Increasing attention is being given to the fact that positive behavior support (PBS) not only affects individual quality of life but branches out to affect family quality of life as well. This article provides a brief overview of family quality of life, citing specific information from the Beach Center Family Quality of Life Scale. An analysis of four key research studies, which contain both a PBS and a family component, is presented with links to the Beach Center Family Quality of Life Scale domains and indicators. This analysis leads to a discussion of emerging themes and explores implications for future research and practice.
Get full access to this article
View all access options for this article.
References
1.
Allen, R.I., & Petr, C.G. (1996). Toward developing standards and measurements for family-centered practice in family support programs. In G. H. S. Singer, L. E. Powers, & A. L. Olson (Eds.), Redefining family support: Innovations in public-private partnerships (pp. 57—86). Baltimore: Brookes .
2.
Brown, I., & Brown, R.I. (2004). Family quality of life as an area of study. In A. P. Turnbull, I. Brown, & H. R. Turnbull, III (Eds.), Families and people with mental retardation and quality of life: International perspective. Washington, DC: American Association on Mental Retardation.
3.
Brown, I., Isaacs, B., McCormack, B., Baum, N., & Renwick, R. (2004). Family quality of life in Canada. In A. P. Turnbull, I. Brown , & H. R. Turnbull, III (Eds.), Families and people with mental retardation and quality of life: International perspectives. Washington, DC: American Association on Mental Retardation.
4.
Brown, R., Davey, R., Shearer, J., & Kyrkou, M. (2004). Family quality of life in Australia. In A. P. Turnbull, I. Brown , & H. R. Turnbull III (Eds.), Family quality of life: An international perspective. Washington, DC: American Association on Mental Retardation .
5.
Carr, E.G., Horner, R.H., Turnbull, A.P., Marquis, J., Magito-McLaughlin, D., McAtee, M.L., et al. (1999). Positive behavior support as an approach for dealing with problem behavior in people with developmental disabilities: A research synthesis. Washington, DC: American Association on Mental Retardation.
6.
Cummins, R.A. (1997). Assessing quality of life. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (pp. 116— 150). Cheltenham, UK: Stanley Thornes.
7.
Dunlap, G., & Fox, L. (1999). A demonstration of behavioral support for young children with autism. Journal of Positive Behavior Interventions , 1(2), 77—87.
8.
Dunst, C.J., Johnson, C., Trivette, C., & Hamby, D. (1991, October—November). Family-oriented early intervention policies and practices: Family-centered or not?Exceptional Children, 58(2), 115—126.
9.
Felce, D. (1997). Defining and applying the concept of quality of life. Journal of Intellectual Disability Research, 41(2), 126—135.
10.
Fox, L., Benito, N., & Dunlap, G. (2002). Early intervention with families of young children with autism and behavior problems. In J. M. Lucyshyn, G. Dunlap, & R. W. Albin (Eds.), Families & positive behavior support: Addressing problem behavior in family contexts. Baltimore: Brookes.
11.
Fox, L., Vaughn, B.J., Dunlap, G., & Bucy, M. (1997). Parent-professional partnership in behavioral support: A qualitative analysis of one family's experience. The Journal of the Association for Persons with Severe Handicaps, 22(4), 198—207.
12.
Hughes, C., & Hwang, B. (1996). Attempts to conceptualize and measure quality of life. In R. L. Schalock (Ed.), Quality of life. Vol. 1: Conceptualization and measurement (pp. 51—61). Washington DC: American Association on Mental Retardation .
13.
Lucyshyn, J.M., Albin, R.W., & Nixon, C.D. (2002). Family implementation of comprehensive behavioral support: An experimental, single case analysis. In J. M. Lucyshyn, G. Dunlap, & R. W. Albin (Eds.), Families & positive behavior support: Addressing problem behavior in family contexts. Baltimore: Brookes.
14.
Lucyshyn, J.M., Dunlap, G., & Albin, R.W. (2002). Families & positive behavior support: Addressing problem behavior in family contexts. Baltimore: Brookes.
15.
Neikrug, S.M., Judes, J., Roth, D., & Krauss, B. (2004). Family quality of life in Israel. In A. P. Turnbull, I. Brown , & H. R. Turnbull, III (Eds.), Families and people with mental retardation and quality of life: International perspectives. Washington, DC: American Association on Mental Retardation.
16.
Park, J., Hoffman, L., Marquis, J., Turnbull, A.P., Poston, D., Mannan, H., et al. (2003). Toward assessing family outcomes for service delivery: Validation of a Family Quality of Life Survey. Journal of Intellectual Disability Research, 47(5), 367—384.
17.
Poston, D., Turnbull, A., Park, J., Mannan, H., Marquis, J., & Wang, M. (2003). Family quality of life: A qualitative inquiry . Mental Retardation, 41(5), 313—328.
18.
Risley, T. (1996). Get a life! Positive behavioral intervention for challenging behavior through life arrangement and life coaching. In L. K. Koegel, R. L. Koegel, & G. Dunlap (Eds.), Positive behavioral support: Including people with difficult behavior in the community (pp. 425—438). Baltimore: Brookes .
19.
Schalock, R.L., Brown, I., Brown, R., Cummins, R.A., Felce, D., Matikka, L., et al. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: Report of an international panel of experts. Mental Retardation, 40(6), 457—470.
20.
Singer, G.H.S., Goldberg-Hamblin, S.E., Peckham-Hardin, K.D., Barry, L. & Santarelli, G.E. (2002). Toward a synthesis of family support practices and positive behavior support. In J. M. Lucyshyn, G. Dunlap, & R. W. Albin (Eds.), Families and positive behavior support: Addressing problem behavior in family contexts. Baltimore: Brookes.
21.
Turnbull, A.P., Brown, I., & Turnbull, H.R. , III (2004). Families and people with mental retardation and quality of life: International perspectives. Washington, DC: American Association on Mental Retardation .
22.
Turnbull, A.P., Turbiville, V., & Turnbull, H.R. (2000). Evolution of family-professional partnership models: Collective empowerment as the model for the early 21st century. In S. J. Meisels & J. P. Shonkoff (Eds.), Handbook of early intervention (pp. 630—650). New York: Cambridge University Press.
23.
Turnbull, A.P., Turnbull, H.R., III , Poston, D., Beegle, G., Blue-Banning, M., Diehl, K., et al. (2004). Enhancing quality of life of families of children and youth with disabilities in the United States. In A. P. Turnbull, I. Brown, & H. R. Turnbull, III (Eds.), Families and people with mental retardation and quality of life: International perspectives. Washington, DC: American Association on Mental Retardation .
24.
Wang, M., Turnbull, A.P., Summers, J.A., Little, T.D., Poston, D.J., Mannan, H., et al. (in press). Severity of disability and income as predictors of parents' satisfaction with their family quality of life during early childhood years. Research and Practice for Persons with Severe Disabilities .
