Transitioning out of school is often challenging, especially for young adults with disabilities. Fortunately, parent involvement can enhance the transition process and student outcomes following graduation. However, there is limited information regarding how and why parents provide support to their young adults in high school and college, thus reducing the ability for professionals to maximize parental investment in the well-being of their young adults. The purpose of this study was to learn about parent experiences providing support to their children with disabilities as they age into adulthood. A total of 26 parents of postsecondary education program (PSE) graduates participated in interviews. Participants described how they provided support to their young adults, discussed reasons why they provided support, and offered recommendations for other parents to effectively support their children with disabilities as they age into adulthood.
BezdekJ.SummersJ. A.TurnbullA. (2010). Professionals’ attitudes on partnering with families of children and youth with disabilities. Education and Training in Autism and Developmental Disabilities, 45, 356–365.
2.
BogdanR.BiklenS. K. (2007). Qualitative research for education: An introduction to theories and methods (5th ed.). London, England: Pearson.
3.
BritL.ScottS.CaversD.CampbellC.WalterF. (2016). Member checking: A tool to enhance trustworthiness or merely a nod to validation?Qualitative Health Research, 26, 1802–1811. doi:10.1177/1049732316654870
4.
BronfenbrennerU. (2005). Making human beings human: Bioecological perspectives on human development. Cambridge, MA: Harvard University Press.
5.
ChesmoreA. A.OuS. R.ReynoldsA. J. (2016). Childhood placement in special education and adult well-being. The Journal of Special Education, 50, 109–120. doi:10.1177/0022466915624413
6.
CreswellJ. W. (2009). Research design: Qualitative, quantitative, and mixed methods approaches (3rd ed.). Thousand Oaks, CA: SAGE.
7.
CullatyB. (2011). The role of parental involvement in the autonomy development of traditional-age college students. Journal of College Student Development, 52, 425–439. doi:10.1353/csd.2011.0048
8.
DessemontetR. S.BlessG.MorinD. (2012). Effects of inclusion on the academic achievement and adaptive behaviour of children with intellectual disabilities. Journal of Intellectual Disability Research, 56, 579–587. doi:10.1111/j.1365-2788.2011.01497
9.
Family Educational Rights and Privacy Act (FERPA). 20 U.S.C. § 1232g (1974).
10.
FolkE. D. R.YamamotoK. K.StoddenR. A. (2012). Implementing inclusion and collaborative teaming in a model program of postsecondary education for young adults with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 9, 257–269. doi:10.1111/jppi.12007
11.
FrancisG. L.FuchsE.JohnsonA. D.GordonS.GrantA. (2016). Developing parent-professional partnerships in a postsecondary education program for students with disabilities. Psychology in the Schools, 53, 1045–1056. doi: 10.1002/pits.21974
12.
GriffinM. M.McMillanE. D.HodappR. M. (2010). Family perspectives on post-secondary education for students with intellectual disabilities. Education and Training in Autism and Developmental Disabilities, 45, 339–346.
13.
GrigalM.HartD.SmithF.A.DominD.SulewskiJ.WeirC. (2014). Think College National Coordinating Center: Annual report on the transition and postsecondary programs for students with intellectual disabilities (2012-2013). Boston, MA: University of Massachusetts Boston, Institute for Community Inclusion.
14.
HiranoK. A.RoweD. A. (2016). A conceptual model for parent involvement in secondary special education. Journal of Disability Policy Studies, 27, 43–53. doi:10.1177/1044207315583901
15.
HongB. S. S. (2015). Qualitative analysis of the barriers college students with disabilities experience in higher education. Journal of College Student Development, 56, 209–226.
16.
HongB. S. S.IvyW. F.GonzalezH. R.EhrensbergerW. (2007). Preparing students for postsecondary education: What K-12 teachers and higher education faculty can do to empower students with and without disabilities. TEACHING Exceptional Children, 40, 32–38.
KatzI.MadjarN.HarariA. (2015). Parental support and adolescent motivation for dieting: The self-determination theory perspective. The Journal of Psychology: Interdisciplinary and Applied, 149, 461–479. doi:10.1080/00223980.2014.903890
19.
KiyamaJ. M.HarperC. E.RamosD.AguayoD.PageL. A.RiesterK. A. (2015). Parent and family engagement in higher education. ASHE Higher Education Report, 41, 1–94. doi:10.1002/aehe.20024
20.
