Although the effectiveness of function-based interventions in meeting the behavioral support needs of students with intellectual and developmental disabilities has been explored extensively, the social validity of function-based interventions from the perspective of students with intellectual and developmental disabilities has received less attention in the research literature. Therefore, our purpose was to conduct a systematic literature review of single-case function-based intervention research studies conducted in PK–12 U.S. school settings between 2006 and 2022 to understand the prevalence of the participation of students with intellectual and developmental disabilities in social validity assessments. We identified 142 reports that met our inclusion criteria. Of those, only 11 included social validity assessments involving students with intellectual and developmental disabilities, suggesting a critical need to incorporate student voice in function-based intervention and explore meaningful social validity assessment practices for this student population.
BambaraL. M.DueñasA. D.DwyerP. (2025). Positive behaviour support and the neurodiversity perspective. International Journal of Positive Behavioural Support, 15(1), 4–22.
4.
BeahmL. A.CookB. G.McLucasA.EllisK.BradshawC. P. (2024). A systematic review of the evaluation of social validity in experimental examinations of tier 2 schoolwide positive behavior interventions. Journal of Positive Behavior Interventions, 27(1), 50–62. https://doi.org/10.1177/10983007241230596
BeneteauE. (2020). Who are you asking? Qualitative methods for involving AAC users as primary research participants. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems (pp. 1–13). Association for Computing Machinery. https://doi.org/10.1145/3313831.3376883
7.
CarpenterM. E.LoY-yWalkerV. L.MasudA. B.TappM. C. (2023). Effects of check-in/check-out on the behavior of students with autism spectrum disorder who have extensive support needs. Psychology in the Schools, 60(9), 3504–3519. https://doi.org/10.1002/pits.22934
8.
CollinsL. W.ZirkelP. A. (2017). Functional behavior assessments and behavior intervention plans: Legal requirements and professional recommendations. Journal of Positive Behavior Interventions, 19(3), 180–190. https://doi.org/10.1177/1098300716682201
9.
*CourtemancheA.SheldonJ.ShermanJ.SchroederS.BellA.HouseR. (2014). Assessing the effects of a staff training package on the treatment integrity of an intervention for self-injurious behavior. Journal of Developmental and Physical Disabilities, 26(4), 371–389. https://doi.org/10.1007/s10882-014-9372-6
10.
DavidM.MasonR. A.DavisJ. L.GregoriE.LeiQ.LoryC.WangD. (2023). School-based interventions targeting challenging behavior of adolescents with developmental disabilities: A meta-analysis. Journal of Developmental and Physical Disabilities, 35(1), 17–46. https://doi.org/10.1007/s10882-022-09841-0
DunlapG.FoxL. (2011). Function-based interventions for children with challenging behavior. Journal of Early Intervention, 33(4), 333–343. https://doi.org/10.1177/1053815111429971
13.
EisenhowerA. S.BlacherJ.BushH. H. (2015). Longitudinal associations between externalizing problems and student–teacher relationship quality for young children with ASD. Research in Autism Spectrum Disorders, 9, 163–173. https://doi.org/10.1016/j.rasd.2014.09.007
14.
FergusonJ. L.CihonJ. H.LeafJ. B.Van MeterS. M.McEachinJ.LeafR. (2019). Assessment of social validity trends in the Journal of Applied Behavior Analysis. European Journal of Behavior Analysis, 20(1), 146–157. https://doi.org/10.1080/15021149.2018.1534771
*Frank-CrawfordM. A.BorreroJ. C.NewcombE. T.DoanT.FisherA.RookerG. W. (2021). Accumulated and distributed response-reinforcer arrangements during the treatment of escape-maintained problem behavior. Journal of Applied Behavior Analysis, 54(4), 1566–1585. https://doi.org/10.1002/jaba.870
17.
*FriedmanA.LuiselliJ. K. (2008). Excessive daytime sleep: Behavioral assessment and intervention in a child with autism. Behavior Modification, 32(4), 548–555. https://doi.org/10.1177/0145445507312187
18.
GohA. E.BambaraL. M. (2012). Individualized positive behavior support in school settings: A meta-analysis. Remedial and Special Education, 33(5), 271–286. https://doi.org/10.1177/0741932510383990
19.
GohA. E.DroganR. R.PapayC. K. (2017). Function-based interventions for children with autism spectrum disorders in schools: A review. International Journal of Special Education, 32(1), 115–133. https://eric.ed.gov/?id=EJ1237132
20.
HornerR. H.CarrE. G.HalleJ.OdomS.WoleryM. (2005). The use of single-subject research to identify evidence-based practice in special education. Exceptional Children, 71(2), 165–179. https://doi.org/10.1177/001440290507100203
21.
