Palliative care focused on improving the quality of life for terminal patients and their families have had a significant impact on healthcare services in developed countries. This review aims to explore how home-based palliative care is implemented for terminal patients in developed countries by analyzing 10 articles from a total of 705 found in 4 databases (PubMed, Scopus, Wiley, and Science Direct) between August 2014 and August 2024. The quality of the documents was evaluated using the critical appraisal tools from the Joanna Briggs Institute (JBI), with scores ranging from 75% to 100%. Key findings include: (1) Positive benefits of home-based palliative care, including peaceful deaths at home and improved family functioning; (2) Barriers to implementation, such as a lack of healthcare professional competency and issues from families and healthcare services; (3) A comprehensive approach to care at home, encompassing comprehensive care and symptom management; (4) The success of home-based care depends on support from interdisciplinary teams and families. Implementing palliative care in developed countries requires cooperation and support from multiple stakeholders. Study limitations include difficulties in comparing implementations between developed and developing countries and the limited number of relevant articles, with only 705 articles found.
ChangJHanKMedinaMKimS.Palliative care and healthcare utilization among deceased metastatic lung cancer patients in U.S. hospitals. BMC Palliat Care. 2022;21(1):136. doi:10.1186/s12904-022-01026-y
3.
ApoesoOKuwataCGoldhirschSL, et alCreating a colocation unit for end-of-life care during a pandemic. J Palliat Med. 2021;24(4):574-579. doi:10.1089/jpm.2020.0502
4.
World Health Organization. Assessing national capacity for the prevention and control of noncommunicable diseases: report of the 2019 global survey. World Health Organization; 2019. https://www.who.int/publications/i/item/9789240071698
5.
AnkudaCKMeierDE.Predictors of reliably high-value end-of-life care. Curr Opin Support Palliat Care. 2018;12(4):460-465.
6.
DhiliwalSRMuckadenM.Impact of specialist home-based palliative care services in a tertiary oncology set up: a prospective non-randomized observational study. Indian J Palliat Care. 2015;21(1):28.
7.
SteindalSNesAGodskesenT, et alAdvantages and challenges in using telehealth for home-based palliative care: protocol for a systematic mixed studies review. JMIR Res Protoc. 2021;10(5):e22626. doi:10.2196/22626
8.
Abu-OdahHMolassiotisALiuJ.Lessons learned from countries that have introduced palliative care services into their national health system: a narrative review. J Palliat Care. 2022;37(1):55-66. doi:10.1177/0825859721989557
9.
AlizadehZRohaniCRassouliMIlkhaniMHazratiM.Challenges of integrated home-based palliative care services for cancer patients during the COVID-19 pandemic: a qualitative content analysis. Home Health Care Manag Pract. 2023;35(3):180-189. doi:10.1177/10848223221134780
10.
GomesBCalanzaniNCurialeVMcCronePHigginsonIJBritoMD.Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. São Paulo Med J. 2016;134(1):93-94.
11.
McEwenRAsadaYBurgeFLawsonB.Associations between home death and the use and type of care at home. J Palliat Care. 2018;33(1):26-31.
12.
EnguidanosSRahmanAFieldsT, et alExpanding access to home-based palliative care: a randomized controlled trial protocol. J Palliat Med. 2019;22(S1):58-65. doi:10.1089/jpm.2019.0147
13.
SmithCBBrawleyOW. Disparities in access to palliative care. In: Kelley AS and Meier DE, eds. Meeting the Needs of Older Adults with Serious Illness: Challenges and Opportunities in the Age of Health Care Reform. Springer New York; 2014:19-29.
14.
NilsenPWallerstedtBBehmLAhlströmG.Towards evidence-based palliative care in nursing homes in Sweden: a qualitative study informed by the organizational readiness to change theory. Implementation Sci. 2018;13(1):1. doi:10.1186/s13012-017-0699-0
15.
HassankhaniHRahmaniABestATaleghaniFSanaatZDehghannezhadJ.Barriers to home-based palliative care in people with cancer: a qualitative study of the perspective of caregivers. Nurs Open. 2020;7(4):1260-1268. doi:10.1002/nop2.503
16.
