the space of a few weeks, he was verbally abused for not wearing a face covering on public transport: I have a disability lanyard, which signifies I have a hidden disability. I tried to show it . . . And all I got back was a complete torrent of abuse . . . One man said to me “if you can’t wear a mask, you shouldn’t be allowed out.”
In an article for The Metro (2020), Corey Wood reports being shouted at by passengers on the bus when attempting to board, and the bus driver’s refusal of his autism card to account for an absent face covering: I want to make sure no one else like me is made to feel that their disability isn’t valid, or isn’t believed . . . With hidden disabilities like mine, people often don’t believe that they exist . . . People often say I “speak too well” or “nothing looks wrong with you.” Someone can still have a disability even if it isn’t obvious . . . I want to make sure that staff who are working in transport, retail and supermarkets are given clear guidance over the exemptions, and are given the training and support they need to support disabled passengers and customers.
A steady stream of stories document how disabled people have been abused and harassed, implored to wear a face covering, and denied entry into public settings (Disability Rights UK, 2020; Shakespeare et al., 2021; Welsh Government, 2021). Disability charities, organizations and groups have shared such tales and suggested that harassment has been exacerbated by poor public health messaging and awareness around exemptions.
In conjunction with perceived poor public campaigns, there has been a shaming of individuals who do not comply. In July 2020, Dame Cressida Dick (former Commissioner of the Police of the Metropolis) said that police would only become involved in non-compliance as a “last resort” and hoped that people who are not wearing a face covering “will be shamed into complying or shamed to leave the store” (BBC, 2020a). Public health campaigns equally embrace the idea of “embodied sociality” (Lupton et al., 2021: 76–77) and politicize face coverings as an act of care and civility. 3 Since face coverings gesture civic responsibility and relate to complex ideas of pollution and moral solidarity (Brown et al., 2021), people who do not comply are subsequently shamed and categorized as “selfish, careless, and as not caring for others,” and people who comply are “applauded as virtuous, self-sacrificing, and recognised for their ability to care for (seemingly all) others” (Lupton et al., 2021: 78). Exemptions disrupt this binary of the careful/caring (those who wear face coverings) and the careless (those who do not wear face coverings). This binary framing is built, we contend, on ableist assumptions and imperatives. Casting individuals as ir/responsible for face covering use is a gross simplification that disregards the complex, disruptive ambiguities faced by disabled people who have exemptions.
To be clear, this article focuses exclusively upon the United Kingdom. In this way, our analysis is limited as face-covering policies and practices will vary, perhaps radically so, in different environments—and in ways that affect and shape dis/abling contexts. Nonetheless, focusing upon the United Kingdom, we argue that face coverings—enmeshed in the “public scenography of pandemic life” (Brown et al., 2021: 284)—have become a political flashpoint that have put disabled people at risk of being challenged, abused, and, in some cases, threatened with arrest (Pendo et al., 2020). Our argument, again, is not about the merits of face coverings, nor does it concern policy legislation. 4 Rather, we argue that face coverings have been universally enrolled, and expected, in our everyday lives with serious repercussions, particularly for some disabled people. From here, we contend that ideas and tropes taken from disability studies and the sociology of the everyday offer the conceptual and theoretical scaffolding necessary to understand face coverings as another medium whereby disabled people are read, judged, and excluded within public life. 5
Disability Studies and the Sociology of the Everyday
Analyses of disability emerge across diverse disciplines, such as sociology (e.g., Shakespeare & Watson, 2010; Thomas, 2010), anthropology (e.g., Dokumaci, 2020; Ginsburg and Rapp, 2020), science and technology studies (STS; e.g., Galis, 2011; Schillmeier, 2007), and geography (e.g., Gleeson, 1999; Imrie, 1996; Kitchin, 1998). Moreover, it contains subfields including, but not limited to, feminist disability studies (e.g., Garland-Thomson, 2017), crip theory (Kafer, 2013; McRuer, 2006), cultural and literary theory (Snyder and Mitchell, 2005), and critical disability studies (Goodley, 2014; Liddiard, 2020)—all of which express different theoretical allegiances, methodological curiosities, and empirical endeavors.
