Rheumatoid Arthritis Exploratory Survey: Voices of Three Key Stakeholders (Patients,Caregivers,and Health Care Professionals)

Abstract

Background:

Rheumatoid arthritis (RA) is a chronic, systemic autoimmune disorder that is associated with reduced quality of life, physical and emotional distress, and financial strain on caregivers and health care systems. Although RA has been thoroughly researched, the psychological effects and lived experiences of patients and caregivers remain underexplored.

Objectives:

To evaluate the perspectives of patients with RA, caregivers, and health care professionals (HCPs) involved in RA management.

Design:

Online cross-sectional exploratory survey.

Methods:

The survey was conducted from December 20, 2024, to January 13, 2025, focusing on patients with RA, caregivers, and HCPs. Individualized questionnaires for each group collected data on disease impact, treatment experiences, mental well-being, and systemic deficiencies. Descriptive statistics were used to analyse and summarize the responses.

Results:

Out of 25 patient responders, majority were old females, with 60% reporting severe limitations in daily activities and 72% experiencing disrupted sleep and fatigue. Only 20% were satisfied with their treatment plans. Among 23 caregivers, 74% reported negative impacts on relationships and social lives, and 35% lacked adequate knowledge about RA. Of 13 HCPs, most prioritized patient education and identified treatment adherence, financial constraints, and communication gaps as major challenges. Only 46% routinely referred patients to support organizations.

Conclusion:

The study highlights areas related to patient-centred care, enhanced provider-patient communication, and improved caregiver support. The integration of psychosocial support and education into RA care strategies may support overall care approaches.