Over the last few decades, the field of mental retardation has embraced the concept of quality of life as both a sensitizing notion and an overarching principle for service delivery. This article summarizes the current understanding of the quality of life construct by examining previous efforts at defining and clarifying the concept, and examines issues that will affect the utility of the construct well into the new century.
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References
1.
Albin-Dean, J.M., & Mank, D.M. (1997). Continuous improvement and quality of life: Lessons from organizational management. In R. L. Schalock (Ed.), Quality of life: Vol. 2. Application to persons with disabilities (pp. 165-179). Washington, DC: American Association on Mental Retardation.
2.
Andrews, F.M. (1974). Social indicators of perceived quality of life . Social Indicators Research, 1, 279-299.
3.
Brown, R. I. (Ed.). (1997). Quality of life for people with disabilities: Models, research and practice. Cheltenham, UK: Stanley Thornes.
4.
Clifford, D.L., & Sherman, P. (1983). Internal evaluation: Integrating program evaluation and management. In A. J. Love (Ed.), Developing effective internal evaluation: New directions for program evaluation (No. 20). San Francisco: Jossey-Bass.
5.
Coulter, D.L. (1997). Health-related application of quality of life . In R. L. Schalock (Ed.), Quality of life: Vol. 2. Application to persons with disabilities (pp. 95-104). Washington, DC: American Association on Mental Retardation .
6.
Cummins, R.A. (1996). The domains of life satisfaction: An attempt to order chaos. Social Indicators Research, 38, 303-328.
7.
Cummins, R.A. (1997a). Assessing quality of life. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (pp. 116-150). Cheltenham, UK: Stanley Thornes.
8.
Cummins, R.A. (1997b). Self-rated quality of life scales for people with an intellectual disability: A review. Journal of Applied Research in Intellectual Disabilities, 10, 199-216.
9.
Diener, E. (1984). Subjective well-being. Psychological Bulletin,95, 542-575.
10.
Edgerton, R.B. (1990). Quality of life from a longitudinal research perspective . In R. L. Schalock (Ed.), Quality of life: Perspectives and issues (pp. 149-160). Washington, DC: American Association on Mental Retardation .
11.
Edgerton, R.B. (1996). A longitudinalethnographic research perspective on quality of life. In R. L. Schalock (Ed.), Quality of life: Vol. 1. Conceptualization and measurement (pp. 83-90). Washington, DC: American Association on Mental Retardation .
12.
Elorriaga, J., Garcia, L., Martinez, J., & Unamunzaga, E. (in press). Quality of life of persons with mental retardation in Spain. In K. D. Keith & R L. Schalock (Eds.), Cross-cultural perspectives on quality of life. Washington, DC: American Association on Mental Retardation .
13.
Felce, D. (1997). Defining and applying the concept of quality of life. Journal of Intellectual Disability Research, 41(2), 126-135.
14.
Felce, D., & Perry, J. (1996). Assessment of quality of life. In R. L. Schalock (Ed.), Quality of life: Vol. 1. Conceptualization and measurement (pp. 63-72). Washington, DC : American Association on Mental Retardation.
15.
Felce, D., & Perry, J. (1997a). A PASS 3 evaluation of community residences in Wales. Mental Retardation, 35, 170-176.
16.
Felce, D., & Perry, J. (1997b). Quality of life: The scope of the term and its breadth of measurement. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (pp. 56-70). Cheltenham, UK: Stanley Thornes.
17.
Ferguson, R.V. (1997). Environmental design and quality of life. In R. I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (pp. 56-70). Cheltenham, UK: Stanley Thornes.
18.
Flanagan, J.C. (1978). A research approach to improving quality of life . American Psychologist, 33, 138-147.
19.
Flanagan, J.C. (1982). Measurement of quality of life: Current state of the art. Archives of Physical Medicine and Rehabilitation , 63, 56-59.
20.
Gardner, J.F., & Nudler, S. (1997). Beyond compliance to responsiveness: Accreditation reconsidered. In R. L. Schalock (Ed.), Quality of life: Vol. 2. Application to persons with disabilities (pp. 135-148). Washington, DC: American Association on Mental Retardation .
21.
Gardner, J.F., Nudler, S., & Chapman, M.S. (1997). Personal outcomes as measures of quality. Mental Retardation, 35, 295-305.
22.
Goode, D.A. (1990). Thinking about and discussing quality of life . In R. L. Schalock (Ed.), Quality of life: Perspectives and issues (pp. 41-58). Washington, DC : American Association on Mental Retardation.
23.
Goode, D.A. (1997a). Assessing the quality of life of adults with profound disabilities. In R I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (pp. 56-70). Cheltenham, UK: Stanley Thornes.
24.