Here, we are not concerned with the contribution each subfield can make, but rather what the driving principles of disability studies can teach us about face coverings during the COVID-19 pandemic. Scholars in disability studies appear united in challenging the common view of disability as an individual deficit remedied via medical intervention and rehabilitation, often by (non-disabled) others. This involves departing from what is frequently labeled the “medical model,” grounded in a personal tragedy bias equating disability as living with a biological failing. In doing this, we can examine the influential role of social structures and oppression in the lives of disabled people (Barnes & Mercer, 2010; Oliver, 1990, 1996). Disability studies, as a field, has provided powerful analyses of how social, political, cultural, legal, and economic factors define disability, and shape wider responses to difference along with who we see as human and worthy of life. Moreover, disability studies show how we can disturb normative and ableist assumptions—encapsulated by Garland-Thomson’s (1997) concept of “the normate,” that is, the corporeal incarnation of a culture’s collective, unmarked, normative characteristics. This is similar to McRuer’s (2006) notion of “compulsory able-bodiedness,” in which the deviant (disabled) other shores up the normate’s boundaries.
Disability studies, then, provides the tools for analyzing how ableist cultures are cultivated and maintained, how disability is represented as “the master trope of human disqualification” (Snyder and Mitchell, 2005), and how material, cultural, legislative, and attitudinal practices subject disabled people to oppression, injustice, and marginalization (Garland-Thomson, 2017). Disability is not simply a matter of biological impairment, but is socially and culturally constituted (Goodley, 2014; Grue, 2016). Shakespeare and Watson (2001, 2010) argue, as such, that while impairment is frequently central to the disability experience, we should still place inequality, powerlessness, and structure at the core of our analysis. This involves examining how disablism—the abuse, oppression and discrimination of disabled people on grounds of perceived biological difference and inferiority—shapes their lives (Goodley, 2014; Thomas, 2010).
Yet, within the structural and the political are the micro-interactions of everyday life—articulated within the earlier accounts at the supermarket or boarding a bus. Such encounters require an appreciation of the micro and the macro, with a particular attentiveness into how the everyday, and the “mundane,” come to be shaped by structural forces (Neal & Murji, 2015: 811). Disability studies, while theoretically and empirically strong on matters of structure, power, and inequality, can be enhanced, we argue, by entering conversation with sociologies of the everyday. Conceptualizations of the everyday involve an “immersion in the seemingly unremarkable and routine relationships and interactions with others, things, contexts and environments” (Neal & Murji, 2015: 812). It means taking seriously what may otherwise be glossed over in the “mainstream” as seemingly unimportant (Back, 2015; Pink, 2012). What the sociology of everyday life also reminds us, together with its somewhat intangibility, is that what may be “mundane” to one can be experientially different to another (Scott, 2009). Such intricate politics of face covering legislation within public space (and importantly here, not wearing a face covering) puncture what has often been perceived as “ordinary” social interaction. Assimilating the everyday with experiences of disability (particularly hidden impairments) reflects previous work (White, 2020), in which the lens of everyday life facilitates an appreciation, and deliberate prioritization, of micro social encounters that may be glossed over or infrequently discussed. Thomas and Sakellariou (2018: 3) note the importance of ‘the taken-for-granted, everyday human activities at the heart of how social life is reproduced” and its impacts on disabled people. Disability is “lived, mobilised and enacted in everyday lives” (Thomas & Sakellariou, 2018: 4) and, so, foregrounding the everyday enables us to make sense of practices, relations and socio-materialities. It is why, we contend, that bringing both approaches together can help to make sense of face-covering usage and its relationship to dis/abling spaces and cultures. First, we outline how disability studies facilitate spatial analyses of accessibility, exclusion, and public space. From here, we contend that to comprehend the face covering as a disruptive artifact, we need to engage with social interaction and socio-materialities as driven by the sociology of the everyday.
Disability Studies: Accessibility, Exclusion, and Public Space
Disabled people have historically been rendered as Other and sequestered from space and culture. Moreover, scholars in disability studies and affiliated disciplines have long recognized how disabled people face an affronting array of social and environmental barriers in public space (Barnes & Mercer, 2010; Dischinger & Jackson Filho, 2012; Edwards & Maxwell, 2023; Goodley, 2014; Imrie, 1996; Schillmeier, 2007, 2010). Analyses in social and cultural geography, for example, have long recognized how space is “socially produced and constructed, dynamic and ambiguous, claimed and contested,” and is “instrumental in ‘reproducing and sustaining disablist practices” (Edwards & Maxwell, 2023; Kitchin, 1998: 344; Wilton & Horton, 2020). Examples include no ramp access for wheelchair users, inadequate transport provisions and access to toilet facilities. It is worth noting critiques from, for example, STS about assumptions of accessibility (Hamraie, 2017), including how wheelchair users are configured as the universal embodiment of disability, thus excluding diverse forms of embodiment (Fritsch, 2013). Nonetheless, STS/materialist and geography-inspired analyses have shown how, by examining how bodies interact with material aspects of the built environment that attributes dis/ability (e.g., Galis, 2006, 2011; Kitchin, 1998), we can recognize a troubling legacy of disabled people being excluded from, and struggling to justify their presence in, public spaces. Architecture and space are, in turn, disabling; they reveal “cultural assignments of knowledge and power” (Hamraie, 2017: 1) rendering living with disability as a “profoundly spatial experience” (Gleeson, 1999: 195; Imrie, 1996; Schillmeier, 2020).
