Mothers of children diagnosed with autism (N = 104) reported higher levels of stress than mothers of typically developing children (N = 342) on 13 of 14 subscales of the Parenting Stress Index. The only scores that did not differ were from the Attachment subscale, which indicates lack of emotional closeness and rather cold patterns of parent-child interaction. Mean Child Domain subscale scores for mothers in the autism group were at the 99th percentile; mean scores on the Attachment subscale were at about the 50th percentile for both groups. Despite substantial stress, mothers of children with autism report close relationships with their children. Results substantiate the need to develop interventions to help these mothers reduce their stress.
Abbeduto, L., Seltzer, M.M., Shattuck, P., Krauss, M.W., Orsmond, G., & Murphy, M.M. ( 2004). Psychological well being & coping in mothers of youths with autism, Down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 3, 237-254.
Affleck, G., McGrade, B.J., Allen, D.A., & McQueeney, M. ( 1985). Mothers’ beliefs about behavioral causes for their developmentally disabled infant’s condition: What do they signify? Journal of Pediatric Psychology, 10, 293-303.
4.
American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed., Text rev.). Washington, DC: Author.
5.
Autism Society of America. (2003). Defining autism. Retrieved January 15, 2005, from http://www.autism-society.org/site/PageServer?pagename=WhatisAutism
6.
Baker, B.L., Blacher, J., Crnic, K.A., & Edelbrook, C. ( 2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107, 433-444.
7.
Bebko, J.M., Konstantareas, M.M., & Springer, J. ( 1987). Parent and professional evaluations of family stress associated with characteristics of autism. Journal of Autism and Developmental Disorders, 17, 565-576.
8.
Bettelheim, B. ( 1967). The empty fortress: Infantile autism and the birth of the self. New York: Free Press.
9.
Bouma, R., & Schweitzer, R. (1990). The impact of chronic childhood illness on family stress: A comparison between autism and cystic fibrosis . Journal of Clinical Psychology, 46, 722-730.
10.
Boyce, G.C., Behl, D., Mortensen, L., & Akers, J. ( 1991). Child characteristics, family demographics and family processes: Their effects on the stress experienced by families of children with disabilities. Counseling Psychology Quarterly, 4, 273-288.
11.
California Department of Developmental Services. ( 2002). Information about Regional Centers. Retrieved September 4, 2002, from http://www.dds.ca.gov
12.
Chavira, V., Lopez, S.R., Blacher, J., & Shapiro, J. ( 2000). Latina mothers’ attributions, emotions, and reactions to the problem behaviors of their children with developmental disabilities . Journal of Child Psychology and Psychiatry, 41, 245-252.
13.
Donenberg, G., & Baker, B.L. ( 1993). The impact of young children with externalizing behaviors on their families. Journal of Abnormal Child Psychology, 21, 179-198.
14.
Duarte, C.S., Bordin, I.A., Yazigi, L., & Mooney, J. ( 2005). Factors associated with stress in mothers of children with autism. Autism: The International Journal of Research and Practice, 9, 416-427.
15.
Dumas, J.E., Wolf, L.C., Fisman, S.N., & Culligan, A. ( 1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development. Exceptionality, 2, 97-110.
16.
Dunn, M.E., Burbine, T., Bowers, C.A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37, 39-51.
17.
Eisenhower, A.A., Baker, B.L., & Blacher, J. ( 2005). Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657-671.
18.
Filipek, P.A., Accardo, P.J., Ashwal, S., Baranek, G.T., Cook, E.H., Jr., Dawson, G., et al. (2000). Practice parameters: Screening and diagnosis of autism. American Academy of Neurology, 55, 468-479.
19.
Fisman, S.N., Wolf, L.C., & Noh, S. ( 1989). Marital intimacy in parents of exceptional children. Canadian Journal of Psychiatry, 34, 519-525.
20.
Floyd, F.J., & Gallagher, E.M. (1997). Parental stress, care demands, and use of support services for children with disabilities and behavior problems . Family Relations, 46, 359-371.
21.
Freeman, N.L., Perry, A., & Factor, D.C. ( 1991). Child behaviours as stressors: Replicating and extending the use of the CARS as a measure of stress: A research note. Journal of Child Psychology and Psychiatry and Allied Disciplines, 32, 1025-1030.
22.
Gabriels, R.L., Cuccaro, M.L., Hill, D.E., Ivers, B.J., & Goldson, E. ( 2005). Repetitive behaviors in autism: Relationships with associated clinical features. Research in Developmental Disabilities , 26, 169-181.