Goode, D.A. (1997b). Quality of life as international disability policy: Implications for international research. In R L. Schalock (Ed.), Quality of life: Vol. 2. Applications to persons with disabilities (pp. 211-222). Washington, DC: American Association on Mental Retardation.
25.
Halpern, A.S. (1993). Quality of life as a conceptual framework for evaluating transition outcomes. Exceptional Children, 59, 486-498.
26.
Hammer, M., & Champy, J. (1993). Reengineering the corporation: A manifesto for business revolution. New York: Harper-Collins.
27.
Harner, C.J., & Heal, L.W. (1993). The Multifaceted Lifestyle Questionnaire (MLSS): Psychometric properties of an interview schedule for assessing personal satisfaction of adults with limited intelligence. Research in Developmental Disabilities, 14, 221-236.
28.
Heal, L.W., Borthwick-Duffy, S.A., & Saunders, R.R. (1996). Assessment of quality of life. In J. W. Jacobson & J. A. Mulick (Eds.), Manual of diagnosis and professional practice in mental retardation (pp. 199-209). Washington, DC: American Psychological Association .
29.
Heal, L.W., & Chadsey-Rusch, J. (1985). The Lifestyle Satisfaction Scale (LSS): Assessing individuals' satisfaction with residence, community setting, and associated services. Applied Research in Mental Retardation, 6, 475-490.
30.
Heal, L.W., Khoju, M.R., Rusch, F.R., & Harnisch, D.L. (in press). Predicting quality of life of students who have left special education high school programs. Special Education.
31.
Heal, L.W., Rubin, S.S., & Park, W. (1995). Lifestyle satisfaction scale. Champaign-Urbana: Transition Research Institute, University of Illinois.
32.
Hughes, C., & Hwang, B. (1996). Attempts to conceptualize and measure quality of life. In R. L. Schalock (Ed.), Quality of life: Vol. 1. Conceptualization and measurement (pp. 51-62). Washington, DC: American Association on Mental Retardation .
33.
Lehman, A.F., Rachuba, L.T., & Postrado, L.T. (1995). Demographic influences on quality of life among persons with chronic mental illness. Evaluation and Program Plunning, 18, 155-164.
34.
Maslow, A.H. (1954). Motivation and personality. New York: Harper & Row. Mathison, S. (1991). What do we know about internal evaluation?Evaluation and Program Planning, 14, 159-165.
35.
Michalos, A.C. (1985). Multiple discrepancy theory (MDT). Social Indicators Research, 16, 347-413.
36.
Murrell, S.A., & Norris, F.H. (1983). Quality of life as the criterion for need assessment and community psychology. Journal of Community Psychology , 11, 88-97.
37.
Osborne, D., & Gaebler, T. (1992). Rein-venting government: How the entrepreneurial spirit is transforming the public sector. Reading, MA: Addison-Wesley.
38.
Parmenter, T., & Donelly, M. (1997). An analysis of the dimensions of quality of life . In R I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (pp. 91-114). Cheltenham, UK: Stanley Thornes.
39.
Perry, J., & Felce, D. (1995). Objective assessments of quality of life: How much do they agree with each other?Journal of Community and Applied Social Psychology, 5, 1-19.
40.
Raphael, D. (1996). Defining quality of life: Debates concerning its measurement. In R. Renwick, I. Brown, & M. Nagler (Eds.), Quality of life in health promotion and rehabilitation: Conceptual approaches, issues, and applications (pp. 146-165). Thousand Oaks, CA: Sage.
41.
Rapley, M., & Hopgood, L. (1997). Quality of life in a community-based service in rural Australia. Journal of Intellectual & Developmental Disabilities, 22, 125-141.
42.
Renwick, R., & Brown, I. (1996). The Centre for Health Promotion's conceptual approach to quality of life. In R. Renwick, I. Brown, & M. Nagler (Eds.), Quality of life in health promotion and rehabilitation: Conceptual approaches, issues, and applications (pp. 75-86). Thousand Oaks, CA: Sage.
43.
Renwick, R., Brown, I., & Nagler, M. (Eds.). (1996). Quality of life in health promotion and rehabilitation: Conceptual approaches, issues, and applications. Thousand Oaks, CA: Sage.
44.
Schalock, R. L. (Ed.). (1990). Quality of life: Perspectives and issues. Washington, DC : American Association on Mental Retardation.
45.
Schalock, R.L. (1994). Quality of life, quality enhancement, and quality assurance: Implications for program planning and evaluation in the field of mental retardation and developmental disabilities. Evaluation and Program Planning, 17, 121-131.
46.