With respect to face covering use/non-use, disability studies provide the apparatuses for thinking about environments as conduits to tolerance and citizenship (Serlin, 2017). Public settings are the primary (though not only) space in which face coverings are worn. The potential abuse resulting from not wearing a face covering in public settings, in times at which this has been expected or a requirement, has identified who does, and does not, belong in a space. The “ordinary act” of wearing a covering can fabricate enabling and disabling spaces of calculation (Schillmeier, 2007). Barriers are not just physical (such as signs on shop doors indicating no entry for people without a face covering), but also attitudinal, which may lead to interactions not unfolding according to the taken-for-granted principles of the interaction order (Bates, 2018). The experiences of Saule Pakenaite and her sister, Georgina Spray, and Corey Wood, as referenced earlier, convey the debilitating impact of overt forms of harassment and abuse together with the fear of such hostile confrontations. This can lead to forms of management (e.g., wearing a face covering even when uncomfortable and not legally obligated) and, in some cases, withdrawal from public spaces altogether.
Such lived experiences demonstrate how disability is, as geographical analyses highlight, an embodied experience that is collectively produced in and through space “at the confluence of individual experiences of impairment, and social relations and attitudes” (Edwards & Maxwell, 2023: 4). Interactions with unknown others, inanimate objects (e.g., face coverings), and physical environments shape disabled people’s experiences of safety and belonging (Edwards & Maxwell, 2023). In the media case studies cited above, we can argue that these are examples of how public interactions are affected and governed by ableist assumptions, and that experiences of harassment shape how some disabled people navigate public space. This has also been evident in how public space was reorganized throughout the COVID-19 pandemic, such as outdoor dining areas on pavements that afforded little attention to people with limited mobility and/or visual impairments. This feeds into a history in disability studies of examining how State policies, architecture, and social interactions intermesh to “lock” disabled people out (Imrie, 1996). Although disability studies is integral for understanding how the physicality of, and interactions occurring in, public spaces produces spaces of exclusion, supplementing this with contributions from the sociology of the everyday enables us to give weight to the taken-for-granted, everyday experiences of disabled people, especially in the context of the COVID-19 pandemic. We discuss this below, namely unmasking what may be glossed over, “invisible,” or misread as worthy of sociological inquiry.
Sociology of the Everyday: In/Visibility, Materiality, and the Interaction Order
Across the course of the pandemic, face coverings became a routine practice in the ability and permissibility to be in public space. Alongside hand sanitizers, they became one of many mundane materialities (Pink et al., 2014), dwelling alongside other objects, such as house keys, mobile phones, and wallets. Like other micro socio-material encounters, face coverings evoke older traditions in sociological understandings of the everyday interactions, such as De Certeau’s (1980) everyday practices and strategies, Goffman’s (1959) analysis of the interaction order and Elias’ (1939/2000) work on the civilizing process. Indeed, contributions from symbolic interactionism, ethnomethodology, and affiliated subfields have captured the complexities of everyday life practices, cultures, and spaces, and how banal face-to-face interactions add up to ordinary yet powerful symbolic rituals.
As Rawls and Gibson (2020) remind us, people (unconsciously) draw upon tacit expectations in situated encounters, and failures to ratify/recognize conceptions of self can strip people of presentations that they claim. With respect to COVID-19, face coverings mediate social interaction in ways that disrupt “ordinary” (Neal & Murji, 2015) expectations as well as recognized obligations and etiquettes. Indeed, routine moments can reproduce divisions and forms of in/exclusion (Latimer & Thomas, 2015). Yet, as recognized above, for some disabled people, face coverings have been difficult (or not possible) to incorporate into everyday routines, which bears with it cultural, political, and moral meanings (Lupton et al., 2021). In such situations, they have been cast as lacking care or concern for others. The experiences of Saule and Karolina Pakenaite, Louise Sharp, and Georgina Spray, as examples, show just what is at stake when a visible disclaimer for not wearing a face covering is absent. Stares, comments, and outright condemnation translate into moments of stigma. Goffman (1963) recognizes how stigma is not a trait, or “attribute,” that belongs to a person or persons. Rather, stigma is a product of social interaction. When individuals are not able to maintain a “personal front” and meet “normative expectations,” they are set apart and become “nonplussed, out of countenance, embarrassed, experiencing the kind of anomaly that is generated when the minute social system of face-to-face interaction breaks down” (Goffman, 1959: 23–24).