Hastings, R.P. ( 2002). Parental stress and behaviour problems of children with developmental disability. Journal of Intellectual and Developmental Disability, 27, 149-160.
26.
Higgins, D.J., Bailey, S.R., & Pearce, J.C. ( 2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. International Journal of Research and Practice, 9, 125-137.
27.
Innocenti, M.S., Huh, K., & Boyce, G.C. ( 1992). Families of children with disabilities: Normative data and other considerations on parenting stress. Topics in Early Childhood Special Education, 12, 403-427.
28.
Kanner, L. ( 1949). Problems of nosology and psychodynamics of early infant autism. American Journal of Orthopsychiatry, 19, 416-426.
29.
Kasari, C., & Sigman, M. ( 1997). Linking parental perceptions to interactions in young children with autism. Journal of Autism and Developmental Disorders, 27, 39-57.
30.
Keller, D., & Honig, A. ( 2004). Maternal and paternal stress in families with school-aged children with disabilities. American Journal of Orthopsychiatry , 74, 337-348.
31.
Koegel, R.L., Schreibman, L., Loos, L.M., Dirlich-Wilhelm, H., Dunlap, G., Robbins, F.R., et al. (1992). Consistent stress profiles in mothers of children with autism. Journal of Autism and Developmental Disorders, 22, 205-216.
32.
Konstantareas, M.M. ( 1991). Autistic, learning disabled and delayed children’s impact on their parents. Canadian Journal of Behavioral Science , 23, 358-375.
33.
Konstantareas, M.M., & Homatidis, S. ( 1989). Assessing child symptom severity and stress in parents of autistic children. Journal of Child Psychology and Psychiatry , 30, 459-470.
34.
Lecavalier, L. ( 2005). An evaluation of the Gilliam Autism Rating Scale. Journal of Autism and Developmental Disorders, 35, 795-805.
35.
Margalit, M., Raviv, A., & Ankonina, D.B. (1992). Coping and coherence among parents with disabled children. Journal of Clinical Child Psychology, 21, 202-209.
36.
Milgrim, N.A., & Atzil, M. ( 1988). Parenting stress in raising autistic children. Journal of Autism and Developmental Disorders, 18, 415-424.
37.
Minnes, P., McShane, J., Forkes, S.Green, S., Clement, B., & Card, L. ( 1989). Coping resources of parents of developmentally handicapped children living in rural communities. Australia and New Zealand Journal of Developmental Disabilities, 15, 109-118.
38.
Morsbach, S.K., & Prinz, R.J. ( 2006). Understanding and improving the validity of self-report of parenting. Clinical Child and Family Psychology Review , 9, 1-19.
39.
National Research Council. (2001). Educating children with autism. Washington, DC: National Academic Press.
40.
Noh, S., Dumas, J.E., Wolf, L.C., & Fisman, S.N. ( 1989). Delineating sources of stress in parents of exceptional children. Family Relations: Journal of Applied Family and Child Studies, 38, 456-461.
41.
Norton, P., & Drew, C. ( 1994). Autism and potential family stressors. American Journal of Family Therapy, 22, 67-76.
42.
Perry, A. ( 2005). A model of stress in families of children with developmental disabilities: Clinical and research applications. Journal on Developmental Disabilities, 11, 1-16.
43.
Perry, A., Harris, K., & Minnes, P. ( 2005). Family environments and family harmony: An exploration across severity, age, and type of dd. Journal on Developmental Disabilities, 11, 17-29.
44.
Rodrigue, J.R., Morgan, S.B., & Geffken, G. ( 1990). Families of autistic children: Psychological functioning of mothers. Journal of Clinical Child Psychology, 19, 371-379.
45.
South, M., Williams, B.J., McMahon, W.M., Owley, T., Filipek, P.A., Shernoff, E., et al. (2002). Utility of the Gilliam Autism Rating Scale in research and clinical populations. Journal of Autism and Developmental Disorders, 32, 593-599.
46.
Sweeney, D.P., & Hoffman, C.D. ( 2004). Research issues in autism spectrum disorders. In R. B. Rutherford, M. M. Quinn, & S. R. Mathur (Eds.), Handbook of research in emotional and behavioral disorders, (pp. 302-317). New York: Guilford.
47.
Tobing, L.E., & Glenwick, D.S. (2002). Relation of the Childhood Autism Rating Scale-Parent Version to diagnosis, stress, and age. Research in Developmental Disabilities, 23, 211-223.
48.
Tomanik, S., Harris, G.E., & Hawkins, J. ( 2004). The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disabilities, 29, 16-26.