Schalock, R.L. (1995a). The assessment of natural supports in community rehabilitation services. In O. C. Karan & S. Greenspan (Eds.), Community rehabilitation services for people with disabilities (pp. 184-203). Newton, MA: Butterworth-Heinemann.
47.
Schalock, R.L. (1995b). Outcome-based evaluation. New York: Plenum Press.
48.
Schalock, R.L. (1996a). The quality of children's lives. In A. H. Fine & N. M. Fine (Eds.), Therapeutic recreation for exceptional children: Let me in, I want to play (2nd ed., pp. 83-94). Springfield, IL: Thomas.
49.
Schalock, R L. (Ed.). (1996b). Quality of life: Vol. 1. Conceptualization and measurement. Washington, DC: American Association on Mental Retardation .
50.
Schalock, R.L. (1996c). Reconsidering the conceptualization and measurement of quality of life. In R. L. Schalock (Ed.), Quality of life: Vol. 1. Conceptualization and measurement. Washington, DC: American Association on Mental Retardation .
51.
Schalock, R.L. (1997a). The concept of quality of life in 21st century disability programs. In R I. Brown (Ed.), Quality of life for people with disabilities: Models, research and practice (pp. 327-340). Cheltenham, UK: Stanley Thornes.
52.
Schalock, R.L. (1997b). Quality of life: Vol. 2. Application to persons with disabilities. Washington, DC: American Association on Mental Retardation.
53.
Schalock, R.L. (1999). A quest for quality: Achieving organizational outputs and personal outcomes. In J. Gardner & S. Nudler (Eds.), Quality performance in human services (pp. 55-80). Baltimore : Brookes.
54.
Schalock, R.L., Bontham, G., & Marchant, C. (in press). Consumer based quality of life assessment: A path model of perceived satisfaction. Evaluation and Program Planning .
55.
Schalock, R.L., DeVries, D., & Lebsack, J. (1999). Rights, quality measures, and program changes . In S. S. Herr & G. Weber (Eds.), Aging, rights and quality of life of older persons with developmental disabilities (pp. 81-92). Baltimore : Brookes.
56.
Schalock, R.L., & Faulkner, E.H. (1997). Cross-validation of a contextual model of quality of life. European journal on Mental Disability , 4(1), 18-27.
57.
Schalock, R.L., & Jensen, M. (1986). Assessing the goodness-of-fit between persons and their environments. Journal of The Association for Persons with Severe Handicaps, 11, 103-109.
58.
Schalock, R.L., & Keith, K.D. (1993). Quality of life questionnaire. Worthington, OH: IDS.
59.
Schalock, R.L., Keith, K.D., Hoffinan, K., & Karan, O.C. (1989). Quality of life: Its measurement and use. Mental Retardation, 27, 25-31.
60.
Schalock, R.L., Lemanowicz, J.A., Conroy, J.W., & Feinstein, C.S. (1994). A multi-variate investigative study of the correlates of quality of life. Journal on Developmental Disabilities, 3(2), 59-73.
61.
Senge, P. (1990). The fifth discipline: The art and practice of the learning organization. New York: Doubleday/Currency .
62.
Snell, M.E., & Vogtle, L.K. (1997). Facilitating relationships of children with mental retardation in schools. In R. L. Schalock (Ed.), Quality of life: Vol. 2. Application to persons with disabilities (pp. 43-62). Washington, DC: American Association on Mental Retardation.
63.
Stark, J.A., & Goldsbury, T. (1990). Quality of life from childhood to adulthood. In R. L. Schalock (Ed.), Quality of life: Perspectives and issues (pp. 71-84). Washington, DC : American Association on Mental Retardation.
64.
Torres, R.T. (1992). Improving the quality of internal evaluation: The evaluator as consultant-mediator. Evaluation and Program Planning, 14, 189-198.
65.
Verdugo, M.A. (in press). Quality of life for persons with mental retardation and developmental disabilities in Spain: The present zeitgeist. In K. D. Keith & R. L. Schalock (Eds.), Cross-cultural perspectives on quality of life. Washington, DC: American Association on Mental Retardation.
66.
Ward, N., & Keith, K.D. (1996). Self-advocacy: Foundations for a life of quality . In R. L. Schalock (Ed.), Quality of Life: Vol. 1. Conceptualization and measurement (pp. 5-10). Washington, DC: American Association on Mental Retardation .
67.
Whitney-Thomas, J. (1997). Participatory action research as an approach to enhancing quality of life for individuals with disabilities. In R L. Schalock (Ed.), Quality of life: Vol. 2. Application to persons with disabilities (pp. 181-198). Washington, DC: American Association on Mental Retardation .
68.
Wolfensberger, W., & Glenn, L. (1975). Program analysis of service systems: Handbook and manual (3rd ed.). Toronto : National Institute on Mental Retardation.