Thus, for Goffman, stigma emerges in interaction through stares, comments, glances, and gestures. With face coverings, the social order becomes fractured when normative expectations (i.e., that a person wears a face covering) are not realized, resulting in (frequently hostile) reminders that such a person has acted out of “lines” (Goffman, 1959). Because of such moments, or fears of them, some disabled people—like Corey Wood and Paul Feeley—report using materials in an attempt to sooth potentially fragile interactions and to “pass” (Goffman, 1963) without scrutiny or judgment. Face coverings or other materials—such as the Hidden Disabilities Sunflower Lanyard (intended to be “a discreet way to choose to make the visible, invisible” [Hidden Disabilities, 2021]) and the National Disabled Identification Card (launched in 2015)—reflect a broader history of disabled people negotiating notions of il/legitimacy and in/visibility in public spaces with the use of material belongings (White, 2020).
The use of a lanyard or other tool—what Dokumaci (2020) calls an “affordance,” namely the devices which disabled people use to create conditions of live-ability—can be perceived as offering resistive potential. However, Alice Wong (2018: 89) reminds us that the visibility afforded by devices, such as a white cane, is a ‘double-edged sword’; “while it may lead to more help from strangers, it also marks people as disabled and exposes them to ableism, or discrimination against people with disabilities.” Regarding face coverings, using materials to signify exemptions did not always achieve the desired effect, as the experiences of Paul Feeley and Corey Wood (documented above) make clear.
As disabled people’s encounters with space are tied into their relations with (unknown) others (Edwards & Maxwell, 2023), wearing a face covering necessitates an interdependency of recognition and understanding from others that is not always afforded to them. Moreover, people with invisible impairments may feel fraudulent when negotiating access (White, 2023), due to the difficulties associated with receiving recognition and thus support. Pritchard (2020) explores how, in being denied or challenged access to public space, therein lies a hierarchy of impairment. Such “incongruous encounters,” for Pritchard, are told through challenges in access to toilets and parking spaces, where access is regulated and policed by others. Upon first glance, Pritchard says, material devices offer a productive solution for processes of dis/ablism in public spaces. Yet, such socio-material encounters rely on processes of recognition and proof of one’s impairment or health condition. Relentless efforts to sanction presence in public can be both daunting and exasperating. Within the case of the COVID-19 pandemic and specifically face coverings or devices supporting exemption, while materials can, and have, become important markers for assistance, their use/non-use can attract unwanted attention. The skepticism held by non-disabled others is perhaps fueled by wider perceptions of a U.K. welfare imaginary, where disabled people are understood as feigning impairment to receive services and immunities. 6
Discussion: New Everyday Encounters, Unmasking Old Exclusions?
It is our contention in this article that, by bringing together disability studies and the sociology of the everyday, we can make sense of how face coverings and their use/non-use have been positioned throughout the pandemic. Given the changing nature of the pandemic, we recognize that the focus of face coverings is perhaps temporally and geographically limited. At the time of writing, all COVID-19-related restrictions in the United Kingdom—including using face coverings in public spaces—have ceased. Yet, face coverings may still be worn by those who choose to do so and, with the spread of COVID-19 persisting, many continue to advocate for their use. As such, face coverings may continue to be part of public life for some time. We can note, too, that while face coverings may continue to be optional, signaling hidden disabilities in public space will continue to be an ongoing concern for some individuals; masks are merely part of a longer trajectory about disability access, rights, and legitimacy in public space (Pritchard, 2020).