HughesM. M.ShawK. A.DiRienzoM.DurkinM. S.EslerA.Hall-LandeJ.WigginsL.ZahorodnyW.SingerA.MaennerM. J. (2023). The prevalence and characteristics of children with profound autism, 15 sites, United States, 2000-2016. Public Health Reports, 138, 971–980. https://doi.org/10.1177/00333549231163551
22.
HuntingtonR. N.BadgettN. M.BristolR. M.McIntoshJ.KellyE. M.BravoA.ByunY. H.ParkM. S.GreenyK. (2024). A descriptive assessment of social validity source, timing, and direct consumer inclusion in behavior analytic research. Perspectives on Behavior Science, 47, 691–711. https://doi.org/10.1007/s40614-024-00401-9
23.
HurlK.WightmanJ.HaynesS. N.Virues-OrtegaJ. (2016). Does a pre-intervention functional assessment increase intervention effectiveness? A meta-analysis of within-subject interrupted time-series studies. Clinical Psychology Review, 47, 71–84. https://doi.org/10.1016/j.cpr.2016.05.003
JeongY.CopelandS. R. (2020). Comparing functional behavior assessment-based interventions and non-functional behavior assessment-based interventions: A systematic review of outcomes and methodological quality of studies. Journal of Behavioral Education, 29(1), 1–41. https://doi.org/10.1007/s10864-019-09355-4
26.
JohnsonH. N.CarpenterM. E. (2022). Including student input as a critical component of functional behavior assessment. Beyond Behavior, 31(3), 175–184. https://doi.org/10.1177/10742956221108365
27.
KennedyC. H. (2002). The maintenance of behavior change as an indicator of social validity. Behavior Modification, 26(5), 571–699. https://doi.org/10.1177/014544502236652
28.
KramerJ. M.KramerJ. C.García-IriarteE.HammelJ. (2010). Following through to the end: The use of inclusive strategies to analyze and interpret data in participatory action research with individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 24(3), 263–273. https://doi.org/10.1111/j.1468-3148.2010.00602.x
29.
KurthJ. A.RupparA. L.ToewsS. G.McCabeK. M.McQuestonJ. A.JohnstonR. (2019). Considerations in placement decisions for students with extensive support needs: An analysis of LRE statements. Research and Practice for Persons with Severe Disabilities, 44(1), 3–19. https://doi.org/10.1177/1540796918825479
30.
LedfordJ. L.HallE.ConderE.LaneJ. D. (2016). Research for young children with autism spectrum disorders: Evidence of social and ecological validity. Topics in Early Childhood Special Education, 35(4), 223–233. https://doi.org/10.1177/0271121415585956
31.
LedfordJ. L.LambertJ. M.PustejovskyJ. E.ZimmermanK. N.HollinsH.BartonE. E. (2023). Single-case-design research in special education: Next-generation guidelines and considerations. Exceptional Children, 89(4), 379–396. https://doi.org/10.1177/00144029221137656
32.
LloydB. P.BartonE. E.Ledbetter-ChoK.PenningtonB.PokorskiE. A. (2019). Function-based interventions in K–8 general education settings: A focus on teacher implementation. The Elementary School Journal, 119(4), 601–628. https://doi.org/10.1086/703114
33.
LoryC.MasonR. A.DavisJ. L.WangD.KimS. Y.GregoriE.DavidM. (2020). A meta-analysis of challenging behavior interventions for students with developmental disabilities in inclusive school settings. Journal of Autism and Developmental Disorders, 50(4), 1221–1237. https://doi.org/10.1007/s10803-019-04329-x
McDonaldK. E.StackE. (2016). You say you want a revolution: An empirical study of community-based participatory research with people with developmental disabilities. Disability and Health Journal, 9(2), 201–207. https://doi.org/10.1016/j.dhjo.2015.12.006
36.
McGillO.RobinsonA. (2021). “Recalling hidden harms”: Autistic experiences of childhood applied behavioural analysis (ABA). Advances in Autism, 7(4), 269–282. https://doi.org/10.1108/AIA-04-2020-0025
MorrisC.OliveiraJ. P.PerrinJ.FedericoC. A.MartasianP. J. (2024). Toward a further understanding of assent. Journal of Applied Behavior Analysis, 57(2), 304–318. https://doi.org/10.1002/jaba.1063
39.
*NewcombE. T.WrightJ. A.CamblinJ. G. (2019). Assessment and treatment of aggressive behavior maintained by access to physical attention. Behavior Analysis, 19(3), 222–231. https://doi.org/10.1037/bar0000136
40.
NicolaidisC.RaymakerD.McDonaldK.DernS.AshkenazyE.BoisclairC.RobertsonS.BaggsA. (2011). Collaboration strategies in nontraditional community-based participatory research partnerships: Lessons from an academic-community partnership with autistic self-advocates. Progress in Community Health Partnerships: Research, Education, and Action, 5(2), 143–150. https://doi.org/10.1353/cpr.2011.0022
41.