MartinezD. C.ConroyJ. W.CerretoM. C. (2012). Parent involvement in the transition process of children with intellectual disabilities: Influence of inclusion on parent desires and expectations for postsecondary education. Journal of Policy and Practice in Intellectual Disabilities, 9, 279–288. doi:10.1111/jppi.12000
21.
MaxwellJ. A. (2005). Qualitative research design: An interactive approach (2nd ed.). Thousand Oaks, CA: SAGE.
22.
MerriamS. B. (2009). Qualitative research: A guide to design and implementation. San Francisco, CA: Jossey-Bass.
23.
OpdenakkerR. (2006). Advantages and disadvantages of four interview techniques in qualitative research. Forum: Qualitative Social Research, 7. Retrieved from http://nbn-resolving.de/urn:nbn:de:0114-fqs0604118
24.
PattonM. Q. (2002). Qualitative evaluation and research methods (3rd. ed.). Newbury Park, CA: SAGE.
25.
PlotnerA. J.MarshallK. J. (2015). Postsecondary education programs for students with an intellectual disability: Facilitators and barriers to implementation. Intellectual and Developmental Disabilities, 53, 58–69.
26.
RuppK.ResslerS. (2009). Family caregiving and employment among parents of children with disabilities on SSI. Journal of Vocational Rehabilitation, 30, 153–175. doi:10.3233/JVR-2009-0460
27.
RussaM. B.MatthewsM. L.Owen-DeschryverJ. S. (2015). Expanding supports to improve the lives of families of children with autism spectrum disorder. Journal of Positive Behavior Interventions, 17, 95–104. doi:10.1177/1098300714532134
28.
SamuelP. S.HobdenK. L.LeRoyB. W.LaceyK. K. (2012). Analysing family service needs of typically underserved families in the USA. Journal of Intellectual Disability Research, 56, 111–128. doi:10.1111/j.1365-2788.2011.01481
29.
SanfordC.NewmanL.WagnerM.CametoR.KnokeyA. M.ShaverD. (2011). The post-high school outcomes of young adults with disabilities up to 6 years after high school: Key findings from the National Longitudinal Transition Study-2 (NLTS2) (NCSER 2011-3004). Menlo Park, CA: SRI International.
30.
ShogrenK. A. (2013). Self-determination and transition planning. Baltimore, MD: Paul H. Brookes.
31.
SoenensB.BeyersW. (2012). The cross-cultural significance of control and autonomy in parent-adolescent relationships. Journal of Adolescence, 35, 243–248. doi:10.1016/j.adolescence.2012.02.007
32.
SteinG. L.GonzalezL. M.CupitoA. M.KiangL.SuppleA. J. (2013). The protective role of familism in the lives of Latino adolescents. Journal of Family Issues, 36, 1255–1273. doi:10.1177/0192513X13502480
33.
TitelmanP. (Ed.). (1998). Clinical applications of Bowen family systems theory. New York, NY: Routledge.
34.
TrainorA. A. (2005). Self-determination perceptions and behaviors of diverse students with LD during the transition planning process. Journal of Learning Disabilities, 38, 233–249. doi:10.1177/00222194050380030501
35.
TrainorA. A. (2010). Reexamining the promise of parent participation in special education: An analysis of cultural and social capital. Anthropology & Education Quarterly, 41, 245–263. doi:10.1111/j.1548-1492.2010.01086.x
36.
TurnbullA. P.TurnbullH. R.ErwinE. J.SoodakL. C.ShogrenK. A. (2015). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust. New York, NY: Pearson.
37.
U.S. Government Accountability Office. (2012). Students with disabilities: Better federal coordination could lessen challenges in the transition from high school: Report to the Ranking Member, Committee on Education and the Workforce, House of Representatives (GAO-12-594). Retrieved from http://www.eric.ed.gov/ERICWebPortal/detail?accno=ED534179
38.
van IngenD. J.MooreL. L.FuemmelerJ. A. (2008). Parental overinvolvement: A qualitative study. Journal of Developmental and Physical Disabilities, 20, 449–465. doi:10.1007/s10882-008-9113-9
39.
WehmanP. (2011). Essentials of transition planning. Baltimore, MD: Paul H. Brookes.
40.
WolcottH. (1990). On seeking—and rejecting—validity in qualitative research. In EisnerE.PeshkinA. (Eds.), Qualitative inquiry in education: The continuing debate (pp. 121–152). New York, NY: Teachers College Press.
41.
WolfensbergerW. (2000). A brief overview of social role valorization. Mental Retardation, 38, 105–123. doi:10.1352/0047-6765(2000)038<0105:ABOOSR>2.0.CO;2