We end this article with two observations. Our first observation is First, the value of uniting disability studies with the sociology of the everyday. Encounters with face coverings happen as somewhat small, yet significant, everyday interactions in public life. This is why attention to the micro and the everyday is particularly significant in seeking to sociologically understand the experiences of face coverings in public space. We have sought to tell this story in three ways. First, through understanding the significance of what may or may not be visible in embodied social lives. Second, by highlighting how face coverings, or affiliated cards and lanyards in their absence, have acted as material devices in seeking to preserve or protect interactions (Dokumaci, 2020; Wong, 2018). Third, by signaling the significance of social interaction and the socio-material relations (Lupton et al., 2021) with the sociology of the everyday in mind (Neal & Murji, 2015), we come to see how people are read, judged and thus, marked out and excluded from public social life. Of course, attention to the micro is always in relation to the macro, supported by the theorizations within the directions of disability studies and its unifying commitment to highlighting structural oppression. The face coverings are, thus, a material artifact in which these two fields collide, highlighting everyday encounters and their relationship to oppression and exclusion. The face covering is a conduit in which we can share stories of sociality, care, and interdependency, while simultaneously recognizing, and paying particular attention to, the structural forces and narratives that focus in on this and, indeed, take away from macro mechanisms that have failed disabled people and their families.
Our second observation is that face coverings are another example during the COVID-19 pandemic where disabled people have been overlooked, slighted, and disproportionately affected, in which their entitlement to being present is threatened (Goggin & Ellis, 2020; Shakespeare et al., 2021). We know that in the U.K.’s first national lockdown, the death rate for people with learning disabilities aged 18 to 30 was reported as 30 times higher than people without learning disabilities (Williamson et al., 2021). Disabled people made up 6 in 10 (59.5%) of all deaths involving COVID-19 for the period to 20 November 2020, despite making up only 17.2% of the study population (Public Health England, 2020). According to the latest Office for National Statistics (ONS, 2022) analysis, a “significantly greater risk of death” remains for all disabled people compared with non-disabled people, and this remains largely unchanged across the “three waves” of the pandemic. We can also consider how disabled people in the United Kingdom were frequently: marked as disposable in public discourses of “herd immunity” (Liddiard, 2020); disregarded in public health messaging (e.g., no British Sign Language interpreters at Government policy briefings in England); overlooked for vaccine and Personal Protective Equipment provisions; designated as “non-entitled bodies” (McLaughlin, 2020) through, for example, the implementation of blanket “do not resuscitate orders,” and; devalued through the early adoption (and later abandonment) of the Clinical Frailty Scale (that devalues dependence) to determine admission to critical care and/or ventilator access. 7
During the pandemic, we have repeatedly witnessed how disabled people face societal barriers and discrimination worsened not simply by their underlying impairments, but by the action and failures of Government and institutional actors (Shakespeare et al., 2021). Disablism and ableism define COVID-19; ableist imperatives deem impaired bodies/minds as of lesser value and subject to different priorities than “the abled” (Liddiard, 2020). Although our lives have been radically transformed, disabled people have been disproportionally affected (Schillmeier, 2020), not least in encountering dis/ablist assumptions about health, quality of life, and social utility (Scully, 2020). The debates around face coverings, we contend, is simply another instance of mistreatment and being treated as an “afterthought” (Shakespeare et al., 2021: 10). In her account of how her own reactions to disability-imposed lockdown “remain unrecognized, invalidated, and unseen,” Heidi Lourens (Lourens & Watermeyer, 2023: 1) claims that “my experiences of lockdown during the Coronavirus pandemic are not altogether different from my everyday experiences as a visually impaired person.” We are not suggesting that implementing face coverings as a mandatory measure in public spaces constitutes an explicit attack on, or conscious hostility toward, disabled people. Rather, we contend that the rollout of face coverings, and its affiliated policies, have fed into disablist assumptions and reflects a lack of awareness of “commonly accepted norms of form and function are not necessarily universal” (Scully, 2020: 4).
We hope, in this article, to have ignited several points worthy of further enquiry and to inspire empirical research on such matters. The empirical grounds are limitless, yet we are acutely aware that we are making projections and speaking for the lived embodied realities of disabled persons. More empirical work privileging the voices of, and led by, disabled people must be carried out to supplement and support the reports of disability organizations and charities and disability rights groups. There is much to unmask in the course of the pandemic and beyond, and the debates around face coverings simply suggest a new example of how ableism and disablism are woven into the fabric of everyday life. It is by telling such stories that the violence of concealment, as enabled by disablism, is troubled (Lourens & Watermeyer, 2023), and we can work toward cultivating more convivial and validating public spaces for disabled people.
Footnotes
Declaration of Conflicting Interests
The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Funding
The author(s) received no financial support for the research, authorship, and/or publication of this article.