PageM. J.McKenzieJ. E.BossuytP. M.BourtonI.HoffmanT. C.MulrowC. D.ShamseerL.TetzlaffJ. M.AklE. A.BrennanS. E.ChouR.GlanvilleJ.GrimshawJ. M.HróbjartssonA.LaluM.LiT.LoderE. W.Mayo-WilsonE.McDonaldS.. . .MoherD. (2021). The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. The BMJ, 372(71), 1–9. https://doi.org/10.1136/bmj.n71
42.
*PotterJ. N.HanleyG. P.AugustineM.ClayC. J.PhelpsM. C. (2013). Treating stereotypy in adolescents diagnosed with autism by refining the tactic of “using stereotypy as reinforcement..”Journal of Applied Behavior Analysis, 46(2), 407–423. https://doi.org/10.1002/jaba.52
43.
*RomaniP. W.AlcornA. S.MillerJ. R.ClarkG. (2017). Preference assessment for dimensions of reinforcement to inform token economies targeting problem behavior. Journal of Behavioral Education, 26, 221–237. https://doi.org/10.1007/s10864-017-9270-y
44.
RoseV.TrembathD.KeenD.PaynterJ. (2016). The proportion of minimally verbal children with autism spectrum disorder in a community-based early intervention programme. Journal of Intellectual Disability Research, 60(5), 464–477. https://doi.org/10.1111/jir.12284
45.
SchwartzI. S.BaerD. M. (1991). Social validity assessments: Is current practice state of the art?Journal of Applied Behavior Analysis, 24(2), 189–204. https://doi.org/10.1901/jaba.1991.24-189
46.
ShogrenK. A.ShawL. A.WehmeyerM. L.ThompsonJ. R.LangK. M.TasséM. J.SchalockR. L. (2017). The support needs of children with intellectual disability and autism: Implications for supports planning and subgroup classification. Journal of Autism and Developmental Disorders, 47(3), 865–877. https://doi.org/10.1007/s10803-016-2995-y
47.
Simó-PinatellaD.Mumbardó-AdamC.Alomar-KurzE.SugaiG.SimonsenB. (2019). Prevalence of challenging behaviors exhibited by children with disabilities: Mapping the literature. Journal of Behavioral Education, 28(3), 323–343. https://doi.org/10.1007/s10864-019-09326-9
48.
SnodgrassM. R.ChungM. Y.KretzerJ. M.BiggsE. E. (2022). Rigorous assessment of social validity: A scoping review of a 40-year conversation. Remedial and Special Education, 43(2), 114–130. https://doi.org/10.1177/07419325211017295
49.
SnodgrassM. R.CookB. G.CookL. (2023). Considering social validity in special education research. Learning Disabilities Research & Practice, 38(4), 311–319. https://doi.org/10.1111/ldrp.12326
50.
*StropnikM. (2011). Assessment and treatment of off-task behavior exhibited by adolescents with autism in vocational contexts. ProQuest Dissertations Publishing.
51.
Tager-FlusbergH.KasariC. (2013). Minimally verbal school-aged children with autism spectrum disorder: The neglected end of the spectrum: Minimally verbal children with ASD. Autism Research, 6(6), 468–478. https://doi.org/10.1002/aur.1329
52.
TullisC. A.Cannella-MaloneH. I.BasbigillA. R.YeagerA.FlemingC. V.PayneD.WuP.-F. (2011). Review of the choice and preference assessment literature for individuals with severe to profound disabilities. Education and Training in Autism and Developmental Disabilities, 46(4), 576–595. https://www.jstor.org/stable/24232368
53.
Van GoidsenhovenL.De SchauwerE. (2022). Relational ethics, informed consent, and informed assent in participatory research with children with complex communication needs. Developmental Medicine & Child Neurology, 64(11), 1323–1329. https://doi.org/10.1111/dmcn.15297
54.
WalkerV. L.ChungY.-C.BonnetL. K. (2018). Function-based intervention in inclusive school settings: A meta-analysis. Journal of Positive Behavior Interventions, 20(4), 203–216. https://doi.org/10.1177/1098300717718350
55.
WestlingD. L. (2010). Teachers and challenging behavior: Knowledge, views, and practices. Remedial and Special Education, 31(1), 48–63. https://doi.org/10.1177/0741932508327466
56.
WolfM. M. (1978). Social validity: The case for subjective measurement or how applied behavior analysis is finding its heart. Journal of Applied Behavior Analysis, 11(2), 203–214. https://doi.org/10.1901/jaba.1978.11-203
57.
WoodB. K.OakesW. P.FettigA.LaneK. L. (2015). A review of the evidence base of functional assessment-based interventions for young students using one systematic approach. Behavioral Disorders, 40(4), 230–250. https://doi.org/10.17988/0198-7429-40.4.230
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