"Children are not supposed to die," but they do. The death of a child leaves long-lasting negative effects if provisions are not made to deal with the grief. The most important factor is the unnecessary isolation of the child and family. This article presents a perspective as well as a challenge to provide an interdisciplinary and interorganizational approach to meet the need.
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References
1.
Koop CEIntroduction. Presented at Children's Hospice International Pediatric Hospice Conference: Enriching the Circle of Care; May 8, 1986; Washington, D.C.
2.
Health Care, Home Care Experiences of Families with Chronically III Children . Washington, D.C.: US General Accounting Office; 1989.
3.
Osterweis M, Solomon F, Green M, eds. Bereavement: Reactions, Consequences and Care. Washington, D.C.: National Academy Press; 1984.
4.
Bowen ORRemarks at the Opening Ceremony of the New Headquarters for Children's Hospice International; September 11, 1986; Alexandria, Va.
5.
Kutscher AH, Klagsbrun SC, Torpie RJ, De-Bellis R, Hale MS, Tallmer M. eds. Hospice USA. New York, NY: Columbia University Press; 1983.
6.
Children's Hospice International.1989 Survey of children's hospice care services. Alexandria, Va: CHI; 1989.
7.
NHO Standards of Care. McLean, Va : The National Hospice Organization; 1981.