PendersYGilissenJMoreelsSDeliensLBlockL.Palliative care service use by older people: time trends from a mortality follow-back study between 2005 and 2014. Palliat Med. 2017;32(2):466-475. doi:10.1177/0269216317720833
17.
CardenasVRahmanAZhuYEnguídanosS.Reluctance to accept palliative care and recommendations for improvement: findings from semi-structured interviews with patients and caregivers. Am J Hosp Palliat Med. 2021;39(2):189-195. doi:10.1177/10499091211012605
18.
KochemsKde GraafEHesselmannGMAusemsMJETeunissenSCCM. Healthcare professionals’ perceived barriers in providing palliative care in primary care and nursing homes: a survey study. Palliat Care Soc Pract. 2023;17:1-17. doi:10.1177/26323524231216994
19.
World Health Organization. Planning and Implementing Palliative Care Services: A Guide for Programme Managers [Internet]. World Health Organization; 2016. Accessed July 26, 2024. https://iris.who.int/handle/10665/250584
TriccoACLillieEZarinW, et alPRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med. 2018;169(7):467-473.
22.
RayyanAI. Rayyan [Internet]. Version 2024. 2024. Accessed July 8, 2024. https://new.rayyan.ai/
23.
LockwoodCMunnZPorrittK.Qualitative research synthesis: methodological guidance for systematic reviewers utilizing meta-aggregation. JBI Evidence Implementation. 2015;13(3):179-187.
24.
MoolaSMunnZTufanaruC, et alSystematic reviews of etiology and risk. In: Aromataris E and Munn Z, eds. Joanna Briggs Institute Reviewer’s Manual. The Joanna Briggs Institute; 2017:217-269.
25.
SimonettiSParkerDMackHAWiseS.Managers’ experiences of providing end-of-life care under the Home Care Package Program. Australas J Ageing. 2023;42(3):527-534. doi:10.1111/ajag.13171
26.
PaulsenBJohnsenRHaddersH.Nurses’ experience with relatives of patients receiving end-of-life care in nursing homes and at home: a questionnaire-based cross-sectional study. Nurs Open. 2018;5(3):431-441. doi:10.1002/nop2.155
27.
KanedaAKanoyaY.End-of-life care management for older adults at home by multidisciplinary professionals in Japan. J Gen Fam Med. 2023;24(5):294-302. doi:10.1002/jgf2.642
28.
Brian CasselJKerrKMMcClishDK, et alEffect of a home-based palliative care program on healthcare use and costs. J Am Geriatr Soc. 2016;64(11):2288-2295. doi:10.1111/jgs.14354
29.
NobleBKingNWoolmoreA, et alCan comprehensive specialised end-of-life care be provided at home? Lessons from a study of an innovative consultant-led community service in the UK. Eur J Cancer Care. 2015;24(2):253-266.
30.
MashidaYFukahoriHIkezakiSFukuiS.Patterns of visiting nurse services for older adults in Japanese residential facilities: a latent class analysis. Geriatr Gerontol Int. 2023;23(5):326-333.
31.
JackBAMitchellTKCopeLCO’BrienMR.Supporting older people with cancer and life-limiting conditions dying at home: a qualitative study of patient and family caregiver experiences of hospice at home care. J Adv Nurs. 2016;72(9):2162-2172.
32.
HanssonHBjörkMSantacroceSJRaunkiærM.End-of-life palliative home care for children with cancer: a qualitative study on parents’ experiences. Scand J Caring Sci. 2023;37(4):917-926. doi:10.1111/scs.13154
33.
JohannesenEJTimmHRóinÁ.Caregivers’ experiences of end-of-life caregiving to severely ill relatives with cancer dying at home: a qualitative study in the Faroe Islands. Scand J Caring Sci. 2023;37(3):788-796. doi:10.1111/scs.13150
34.
JackBAO’BrienMRScruttonJBaldryCRGrovesKE.Supporting family carers providing end-of-life home care: a qualitative study on the impact of a hospice at home service. J Clin Nurs. 2015;24(1-2):131-140. doi:10.1111/jon.12627
35.
KirtaniaMKattaA.Essential elements of home-based palliative care model: a rapid review. Indian J Palliat Care. 2023;29(4):359-367. doi:10.25259/IJPC_227_2022
36.
KristantiMSAgastiyaIMCKuriantoE.The implementation of palliative home care in Southeast Asian countries: an integrative review. Home Health Care Manag Pract. 2023;35(1):48-56. doi:10.1177/10848223221113858
PaulAFernandesE.Experiences of caregivers in a home-based palliative care model – a qualitative study. Indian J Palliat Care. 2020;26(3):306-311. doi:10.4103/IJPC.IJPC_154_19
39.
MorrisonRSPenrodJDCasselJB, et alCost savings associated with US hospital palliative care consultation programs. Arch Intern Med. 2008;168(16):1783-1790. doi:10.1001/archinte.168.16.1783
40.
RothARCanedoAR.Introduction to hospice and palliative care. Prim Care. 2019;46(3):287-302. doi:10.1016/j.pop.2019.04.001
41.
SheikhMSekaranSKochharH, et alHospice vs palliative care: a comprehensive review for primary care physician. J Fam Med Prim Care. 2022;11(8):4168-4173. doi:10.4103/jfmpc.jfmpc_2262_21
42.
DakkaFJ.Nurses barriers to evidence-based practice in palliative care: a systematic review. Sage Open Nurs. 2022;8:23779608221142956. doi:10.1177/23779608221142957
43.
HökkäMMelenderH-LLehtoJTKaakinenP.Palliative nursing competencies required for different levels of palliative care provision: a qualitative analysis of health care professionals’ perspectives. J Palliat Med. 2021;24(10):1516-1524. doi:10.1089/jpm.2020.0632
44.
SeptianRBPangastutiHSNismanWA.The need for home-based palliative care among patients with stroke and their families: a phenomenological study. J Holist Nurs Sci. 2024;11(1): 19-27. doi:10.31603/nursing.v11i1.11189
MillsJAbelJKellehearAPatelM.Access to palliative care: the primacy of public health partnerships and community participation. Lancet Public Health. 2021;6(11):e791–e792. doi:10.1016/S2468-2667(21)00213-9
47.
AfolabiOAbboah-OffeiMNamisangoE, et alDo the clinical management guidelines for COVID-19 in African countries reflect the African quality palliative care standards? A review of current guidelines. J Pain Symptom Manage. 2021;61(5):e17-e23. doi:10.1016/j.jpainsymman.2021.01.126
48.
BrykARobertsGHudsonPHarmsLGerdtzM.The concept of holism applied in recent palliative care practice: a scoping review. Palliat Med. 2022;37(1):26-39. doi:10.1177/02692163221129999
49.
Goni-FusteBCrespoIMonforte-RoyoCPorta-SalesJBalaguerAPergolizziD.What defines the comprehensive assessment of needs in palliative care? An integrative systematic review. Palliat Med. 2021;35(4):651-669.
50.
PatelAUfereN.Integrating palliative care in the management of patients with advanced liver disease. Clin Liver Dis. 2020;15(4):136-140. doi:10.1002/cld.936
51.
TarbergAKvangarsnesMHoleTThronæsMMadssenTLandstadB.Silent voices: family caregivers’ narratives of involvement in palliative care. Nurs Open. 2019;6(4):1446-1454. doi:10.1002/nop2.344
52.
FerrellBRTwaddleMLMelnickAMeierDE. National consensus project clinical practice guidelines for quality palliative care guidelines, 4th edition. J Palliat Med. 2018;21(12):1684-1689. doi:10.1089/jpm.2018.0431
53.
SalifuYAlmackKCaswellG.‘My wife is my doctor at home’: a qualitative study exploring the challenges of home-based palliative care in a resource-poor setting. Palliat Med. 2020;35(1):97-108. doi:10.1177/0269216320951107
